Guest guest Posted November 24, 2003 Report Share Posted November 24, 2003 Gale, yes; Stanford does an EBCT scan and it shows everything in the lungs! Everything! Love to you and yours, and happy6 Thanksgiving to all in the usa! n Rojas Re: WE ARE HOME > The CT scan provides a better picture. Abby's doctors do a CT scan > every 6 months. > > Gale > > > > > We are FINALLY home from the hospital! I feel so FREEEEEEEEE! > > LOL > > > I > > > > was going insane in that place. Jordan is feeling a little > > better > > > > but at least he kept his fever down last night so they let us > go > > > > home. We have an appt Friday to see the dr and he has to have > > more > > > > chest x-rays before his appt... probally Wednesday is when they > > > will > > > > set it up for. As for now though we are home and loving it. I > > was > > > > soooo ready to come home. > > > > > > > > We have been in the hospital here since Tuesday!! Jordan had > > > > Pnemonia(spelling) Is this consistant with possibly having > CF? > > > His > > > > last test was 39 at Columbus hospital. It has been 80, 58, > 57, > > > and > > > > then 39... is this normal? Can someone PLEASE explain this to > > > > me?????? > > > > > > > > Email me at thearthurs3@z... > > > > > > > > Rhonda > > > > ------------------------------------------- > The opinions and information exchanged on this list should IN NO WAY > be construed as medical advice. > > PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. > > ------------------------------------ > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 24, 2003 Report Share Posted November 24, 2003 That was supposed to be salty---the new members will get used to this! Love to all at cfparents, n Re: WE ARE HOME > > > > Rhonda, > > Below is a description of another diagnostic test for CF. It is not > > widely available, but from what I understand it is a very accurate > > test. It could be something to discuss with your doctors. > > > > Nasal potential difference measurement > > > > Potential difference (PD) (voltage) measured from nasal mucosa and > > the reading obtained by a reference electrode inserted into the > > forearm correlates with the movement of sodium across cell > > membranes, which is a physiologic function rendered abnormal by a > > CFTR mutation. A normal mean value standard error (SE) is 0.9-24.7 > > mV; an abnormal value is 1.8-53 mV. When measurements are repeated > > after mucosal perfusion with amiloride to block an epithelial sodium > > channel, the drop in PD is greater in patients with CF (73%) than in > > control subjects (53%). Normally, subsequent perfusion with chloride- > > free solution and isoproterenol produces a sharp increase in the PD > > but has little effect when CFTR function is abnormal. > > > > As a result of the lack of commercially available equipment and the > > practical difficulties with nasal PD measurement, this test is > > performed in only a few research centers to diagnose CF in patients > > in whom making a diagnosis is difficult or a sweat test is not > > technically possible because of skin problems. > > > > > > Sara > > > > > > > > > > > > > > > > > We are FINALLY home from the hospital! I feel so FREEEEEEEEE! LOL > > I > > > was going insane in that place. Jordan is feeling a little better > > > but at least he kept his fever down last night so they let us go > > > home. We have an appt Friday to see the dr and he has to have > > more > > > chest x-rays before his appt... probally Wednesday is when they > > will > > > set it up for. As for now though we are home and loving it. I > > was > > > soooo ready to come home. > > > > > > We have been in the hospital here since Tuesday!! Jordan had > > > Pnemonia(spelling) Is this consistant with possibly having CF? > > His > > > last test was 39 at Columbus hospital. It has been 80, 58, 57, > > and > > > then 39... is this normal? Can someone PLEASE explain this to > > > me?????? > > > > > > Email me at thearthurs3@z... > > > > > > Rhonda > > > > > > > > ------------------------------------------- > > The opinions and information exchanged on this list should IN NO WAY > > be construed as medical advice. > > > > PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR > TREATMENTS. > > > > ------------------------------------ > > > > > > Quote Link to comment Share on other sites More sharing options...
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