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RE: Just have to vent!!!

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Becky have you called into see if we can get that refill for a longer time

(more refills)....i know they are all starting to do this with the expensive

meds, even raising co-pays. It is terrible. We fight the every day. Carol &

Melodye have the patience of Jobe.......bless you , i hope they get it out

really soon. Do call & check

LOVE & HUGS, grandmoMBEV

Just have to vent!!!

Every few months or so, BCBS gives us a bunch of trouble about

refilling some of Ricky's meds. Specifically these are Zithromax

and Sporanox. They are expensive and not normally used on a

routine basis (for more than a week, in the case of ZIthro, more

than a month, in the case of Sporanox) according to this insurance

company so they require recertification by the dr. office every three

months.

What a pain in the BUTT this is!!! Every time Ricky goes off of

Sporanox, he gets sick enough to where we rush to the clinic a

couple of times in a week , he gets put on steroids, and he almost

gets admitted, which is why he is on it indefinitely now. And of

course, he should not be off of Zithro all of a sudden like that

because its therapy is based on it building up in the bloodstream

i.e. longterm usage.

Right now we are going through this BS in the case of the

Sporanox. We are lucky that I set the refill early. At this point he

will have his last pill on Monday. If we do not get this refill by then

he will rapidly deteriorate, which is especially bad right now

because next Friday, we are headed to Disneyland!!!

Ahhhhh!!!! Can you tell I am stressed out!?

Our CF nurse coordinator is super quick about getting the

authorization information sent in etc. But it seems to be the

insurance company that drags their feet. I understand that this

med is expensive but you'd think that once they were told once that

this chlid has CF, they would figure out that he'd have it for the rest

of his life and needs to keep having these medications.

There, I think I am done stressing/venting!!! :P

Becky , mom of Ricky 8 w/CF and Andy 5 no CF

San , CA

http://www.beckydavis.com

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The opinions and information exchanged on this list should IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS.

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Uhhgggg!

I go through this with Tobi and Pulmozyme every 3 months too! What a big pain

in the butt, especially when it keeps you from getting the med on time. Our

pharmacy will occasionally open the box of pulmo that they were going to give me

and let me have a few days worth until the approval comes through, then they

will just give me the rest of the box when it goes through. Will your pharmacy

do this for you? You might want to ask.

Just have to vent!!!

Every few months or so, BCBS gives us a bunch of trouble about

refilling some of Ricky's meds. Specifically these are Zithromax

and Sporanox. They are expensive and not normally used on a

routine basis (for more than a week, in the case of ZIthro, more

than a month, in the case of Sporanox) according to this insurance

company so they require recertification by the dr. office every three

months.

What a pain in the BUTT this is!!! Every time Ricky goes off of

Sporanox, he gets sick enough to where we rush to the clinic a

couple of times in a week , he gets put on steroids, and he almost

gets admitted, which is why he is on it indefinitely now. And of

course, he should not be off of Zithro all of a sudden like that

because its therapy is based on it building up in the bloodstream

i.e. longterm usage.

Right now we are going through this BS in the case of the

Sporanox. We are lucky that I set the refill early. At this point he

will have his last pill on Monday. If we do not get this refill by then

he will rapidly deteriorate, which is especially bad right now

because next Friday, we are headed to Disneyland!!!

Ahhhhh!!!! Can you tell I am stressed out!?

Our CF nurse coordinator is super quick about getting the

authorization information sent in etc. But it seems to be the

insurance company that drags their feet. I understand that this

med is expensive but you'd think that once they were told once that

this chlid has CF, they would figure out that he'd have it for the rest

of his life and needs to keep having these medications.

There, I think I am done stressing/venting!!! :P

Becky , mom of Ricky 8 w/CF and Andy 5 no CF

San , CA

http://www.beckydavis.com

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becky: hope you have a great time in disneyland. we run into the same

problems with having to get super, super approval for drugs. its like the

insurance company's are afraid they'll lose a days interest $ on their money if

they

approve a drug too soon.

good luck,

doug and kathy stanley

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