Guest guest Posted December 11, 2003 Report Share Posted December 11, 2003 Becky have you called into see if we can get that refill for a longer time (more refills)....i know they are all starting to do this with the expensive meds, even raising co-pays. It is terrible. We fight the every day. Carol & Melodye have the patience of Jobe.......bless you , i hope they get it out really soon. Do call & check LOVE & HUGS, grandmoMBEV Just have to vent!!! Every few months or so, BCBS gives us a bunch of trouble about refilling some of Ricky's meds. Specifically these are Zithromax and Sporanox. They are expensive and not normally used on a routine basis (for more than a week, in the case of ZIthro, more than a month, in the case of Sporanox) according to this insurance company so they require recertification by the dr. office every three months. What a pain in the BUTT this is!!! Every time Ricky goes off of Sporanox, he gets sick enough to where we rush to the clinic a couple of times in a week , he gets put on steroids, and he almost gets admitted, which is why he is on it indefinitely now. And of course, he should not be off of Zithro all of a sudden like that because its therapy is based on it building up in the bloodstream i.e. longterm usage. Right now we are going through this BS in the case of the Sporanox. We are lucky that I set the refill early. At this point he will have his last pill on Monday. If we do not get this refill by then he will rapidly deteriorate, which is especially bad right now because next Friday, we are headed to Disneyland!!! Ahhhhh!!!! Can you tell I am stressed out!? Our CF nurse coordinator is super quick about getting the authorization information sent in etc. But it seems to be the insurance company that drags their feet. I understand that this med is expensive but you'd think that once they were told once that this chlid has CF, they would figure out that he'd have it for the rest of his life and needs to keep having these medications. There, I think I am done stressing/venting!!! Becky , mom of Ricky 8 w/CF and Andy 5 no CF San , CA http://www.beckydavis.com ------------------------------------------- The opinions and information exchanged on this list should IN NO WAY be construed as medical advice. PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 12, 2003 Report Share Posted December 12, 2003 Uhhgggg! I go through this with Tobi and Pulmozyme every 3 months too! What a big pain in the butt, especially when it keeps you from getting the med on time. Our pharmacy will occasionally open the box of pulmo that they were going to give me and let me have a few days worth until the approval comes through, then they will just give me the rest of the box when it goes through. Will your pharmacy do this for you? You might want to ask. Just have to vent!!! Every few months or so, BCBS gives us a bunch of trouble about refilling some of Ricky's meds. Specifically these are Zithromax and Sporanox. They are expensive and not normally used on a routine basis (for more than a week, in the case of ZIthro, more than a month, in the case of Sporanox) according to this insurance company so they require recertification by the dr. office every three months. What a pain in the BUTT this is!!! Every time Ricky goes off of Sporanox, he gets sick enough to where we rush to the clinic a couple of times in a week , he gets put on steroids, and he almost gets admitted, which is why he is on it indefinitely now. And of course, he should not be off of Zithro all of a sudden like that because its therapy is based on it building up in the bloodstream i.e. longterm usage. Right now we are going through this BS in the case of the Sporanox. We are lucky that I set the refill early. At this point he will have his last pill on Monday. If we do not get this refill by then he will rapidly deteriorate, which is especially bad right now because next Friday, we are headed to Disneyland!!! Ahhhhh!!!! Can you tell I am stressed out!? Our CF nurse coordinator is super quick about getting the authorization information sent in etc. But it seems to be the insurance company that drags their feet. I understand that this med is expensive but you'd think that once they were told once that this chlid has CF, they would figure out that he'd have it for the rest of his life and needs to keep having these medications. There, I think I am done stressing/venting!!! Becky , mom of Ricky 8 w/CF and Andy 5 no CF San , CA http://www.beckydavis.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 14, 2003 Report Share Posted December 14, 2003 becky: hope you have a great time in disneyland. we run into the same problems with having to get super, super approval for drugs. its like the insurance company's are afraid they'll lose a days interest $ on their money if they approve a drug too soon. good luck, doug and kathy stanley Quote Link to comment Share on other sites More sharing options...
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