Re: New Rpolychondritis member

[Guest guest]

I want to welcome all the new members to the group. I'm sorry I don't know

your names yet. Please feel free to just jump right in and ask all the

questions that you want. There is no silly question and this is how we all

learn.

I'm sorry you need us, but you have found the most wonderful group there is.

We are all one big family and sad to say we just keep growing. You too will

become a family member soon. Just tell us a little about yourself and ask

what you need to know. We are here to support you not only in RP, but in any

other way too.

We vent, rant, rave, share info, cry and most of all laugh alot. Humor helps

us to see the bright side of things. Please don't believe all that you may

read on RP. A lot is old and it will scare you half to death. RP is

treatable and most of us live active lives.

I am 50 and live in Calif. I have had RP or been diagnosed with RP since

1999. I am currently on Prednisone and Plaquinel. You will find that we are

all different. We all take different drugs and our symptoms can be

different. So Please if you read something, it may not pertain to your case

of RP.

Again, welcome to you all, and I look forward to getting to know you all

better.

hugs