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Re: Re: WE ARE HOME

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Gale, yes; Stanford does an EBCT scan and it shows everything in the lungs!

Everything! Love to you and yours, and happy6 Thanksgiving to all in the

usa!

n Rojas

Re: WE ARE HOME

> The CT scan provides a better picture. Abby's doctors do a CT scan

> every 6 months.

>

> Gale

>

> > > > We are FINALLY home from the hospital! I feel so FREEEEEEEEE!

> > LOL

> > > I

> > > > was going insane in that place. Jordan is feeling a little

> > better

> > > > but at least he kept his fever down last night so they let us

> go

> > > > home. We have an appt Friday to see the dr and he has to have

> > more

> > > > chest x-rays before his appt... probally Wednesday is when they

> > > will

> > > > set it up for. As for now though we are home and loving it. I

> > was

> > > > soooo ready to come home.

> > > >

> > > > We have been in the hospital here since Tuesday!! Jordan had

> > > > Pnemonia(spelling) Is this consistant with possibly having

> CF?

> > > His

> > > > last test was 39 at Columbus hospital. It has been 80, 58,

> 57,

> > > and

> > > > then 39... is this normal? Can someone PLEASE explain this to

> > > > me??????

> > > >

> > > > Email me at thearthurs3@z...

> > > >

> > > > Rhonda

>

>

>

> -------------------------------------------

> The opinions and information exchanged on this list should IN NO WAY

> be construed as medical advice.

>

> PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

TREATMENTS.

>

> ------------------------------------

>

>

>

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That was supposed to be salty---the new members will get used to this!

Love to all at cfparents,

n

Re: WE ARE HOME

>

>

> > Rhonda,

> > Below is a description of another diagnostic test for CF. It is not

> > widely available, but from what I understand it is a very accurate

> > test. It could be something to discuss with your doctors.

> >

> > Nasal potential difference measurement

> >

> > Potential difference (PD) (voltage) measured from nasal mucosa and

> > the reading obtained by a reference electrode inserted into the

> > forearm correlates with the movement of sodium across cell

> > membranes, which is a physiologic function rendered abnormal by a

> > CFTR mutation. A normal mean value standard error (SE) is 0.9-24.7

> > mV; an abnormal value is 1.8-53 mV. When measurements are repeated

> > after mucosal perfusion with amiloride to block an epithelial sodium

> > channel, the drop in PD is greater in patients with CF (73%) than in

> > control subjects (53%). Normally, subsequent perfusion with chloride-

> > free solution and isoproterenol produces a sharp increase in the PD

> > but has little effect when CFTR function is abnormal.

> >

> > As a result of the lack of commercially available equipment and the

> > practical difficulties with nasal PD measurement, this test is

> > performed in only a few research centers to diagnose CF in patients

> > in whom making a diagnosis is difficult or a sweat test is not

> > technically possible because of skin problems.

> >

> >

> > Sara

> >

> >

> >

> >

> >

> >

> >

> > > We are FINALLY home from the hospital! I feel so FREEEEEEEEE! LOL

> > I

> > > was going insane in that place. Jordan is feeling a little better

> > > but at least he kept his fever down last night so they let us go

> > > home. We have an appt Friday to see the dr and he has to have

> > more

> > > chest x-rays before his appt... probally Wednesday is when they

> > will

> > > set it up for. As for now though we are home and loving it. I

> > was

> > > soooo ready to come home.

> > >

> > > We have been in the hospital here since Tuesday!! Jordan had

> > > Pnemonia(spelling) Is this consistant with possibly having CF?

> > His

> > > last test was 39 at Columbus hospital. It has been 80, 58, 57,

> > and

> > > then 39... is this normal? Can someone PLEASE explain this to

> > > me??????

> > >

> > > Email me at thearthurs3@z...

> > >

> > > Rhonda

> >

> >

> >

> > -------------------------------------------

> > The opinions and information exchanged on this list should IN NO WAY

> > be construed as medical advice.

> >

> > PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

> TREATMENTS.

> >

> > ------------------------------------

> >

> >

> >

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