RE: to all parents with older children with cf or wit h cf themselves

December 18, 2003

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Wouldn't it be nice if we all had crystal balls! Raising a child whether or

not they have a handicap or an illness or just plain healthy is a trial &

error prospective. No matter what, there will always be things you wished

you could or should have done different. We try to live each day to the

fullest. We let our kids, including the one with CF, do and try anything

they wanted to unless it would put their life in danger. (ie:skydiving,

etc.) There are no limitations, only those they put on themselves.

Not all times will be good because that is life. Just let them be kids and

all will be good. CF is only a small stumbling block.

We found out our daughter had CF when she was s age. She is now

18years old and yesterday was her last day of High School and she will start

college classes January 12th. It is hard to see what lies ahead when they

are so little, but looking back at my daughters years, it has flown by and

besides the medicines and the treatments her life was pretty

normal.(whatever normal is). Good Luck with your little ones. I am sure

they will have a wonderful life given the fact that you are concerned.

Tina W., mother of 26, nocf & , 18, wcf

to all parents with older children with cf or with cf

themselves

Hi all Im curious about life growing up with cystic fibrosis and how

you dealt with. My concern is that When I grow older as a parent and

grows up. I don't want to look back and say I wish I had done

things different,like worrying about every little thing, about

resticting activities that may seem good at the time but then you

look back and say wow did I really say No to that. I want to

grow up and say I lived a good life,I want him to remember the good

times. Well I'm rambling anyway I would love to hear from all of you

and your experiences growing up or your children growing up and how

you dealt with life and its everyday issues. Thanks....

, mommy of 5 years old w/cf/adhd and 2 years old

no cf

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The opinions and information exchanged on this list should IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS.

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