Guest guest Posted December 3, 2003 Report Share Posted December 3, 2003 Natalia, Hi, I am , mother of 3 kids, my oldest a is 10 has CF. Question, Can you use Fosamax for the Osteoporosis? It is inhaled, sprayed on the nose. My mother did it, religiously a few years ago with excelent result. There is a catch you do have to exercice each time after it has been applied. Just my 2 cts. worth. > > > Gayle, > > > You almost brought me to tears as I read your email. There were so > > > many things that you said that made me feel better about today. I > > have > > > been going through the same things as your son. Suddenly after a > > good > > > run during my childhood and teenage-hood, I crashed during > > university. > > > I went through depression and took anti-depressants for a while. I > > > went through times that I didn't want to do my treatments since I > > > simply did not care, I was that depressed. School not only got it > > the > > > way, it confused me as to what was my priority in life. Only > > during > > > the past two years when my standard of living (as you said about > > your > > > son) went down a lot, and i was faced head on with what was ahead > > for > > > me. It blew me away that I was doing everything right in life > > (with > > > school, friends, family, i even volunteered, since I thought if I > > was a > > > super good person this disease could not get me) and still CF > > crushed > > > me. > > > > > > Tell your son to consider working out. I went to the gym last > > night. > > > I am lucky that I have a brother that does triathlons and knows > > > cardiovascular fitness better than me, and he went with me. I know > > > what it feels like to be so sick that the mere thought of working > > out > > > seems like absolute craziness. But tell him he has to go. He HAS > > to. > > > And if it means walking on the treadmill at a low speed for 30 > > minutes, > > > do that. Or walk stairs in the house. I am on IV right now and I > > feel > > > like hell. Weak and achy. My skin is all hollow from the > > Ceftazidime > > > and Tobi, and I just want to sleep. But I make myself go, put on > > quite > > > a show of coughing and wheezing on the treadmill and bike, look > > like a > > > total freak with the IV hanging out of my shirt. But you know what > > it > > > empowers you to do stuff like that. To show people that you are > > > fighting for more than a slim figure, which is the analogy for the > > gym. > > > But people should be there for their health, and that's why I'm > > there. > > > Tell him to do it. And start super slow, and you will be surprised > > how > > > his body will react and help him along. And since school might be > > put > > > off, and other goals also temporarily, this will give him a goal > > and a > > > sense of triumph. Start with little goals and keep going. > > > May we should set up a support work-out mailing list between me and > > > your son, and then anyone who wants to join in. This is what I did > > > last night: > > > > > > treadmill, 5min warmup (@2.6), 5x (1min@3..., 1min@2...), 5min > > warmdown > > > bike, 5-10 minutes level1, manual > > > > > > weights - squats - 2 sets of 10 > > > - lunges - 2 sets of 10-20 (depending on how you feel) > > > - leg press - 2 sets of 20 (light weight) > > > > > > bike 5-10 minutes level1, manual > > > > > > Does not seem like a lot, but it totally wore my into the ground. > > I > > > went home breathing easy, it felt great after, not so much fun > > during. > > > Tell him that he can do it. Even start at home with > > stairs.....walks > > > in the park. I believe that he can do it. It's crucial, and I > > want to > > > be there with him, even if just on line. I know I'm pushy, but > > pushy > > > will get you through the pain. > > > > > > Let me know what you think. > > > Oh and about the arthritis, I have Osteoporosis, and brittle > > bones. i > > > feel it in my knees in the winter and my fingers. I load up on > > pain > > > killers when it keeps me from doing things. But it certainly does > > not > > > help anything does it. > > > My heart is with you guys. > > > > > > Natalia > > > > > <image.tiff> > > > > > > ------------------------------------------- > > The opinions and information exchanged on this list should IN NO WAY > > be construed as medical advice. > > > > PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR > > TREATMENTS. > > > > ------------------------------------ > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2003 Report Share Posted December 4, 2003 thanks ! I have never taken Fosamax before, I'll ask about it in clinic next week. It sounds interesting. I'm up way too early...my arm has swollen like a balloon from the IV just overnight, and it kills!! The nurse is taking it out and switching it this morning. Thank god. On Thursday, December 4, 2003, at 12:25 AM, Palazola wrote: > Natalia, > > Hi, I