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Just have to vent!!!

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Every few months or so, BCBS gives us a bunch of trouble about

refilling some of Ricky's meds. Specifically these are Zithromax

and Sporanox. They are expensive and not normally used on a

routine basis (for more than a week, in the case of ZIthro, more

than a month, in the case of Sporanox) according to this insurance

company so they require recertification by the dr. office every three

months.

What a pain in the BUTT this is!!! Every time Ricky goes off of

Sporanox, he gets sick enough to where we rush to the clinic a

couple of times in a week , he gets put on steroids, and he almost

gets admitted, which is why he is on it indefinitely now. And of

course, he should not be off of Zithro all of a sudden like that

because its therapy is based on it building up in the bloodstream

i.e. longterm usage.

Right now we are going through this BS in the case of the

Sporanox. We are lucky that I set the refill early. At this point he

will have his last pill on Monday. If we do not get this refill by then

he will rapidly deteriorate, which is especially bad right now

because next Friday, we are headed to Disneyland!!!

Ahhhhh!!!! Can you tell I am stressed out!?

Our CF nurse coordinator is super quick about getting the

authorization information sent in etc. But it seems to be the

insurance company that drags their feet. I understand that this

med is expensive but you'd think that once they were told once that

this chlid has CF, they would figure out that he'd have it for the rest

of his life and needs to keep having these medications.

There, I think I am done stressing/venting!!! :P

Becky , mom of Ricky 8 w/CF and Andy 5 no CF

San , CA

http://www.beckydavis.com

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