Re: depression/pain/meds/getting on with life

[Guest guest]

See, Liz, that is exactly what is so great about this

group. I tend to think that I am probably the only

one who lets these things get me upset. Then you guys

come on and make me feel " normal " again! Thanks!!

I've never had a flare as bad as my first episode, but

my ears do flare on a regular basis. At least the

chest is settled down and I am thankful for that. You

are right about walking also. I usually have to force

myself to do it....thinking that I only have a short

supply of energy and need to use it on the house,

kids, etc. Actually if I do get out and take just a

short walk it gives me more energy....plus helping

with depression.

I am on 5 mg too and if I never get lower I am not

going to worry about it. I'd love to get lower, but

just don't know if that's going to happen or not. I'm

just thankful that I am below 7 as that is usually my

breaking point.

Liz, you always write the most interesting letters.

Don't ever stop!

Love, squeek

--- Cobb wrote:

> Squeek, I think you summed things up pretty well.

> When I am feeling well I think - that's it! I have

> got

> it licked! Then I start getting twinges - I can't

> even

> say flares, since I have been diagnosed and been on

> regular medication, I have never had a really bad

> one,

> however my body thinks about it! Then I immediately

> feel negative, down etc. Actually I do find that

> walking does help with mild depression and pain.

> Right now I haven't done anything for a few days

> because of this stupid muscle but our talks over the

> last few days may inspire me to make an effort.

>

> I also agree with Marilyn and I do think this group

> is

> SO helpful. I don't want to bother people close to

> me

> all the time - but we all understand what is

> involved,

> and know that there are others going through the

> same

> stuff.

>

> I have gone back up to five mg of pred. My doc said

> lots of people need a low maintenance dose and not

> to

> worry about it, generally I don't and I hope you

> guys

> don't to much, either. Don't get down on yourselves

> either, IT IS NOT YOUR FAULT that you are sick.

>

> Have a good day, love Liz

>

> __________________________________________________

>

[Guest guest]

Helllo everyone, I am happy to read that I am not the only one with problems. I am really having trouble with the pred. at least I think that is what it is. I am currently trying to drop but everytime i do i flare up again. My ears are about to drive me crazy. Any suggestions to help me trough the insanity. Just when I am about to feel normal, this crap creeps up on my again. As for walking, I wish i could but my feet are swollen and red on the bottems, and no one knows what that is from...I am starting water aerobics tom. I think that will be good for me. But I am thankful that I am alot bette than I was 2 months ago, I just have these extreme highs and lows. I am guessing it is from the pred. who knows.

thanks for letting me vent. from Louisisana

>From: Sharon King

>Reply-To: Rpolychondritis >To: Rpolychondritis >Subject: Re: depression/pain/meds/getting on with life >Date: Sun, 4 Aug 2002 13:44:28 -0700 (PDT) > >See, Liz, that is exactly what is so great about this >group. I tend to think that I am probably the only >one who lets these things get me upset. Then you guys >come on and make me feel "normal" again! Thanks!! > >I've never had a flare as bad as my first episode, but >my ears do flare on a regular basis. At least the >chest is settled down and I am thankful for that. You >are right about walking also. I usually have to force >myself to do it....thinking that I only have a short >supply of energy and need to use it on the house, >kids, etc. Actually if I do get out and take just a >short walk it gives me more energy....plus helping >with depression. > >I am on 5 mg too and if I never get lower I am not >going to worry about it. I'd love to get lower, but >just don't know if that's going to happen or not. I'm >just thankful that I am below 7 as that is usually my >breaking point. > >Liz, you always write the most interesting letters. >Don't ever stop! > >Love, squeek >--- Cobb wrote: > > Squeek, I think you summed things up pretty well. > > When I am feeling well I think - that's it! I have > > got > > it licked! Then I start getting twinges - I can't > > even > > say flares, since I have been diagnosed and been on > > regular medication, I have never had a really bad > > one, > > however my body thinks about it! Then I immediately > > feel negative, down etc. Actually I do find that > > walking does help with mild depression and pain. > > Right now I haven't done anything for a few days > > because of this stupid muscle but our talks over the > > last few days may inspire me to make an effort. > > > > I also agree with Marilyn and I do think this group > > is > > SO helpful. I don't want to bother people close to > > me > > all the time - but we all understand what is > > involved, > > and know that there are others going through the > > same > > stuff. > > > > I have gone back up to five mg of pred. My doc said > > lots of people need a low maintenance dose and not > > to > > worry about it, generally I don't and I hope you > > guys > > don't to much, either. Don't get down on yourselves > > either, IT IS NOT YOUR FAULT that you are sick. > > > > Have a good day, love Liz > > > > __________________________________________________ > >

[Guest guest]

Hi ,

It could be the pred, but it could also be just

dealing with this cRaP! It is so frustrating to never

know from day to day how you are going to feel, what

your ears are going to pull, etc. Suggestions to help

you through.....I wish I had a really good one for you

but I don't. I just try to not think of the worst,

but to remember that tomorrow can be completely

different. One day at a time I guess.

Hope you get to feeling better really soon.