am , mother of 3 kids, my oldest a is 10 has CF. > Question, Can you use Fosamax for the Osteoporosis? It is inhaled, > sprayed on the nose. My mother did it, religiously a few years ago > with excelent result. There is a catch you do have to exercice each > time after it has been applied. Just my 2 cts. worth. > > > > > > > > > > > > Gayle, > > > > You almost brought me to tears as I read your email. There > were so > > > > many things that you said that made me feel better about > today. I > > > have > > > > been going through the same things as your son. Suddenly after > a > > > good > > > > run during my childhood and teenage-hood, I crashed during > > > university. > > > > I went through depression and took anti-depressants for a > while. I > > > > went through times that I didn't want to do my treatments since > I > > > > simply did not care, I was that depressed. School not only got > it > > > the > > > > way, it confused me as to what was my priority in life. Only > > > during > > > > the past two years when my standard of living (as you said about > > > your > > > > son) went down a lot, and i was faced head on with what was > ahead > > > for > > > > me. It blew me away that I was doing everything right in life > > > (with > > > > school, friends, family, i even volunteered, since I thought if > I > > > was a > > > > super good person this disease could not get me) and still CF > > > crushed > > > > me. > > > > > > > > Tell your son to consider working out. I went to the gym last > > > night. > > > > I am lucky that I have a brother that does triathlons and knows > > > > cardiovascular fitness better than me, and he went with me. I > know > > > > what it feels like to be so sick that the mere thought of > working > > > out > > > > seems like absolute craziness. But tell him he has to go. He > HAS > > > to. > > > > And if it means walking on the treadmill at a low speed for 30 > > > minutes, > > > > do that. Or walk stairs in the house. I am on IV right now > and I > > > feel > > > > like hell. Weak and achy. My skin is all hollow from the > > > Ceftazidime > > > > and Tobi, and I just want to sleep. But I make myself go, put > on > > > quite > > > > a show of coughing and wheezing on the treadmill and bike, look > > > like a > > > > total freak with the IV hanging out of my shirt. But you know > what > > > it > > > > empowers you to do stuff like that. To show people that you are > > > > fighting for more than a slim figure, which is the analogy for > the > > > gym. > > > > But people should be there for their health, and that's why I'm > > > there. > > > > Tell him to do it. And start super slow, and you will be > surprised > > > how > > > > his body will react and help him along. And since school > might be > > > put > > > > off, and other goals also temporarily, this will give him a goal > > > and a > > > > sense of triumph. Start with little goals and keep going. > > > > May we should set up a support work-out mailing list between me > and > > > > your son, and then anyone who wants to join in. This is what I > did > > > > last night: > > > > > > > > treadmill, 5min warmup (@2.6), 5x (1min@3..., 1min@2...), 5min > > > warmdown > > > > bike, 5-10 minutes level1, manual > > > > > > > > weights - squats - 2 sets of 10 > > > > - lunges - 2 sets of 10-20 (depending on how you feel) > > > > - leg press - 2 sets of 20 (light weight) > > > > > > > > bike 5-10 minutes level1, manual > > > > > > > > Does not seem like a lot, but it totally wore my into the > ground. > > > I > > > > went home breathing easy, it felt great after, not so much fun > > > during. > > > > Tell him that he can do it. Even start at home with > > > stairs.....walks > > > > in the park. I believe that he can do it. It's crucial, and I > > > want to > > > > be there with him, even if just on line. I know I'm pushy, but > > > pushy > > > > will get you through the pain. > > > > > > > > Let me know what you think. > > > > Oh and about the arthritis, I have Osteoporosis, and brittle > > > bones. i > > > > feel it in my knees in the winter and my fingers. I load up on > > > pain > > > > killers when it keeps me from doing things. But it certainly > does > > > not > > > > help anything does it. > > > > My heart is with you guys. > > > > > > > > Natalia > > > > > > > > <image.tiff> > > > > > > > > > ------------------------------------------- > > > The opinions and information exchanged on this list should IN NO > WAY > > > be construed as medical advice. > > > > > > PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR > > > TREATMENTS. > > > > > > ------------------------------------ > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2003 Report Share Posted December 4, 2003 So it's all bullshit well fuck you Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2003 Report Share Posted December 4, 2003 In a message dated 