RE: Question for everyone...

[Guest guest]

Natalia,

This does not sound good! You should call your clinic right away

(before your next dose of Zithromax.) You may be having an allergic

reaction to the medicine.

My five year old son with cf takes Zithromax three times a week as a

maintanence/prophylactic drug. He has had no problems with it, but

has had bad reactions to other meds before (Cipro gave him headaches

so bad he curled up into a ball for hours, chest pains also.)

Please contact your cf clinic right away.

~

> Are any of your kids on Zithromax? I started it a couple of days

ago,

> and I am having severe problems breathing. > Natalia

[Guest guest]

-

I am planning on calling him in the morning. It may be an allergic

reaction. I have not had this bad a cough in my life. It's awful.

Thanks for writing in with that information.

Natalia

On Wednesday, December 17, 2003, at 11:48 PM, ma8169@... wrote:

> Natalia,

>

> This does not sound good!  You should call your clinic right away

> (before your next dose of Zithromax.)  You may be having an allergic

> reaction to the medicine.

> My five year old son with cf takes Zithromax three times a week as a

> maintanence/prophylactic drug.  He has had no problems with it, but

> has had bad reactions to other meds before (Cipro gave him headaches

> so bad he curled up into a ball for hours, chest pains also.)

> Please contact your cf clinic right away.

>

> ~

>

>

> > Are any of your kids on Zithromax?  I started it a couple of days

> ago,

> > and I am having severe problems breathing. > Natalia

>

>

>

> -------------------------------------------

> The opinions and information exchanged on this list should IN NO WAY

> be construed as medical advice.

>

> PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

> TREATMENTS.

>

> ------------------------------------

>

>

>

<image.tiff>

>

>

<image.tiff>

>

>

[Guest guest]

Hi: This " elderly kid " is on Zithromax and I have been using it as a

prophylactic antibiotic for about a year. I take it three times a week.

The number of my more serious infections has declined since this

regimen. As far as I know, most doctors at the Yale clinic use it as it

has been found to decrease inflammation of the lungs in CF patients.

Please discuss your concerns with your CF doctor if you think you are

having an allergic reaction. I believe the " warning " could be a

misunderstanding about CF and Zithromax, and you can contact the

manufacturer (check on the net) about it. Hal

Question for everyone...

Are any of your kids on Zithromax? I started it a couple of days ago,

and I am having severe problems breathing. And I was getting better

after 3 weeks on IV. I am still on IV for another week, and am feeling

worse then ever. I cannot cough up anything, and have this dry, cough,

almost a whistle. i've never had it before, and it hurts. So I went

on the net and read about it, and it's NOT recommended for people with

CF!! So I am confused why my doctor would give that to me. So I am

going to call him tomorrow, but I am confused.

I feel like I am going to split something in my throat or pop a lung

when I cough. i always had a very active cough, so that I could get

rid of the stuff easily. This is frustrating and painful.

Any ideas out there?

Natalia

-------------------------------------------

The opinions and information exchanged on this list should IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

TREATMENTS.

------------------------------------

_____

[Guest guest]

In a message dated 12/17/2003 11:50:37 PM Eastern Standard Time,

ma8169@... writes:

> My five year old son with cf takes Zithromax three times a week as a

> maintanence/prophylactic drug. He has had no problems with it, but

> has had bad reactions to other meds before (Cipro gave him headaches

> so bad he curled up into a ball for hours, chest pains also.)

I had same experience with (13) on Zith - it worked great- Cipro -

pains!

Rosemary in NY with 3 children (13, 11 and 7)

with CF. I have a dog named TOBI and have

coined the phrase " BREATHE DAMMIT "

[Guest guest]

My son is allwegic to zithromax so be careful that you are not having an

alllergic reaction

>

>Reply-To: cfparents

>To: cfparents

>Subject: Question for everyone...

>Date: Wed, 17 Dec 2003 23:44:55 -0500

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>

>Are any of your kids on Zithromax? I started it a couple of days ago,

>and I am having severe problems breathing. And I was getting better

>after 3 weeks on IV. I am still on IV for another week, and am feeling

>worse then ever. I cannot cough up anything, and have this dry, cough,

>almost a whistle. i've never had it before, and it hurts. So I went

>on the net and read about it, and it's NOT recommended for people with

>CF!! So I am confused why my doctor would give that to me. So I am

>going to call him tomorrow, but I am confused.

>I feel like I am going to split something in my throat or pop a lung

>when I cough. i always had a very active cough, so that I could get

>rid of the stuff easily. This is frustrating and painful.

>Any ideas out there?

>

>Natalia

>

>

>-------------------------------------------

>The opinions and information exchanged on this list should IN NO WAY

>be construed as medical advice.

>

>PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

>TREATMENTS.

>

>------------------------------------

>

>

>