Re: CF in the OTHER child, too??RESPONSE

[Guest guest]

In a message dated 11/21/2003 11:56:26 AM Eastern Standard Time,

juliewilkins2001@... writes:

> 1. In a case of siblings having CF, don't they typically present the

> same symptoms since they have they exact same mutations and

> enviroment? Emma is pancreatic insufficient and has weight gain

> problems. on is chubby.

>

To quote my Dr. THEY ALL PRESENT DIFFERENTLY - my 3 are similiar but

different (i.e. one more pulmonary - due to late diagnosis and scar tissue, one

more

GI and one more sinus involvment, etc.) Its like a fruit cake - sometimes the

nuts fall in different places on the cake when you make 2.

> 2. Have you ever heard of a sweat test being SO negative with a CF

> diagnosis anyway? I do know it is possible, but at that low a number?

My children's were ALL negative............they were not diagnosed to DNA

testing was available. I forget the #'s

>

> 3. What about Pseudomonas in kids without CF? Ever come across that? Kids

> w/o CF Get PA but get RID of it.......with CF they do not eradicate it cause

> of thick mucous........

>

>

Rosemary in NY with 3 children (13, 11 and 7)

with CF. I have a dog named TOBI and have

coined the phrase " BREATHE DAMMIT "