12/4/2003 9:14:14 PM Central Standard Time, Sheilamunden@... writes: So it's all bullshit well fuck you WHAT IS THIS ABOUT!!!!!!!!!!!! DEB A Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2003 Report Share Posted December 4, 2003 Natalia, Hope you get better soon. Are you doing any alternative therapy. GSH+, Inositol, Crataegus? Are you taking your magnesium and zinc? Also, send again the link to your shop, I really liked one of your purses but I was at the office and could not get it. > > > > > Gayle, > > > > > You almost brought me to tears as I read your email. There > > were so > > > > > many things that you said that made me feel better about > > today. I > > > > have > > > > > been going through the same things as your son. Suddenly after > > a > > > > good > > > > > run during my childhood and teenage-hood, I crashed during > > > > university. > > > > > I went through depression and took anti-depressants for a > > while. I > > > > > went through times that I didn't want to do my treatments since > > I > > > > > simply did not care, I was that depressed. School not only got > > it > > > > the > > > > > way, it confused me as to what was my priority in life. Only > > > > during > > > > > the past two years when my standard of living (as you said about > > > > your > > > > > son) went down a lot, and i was faced head on with what was > > ahead > > > > for > > > > > me. It blew me away that I was doing everything right in life > > > > (with > > > > > school, friends, family, i even volunteered, since I thought if > > I > > > > was a > > > > > super good person this disease could not get me) and still CF > > > > crushed > > > > > me. > > > > > > > > > > Tell your son to consider working out. I went to the gym last > > > > night. > > > > > I am lucky that I have a brother that does triathlons and knows > > > > > cardiovascular fitness better than me, and he went with me. I > > know > > > > > what it feels like to be so sick that the mere thought of > > working > > > > out > > > > > seems like absolute craziness. But tell him he has to go. He > > HAS > > > > to. > > > > > And if it means walking on the treadmill at a low speed for 30 > > > > minutes, > > > > > do that. Or walk stairs in the house. I am on IV right now > > and I > > > > feel > > > > > like hell. Weak and achy. My skin is all hollow from the > > > > Ceftazidime > > > > > and Tobi, and I just want to sleep. But I make myself go, put > > on > > > > quite > > > > > a show of coughing and wheezing on the treadmill and bike, look > > > > like a > > > > > total freak with the IV hanging out of my shirt. But you know > > what > > > > it > > > > > empowers you to do stuff like that. To show people that you are > > > > > fighting for more than a slim figure, which is the analogy for > > the > > > > gym. > > > > > But people should be there for their health, and that's why I'm > > > > there. > > > > > Tell him to do it. And start super slow, and you will be > > surprised > > > > how > > > > > his body will react and help him along. And since school > > might be > > > > put > > > > > off, and other goals also temporarily, this will give him a goal > > > > and a > > > > > sense of triumph. Start with little goals and keep going. > > > > > May we should set up a support work-out mailing list between me > > and > > > > > your son, and then anyone who wants to join in. This is what I > > did > > > > > last night: > > > > > > > > > > treadmill, 5min warmup (@2.6), 5x (1min@3..., 1min@2...), 5min > > > > warmdown > > > > > bike, 5-10 minutes level1, manual > > > > > > > > > > weights - squats - 2 sets of 10 > > > > > - lunges - 2 sets of 10-20 (depending on how you feel) > > > > > - leg press - 2 sets of 20 (light weight) > > > > > > > > > > bike 5-10 minutes level1, manual > > > > > > > > > > Does not seem like a lot, but it totally wore my into the > > ground. > > > > I > > > > > went home breathing easy, it felt great after, not so much fun > > > > during. > > > > > Tell him that he can do it. Even start at home with > > > > stairs.....walks > > > > > in the park. I believe that he can do it. It's crucial, and I > > > > want to > > > > > be there with him, even if just on line. I know I'm pushy, but > > > > pushy > > > > > will get you through the pain. > > > > > > > > > > Let me know what you think. > > > > > Oh and about the arthritis, I have Osteoporosis, and brittle > > > > bones. i > > > > > feel it in my knees in the winter and my fingers. I load up on > > > > pain > > > > > killers when it keeps me from doing things. But it certainly > > does > > > > not > > > > > help anything does it. > > > > > My heart is with you guys. > > > > > > > > > > Natalia > > > > > > > > > > > <image.tiff> > > > > > > > > > > > > ------------------------------------------- > > > > The opinions and information exchanged on this list should IN NO > > WAY > > > > be