Re: Crystal...beads by tube...

[Guest guest]

I was told not to put enzyme beads through the tube. It might get clogged up by

the beads.

Crystal...beads by tube...

Just curious... You mentioned that you've concerned about developing

an oral aversion because of the beads. Have you tried putting beads

through the tube?

[Guest guest]

My son is exclusively g-tube fed (oral aversion). We nearly force

fed him so often since he wasn't gaining weight that he simply

stopped eating altogether once the g-tube was in. We use Viokase

enzymes which are a powder. They can't be given by mouth but we mix

it with water in a syringe and it is WONDERFUL. Works too. Our

dietician was hesitant about using them but we have had no problems

once we found the right amount. There is also another enzyme that is

designed to go into a g-tube--Pancrecarb. But the viokase is much

easier in our experience. We are able to give him enzymes while he

is sleeping.

mom to Ashton 31 months wcf

> I was told not to put enzyme beads through the tube. It might get

clogged up by the beads.

>

> Crystal...beads by tube...

>

>

> Just curious... You mentioned that you've concerned about

developing

> an oral aversion because of the beads. Have you tried putting

beads

> through the tube?

>

>

>

[Guest guest]

The VioKase is what we use in 's g-tube if she is asleep too. We do start

her out with her regular Creon 5, but she usually falls asleep during the feed.

Crystal...beads by tube...

>

>

> Just curious... You mentioned that you've concerned about

developing

> an oral aversion because of the beads. Have you tried putting

beads

> through the tube?

>

>

>

[Guest guest]

Pancrecarb is an enteric coated enzyme that is designed to go

through a G-Tube (and be taken orally) as long as the tube is big

enough. There is a special recipie that you mix and it works

incredibly well. We have rarely had problems with beads getting

stuck and we have used this method 4-5 times per day now for 8

months. The two times the tube was clogged, we easily unclogged it

with Coke. I hope you find a plan that works.

Donna