Re: to all parents with older children with cf or with cf themselves

[Guest guest]

Hi: The only way I know to avoid " looking back " and saying " I wish I had

done things different, " is not to have children! As a friend likes to

say, " Having children is a life sentence. " My wife who taught dyslexic

and special education children for thirty five years humorously says she

would have gotten less for murder. It's how you want to address

reality. Like everyone else, will remember the good and the bad,

and hopefully learn to focus on the good. Hal

to all parents with older children with cf or with

cf themselves

Hi all Im curious about life growing up with cystic fibrosis and how

you dealt with. My concern is that When I grow older as a parent and

grows up. I don't want to look back and say I wish I had done

things different,like worrying about every little thing, about

resticting activities that may seem good at the time but then you

look back and say wow did I really say No to that. I want to

grow up and say I lived a good life,I want him to remember the good

times. Well I'm rambling anyway I would love to hear from all of you

and your experiences growing up or your children growing up and how

you dealt with life and its everyday issues. Thanks....

, mommy of 5 years old w/cf/adhd and 2 years old

no cf

-------------------------------------------

The opinions and information exchanged on this list should IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

TREATMENTS.

------------------------------------

_____

[Guest guest]

Hal,

What a great response!!! I am going to call my daughter and read

this to her. She has a two year old with CF.

Gale

Grandma to Abby (2 wcf and oh so cute!)

> Hi: The only way I know to avoid " looking back " and saying " I wish

I had

> done things different, " is not to have children! As a friend likes

to

> say, " Having children is a life sentence. " My wife who taught

dyslexic

> and special education children for thirty five years humorously

says she

> would have gotten less for murder. It's how you want to address

> reality. Like everyone else, will remember the good and the

bad,

> and hopefully learn to focus on the good. Hal

>

> to all parents with older children with cf or

with

> cf themselves

>

> Hi all Im curious about life growing up with cystic fibrosis and

how

> you dealt with. My concern is that When I grow older as a parent

and

> grows up. I don't want to look back and say I wish I had

done

> things different,like worrying about every little thing, about

> resticting activities that may seem good at the time but then you

> look back and say wow did I really say No to that. I want

to

> grow up and say I lived a good life,I want him to remember the good

> times. Well I'm rambling anyway I would love to hear from all of

you

> and your experiences growing up or your children growing up and how

> you dealt with life and its everyday issues. Thanks....

>

> , mommy of 5 years old w/cf/adhd and 2 years old

> no cf

>

>

>

>

> -------------------------------------------

> The opinions and information exchanged on this list should IN NO

WAY

> be construed as medical advice.

>

> PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

> TREATMENTS.

>

> ------------------------------------

>

>

>

> _____

>

>

[Guest guest]

Find acure,

Just a quick note to tell you the perspective of my 19 yr old son on

growing up with cf. First of all cf is always used in the lower case when

we refer to this disease, my son has always said he has cf he is NOT cf.

When he was diagnosed at 7 years old, our wonderful cf doc told us to never

treat our son with cf and different then our other child, that may well have

been the best piece of advice we have ever received. He has done eveything

he has ever wanted to and no limitations have ever been put on him. He

looks at everyday as a gift and enjoys each day to the fullest. He is now

in college and 1800 miles away from home, and yes it was hard letting him

go away but what right do I have to keep him with me and not allow him to

become the full human being that he is meant to be. We feel as parents that

we have impressed on him the need to take of care of himself and to always

remember that the decision he makes today can impact his health tomorrow>

We trust that he will do his meds becasuse he knows what it feels like when

he skips his treatments. I know that we as his parents have instilled in

him the importance of putting his health first before anything, but we have

never allowed him to use this illness as a crutch or excuse. I know that it

is hard to let go and to turn their care over to them but we must trust in

the good Lord that he will watch over our children and be with them always.

I wish you all the best with your son, enjoy him because they grow up so

fast. You will look back and in a flash they are young adults not our

little boys any longe.r

>

>Reply-To: cfparents

>To: cfparents

>Subject: to all parents with older children with cf or with cf

>themselves

>Date: Thu, 18 Dec 2003 15:23:38 -0000

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>Hi all Im curious about life growing up with cystic fibrosis and how

>you dealt with. My concern is that When I grow older as a parent and

> grows up. I don't want to look back and say I wish I had done

>things different,like worrying about every little thing, about

>resticting activities that may seem good at the time but then you

>look back and say wow did I really say No to that. I want to

>grow up and say I lived a good life,I want him to remember the good

>times. Well I'm rambling anyway I would love to hear from all of you

>and your experiences growing up or your children growing up and how

>you dealt with life and its everyday issues. Thanks....

>

>, mommy of 5 years old w/cf/adhd and 2 years old

>no cf

>

>

>

>-------------------------------------------

>The opinions and information exchanged on this list should IN NO WAY

>be construed as medical advice.

>

>PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

>TREATMENTS.

>

>------------------------------------

>

>

>