construed as medical advice. > > > > > > > > PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR > > > > TREATMENTS. > > > > > > > > ------------------------------------ > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2003 Report Share Posted December 4, 2003 Hi , I am on magnesium and zinc. Plus the Tobra and Ceftazidime right now, plus Oxeze and Pulmacourt, ADEK's, Glyburide (Diabetes), Rhaditidine, some nasal sprays too. Plus a steroid for the month of the IV treatment. In my masks I do Colymycin. I'm sure there's more I just can't remember them all. And PEP Mask 2 times a day for 45 minutes. I know I'm a regular pharmacy/Clinic over here. Sorry i butchered all those names. what's GSH+?? The oral antibiotics I don't respond to anymore. Cypro has been the big loss since it used to work like magic for infections. And here's my sight: http://www.stores.ebay.ca/janespeedinpink There will be more stuff on soon for the holidays. Since I'm starting to feel alive again I will have more time to put some things up. thanks for the interest!! Natalia On Thursday, December 4, 2003, at 07:07 PM, Palazola wrote: > Natalia, > > Hope you get better soon. Are you doing any alternative therapy. > GSH+, Inositol, Crataegus? Are you taking your magnesium and zinc? > Also, send again the link to your shop, I really liked one of your > purses but I was at the office and could not get it. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2003 Report Share Posted December 4, 2003 Sheila, I don't understand. What made you mad? Gale > So it's all bullshit well fuck you > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2003 Report Share Posted December 4, 2003 Natalia, Please don't get scared off. You are a GREAT contibution to this list. We don't have that many people with cf on this list that are old enough to write. We are mostly parents, grand parents, aunts, etc. You are a treasured addition. Gale > > > So it's all bullshit well fuck you > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2003 Report Share Posted December 4, 2003 Sheila, That scared me a bit. I'm a bit confused?? Why are you s upset?? Natalia On Thursday, December 4, 2003, at 10:27 PM, danieleverettharris wrote: > Sheila, > > I don't understand. What made you mad? > > Gale > > > > So it's all bullshit well fuck you > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2003 Report Share Posted December 4, 2003 cheers!! Let's forget about it. But I do want to make sure that others are okay with my eBay sight being listed. All is fair and all must feel okay here. NAtalia On Thursday, December 4, 2003, at 10:57 PM, Sheilamunden@... wrote: > Natalia > > You made me want to post again - I really can not say how sorry I am > about > the misunderstanding it just goes to show how much I have got to learn > about CF > - please forgive me > > Lots of love > sheila > xxxxx > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 2003 Report Share Posted December 5, 2003 Hey . We need all of us here, Stay . We learn from our mistakes.not leave from them. All will be well in the morning . Start Monday off with a great big WELCOME.............. LOVE & HUGS, GRANDMOMBEV Re: Re: Osteoporosis Natalia You made me want to post again - I really can not say how sorry I am about the misunderstanding it just goes to show how much I have got to learn about CF - please forgive me Lots of love sheila xxxxx Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 6, 2003 Report Share Posted December 6, 2003 no it doesn't offend anyone at least not me. I am always looking for shopping alternatives and you are only talking about what you have had to do. And I hope that you do well. Don't go away Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2005 Report Share Posted June 10, 2005 Thanks Shirley, Let me know how you do. I've been on Fosamax for several years with good results. In fact I've gained some bone. The doctors don't seem to think it'll be a problem, but I will show this to my OS and endocrinologist and see what they think. I'll be having upper and lower too in about a year... ~Joanne > Joanne, I had osteoporosis, but am now osteopenic. My latest bone > density had decreased 3% in spine and 7% in hip. My OS told me to > stop the Fosamax because of the link (albeit only 7 cases of people > treated for osteoporosis) to osteoonecrosis of jaw. I had two > extractions about 2 years ago which healed ok. I'm not on any > biphospates until after the my surgery (June 23rd)- having upper and > lower jaw surgery plus additional work, too. When I'm finally healed > my endocrinologist wants me to go on Boniva (once a month dose), but > not until I get the OK from oral surgeon. > > I will posting after my surgery, so will let you know how I heal. > > Shirley Quote Link to comment Share on other sites More sharing options...
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