Eye flare

[Guest guest]

Dagny, thanks for all the info. I forwarded it on to Russ. Boy that will

teach him to ask us a question.LOL Again I want to thank all of you who have

come to the rescue again.

Dagny, how are you doing?? I hope well. Let us know, we miss you.

hugs

[Guest guest]

Scleritis is a common problem for RP patients. You can wake up one morning and

find one of your eyes (usually one but could be both) completely bloody red.

You need to be under the care of an ophthalmalogist who is familiar with

relapsing polychondritis. You need to be using prednisolone eye drops, 3 x day

until it is under control and then taper it down per your doctor's instructions.

Continued use of pred eye drops can result in increased pressure of the eye and

is a mild form of glaucoma. The treatment for that is is to use timolol (one

drop each eye at night.) I was seeing my ophthalmalogist every month to start,

and now I see him every 4 months. He has advised me to continue using the pred

drops 2 to 3 times a week even though I am in control now because I still have

the problem, and it is harder to get it under control again if I have stopped

the eye drops completely. Hope this helps!! My eye doctor is a professor here

at OHSU medical school. Take heart!! Love, Dagny

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[Guest guest]

Susiecue, thanks for the input, I've sent your post on to Russ.

hugs

PS how are you doing??