Guest guest Posted December 11, 2003 Report Share Posted December 11, 2003 Every few months or so, BCBS gives us a bunch of trouble about refilling some of Ricky's meds. Specifically these are Zithromax and Sporanox. They are expensive and not normally used on a routine basis (for more than a week, in the case of ZIthro, more than a month, in the case of Sporanox) according to this insurance company so they require recertification by the dr. office every three months. What a pain in the BUTT this is!!! Every time Ricky goes off of Sporanox, he gets sick enough to where we rush to the clinic a couple of times in a week , he gets put on steroids, and he almost gets admitted, which is why he is on it indefinitely now. And of course, he should not be off of Zithro all of a sudden like that because its therapy is based on it building up in the bloodstream i.e. longterm usage. Right now we are going through this BS in the case of the Sporanox. We are lucky that I set the refill early. At this point he will have his last pill on Monday. If we do not get this refill by then he will rapidly deteriorate, which is especially bad right now because next Friday, we are headed to Disneyland!!! Ahhhhh!!!! Can you tell I am stressed out!? Our CF nurse coordinator is super quick about getting the authorization information sent in etc. But it seems to be the insurance company that drags their feet. I understand that this med is expensive but you'd think that once they were told once that this chlid has CF, they would figure out that he'd have it for the rest of his life and needs to keep having these medications. There, I think I am done stressing/venting!!! Becky , mom of Ricky 8 w/CF and Andy 5 no CF San , CA http://www.beckydavis.com Quote Link to comment Share on other sites More sharing options...
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