Love, squeek

--- Christian wrote:

<HR>

<html>

<div style='background-color:'><DIV>

<P>Helllo everyone, I am happy to read that I am not

the only one with problems. & nbsp; I am really having

trouble with the pred. & nbsp; at least I think that is

what it is. & nbsp; I am currently trying to drop but

everytime i & nbsp;do i flare up again. & nbsp; My ears

are about to drive me crazy. & nbsp; & nbsp;Any

suggestions to help me trough the insanity. & nbsp; Just

when I am about to feel normal, this crap creeps up on

my again. & nbsp; As for walking, I wish i could but my

feet are swollen and red on the bottems, and no

one & nbsp;knows what that is from...I am starting water

aerobics tom. & nbsp; I think that will be good for

me. & nbsp; But I am thankful that I am & nbsp;alot bette

than I was 2 months ago, I just have these extreme

highs and lows. & nbsp; I am guessing it is from the

pred. & nbsp; who knows.</P>

<P>thanks for letting me vent. & nbsp; from

Louisisana & nbsp; & nbsp; & nbsp;<BR></P></DIV>

<DIV></DIV>

<DIV></DIV> & gt;

<DIV></DIV> & gt;Reply-To:

Rpolychondritis

<DIV></DIV> & gt;To: Rpolychondritis

<DIV></DIV> & gt;Subject: Re:

depression/pain/meds/getting on with life

<DIV></DIV> & gt;Date: Sun, 4 Aug 2002 13:44:28 -0700

(PDT)

<DIV></DIV> & gt;

<DIV></DIV> & gt;See, Liz, that is exactly what is so

great about this

<DIV></DIV> & gt;group. I tend to think that I am

probably the only

<DIV></DIV> & gt;one who lets these things get me upset.

Then you guys

<DIV></DIV> & gt;come on and make me feel " normal "

again! Thanks!!

<DIV></DIV> & gt;

<DIV></DIV> & gt;I've never had a flare as bad as my

first episode, but

<DIV></DIV> & gt;my ears do flare on a regular basis. At

least the

<DIV></DIV> & gt;chest is settled down and I am thankful

for that. You

<DIV></DIV> & gt;are right about walking also. I usually

have to force

<DIV></DIV> & gt;myself to do it....thinking that I only

have a short

<DIV></DIV> & gt;supply of energy and need to use it on

the house,

<DIV></DIV> & gt;kids, etc. Actually if I do get out and

take just a

<DIV></DIV> & gt;short walk it gives me more

energy....plus helping

<DIV></DIV> & gt;with depression.

<DIV></DIV> & gt;

<DIV></DIV> & gt;I am on 5 mg too and if I never get

lower I am not

<DIV></DIV> & gt;going to worry about it. I'd love to

get lower, but

<DIV></DIV> & gt;just don't know if that's going to

happen or not. I'm

<DIV></DIV> & gt;just thankful that I am below 7 as that

is usually my

<DIV></DIV> & gt;breaking point.

<DIV></DIV> & gt;

<DIV></DIV> & gt;Liz, you always write the most

interesting letters.

<DIV></DIV> & gt;Don't ever stop!

<DIV></DIV> & gt;

<DIV></DIV> & gt;Love, squeek

<DIV></DIV> & gt;--- Cobb

wrote:

<DIV></DIV> & gt; & gt; Squeek, I think you summed things

up pretty well.

<DIV></DIV> & gt; & gt; When I am feeling well I think -

that's it! I have

<DIV></DIV> & gt; & gt; got

<DIV></DIV> & gt; & gt; it licked! Then I start getting

twinges - I can't

<DIV></DIV> & gt; & gt; even

<DIV></DIV> & gt; & gt; say flares, since I have been

diagnosed and been on

<DIV></DIV> & gt; & gt; regular medication, I have never

had a really bad

<DIV></DIV> & gt; & gt; one,

<DIV></DIV> & gt; & gt; however my body thinks about it!

Then I immediately

<DIV></DIV> & gt; & gt; feel negative, down etc. Actually

I do find that

<DIV></DIV> & gt; & gt; walking does help with mild

depression and pain.

<DIV></DIV> & gt; & gt; Right now I haven't done anything

for a few days

<DIV></DIV> & gt; & gt; because of this stupid muscle but

our talks over the

<DIV></DIV> & gt; & gt; last few days may inspire me to

make an effort.

<DIV></DIV> & gt; & gt;

<DIV></DIV> & gt; & gt; I also agree with Marilyn and I

do think this group

<DIV></DIV> & gt; & gt; is

<DIV></DIV> & gt; & gt; SO helpful. I don't want to

bother people close to

<DIV></DIV> & gt; & gt; me

<DIV></DIV> & gt; & gt; all the time - but we all

understand what is

<DIV></DIV> & gt; & gt; involved,

<DIV></DIV> & gt; & gt; and know that there are others

going through the

<DIV></DIV> & gt; & gt; same

<DIV></DIV> & gt; & gt; stuff.

<DIV></DIV> & gt; & gt;

<DIV></DIV> & gt; & gt; I have gone back up to five mg of

pred. My doc said

<DIV></DIV> & gt; & gt; lots of people need a low

maintenance dose and not

<DIV></DIV> & gt; & gt; to

<DIV></DIV> & gt; & gt; worry about it, generally I don't

and I hope you

<DIV></DIV> & gt; & gt; guys

<DIV></DIV> & gt; & gt; don't to much, either. Don't get

down on yourselves

<DIV></DIV> & gt; & gt; either, IT IS NOT YOUR FAULT that

you are sick.

<DIV></DIV> & gt; & gt;

<DIV></DIV> & gt; & gt; Have a good day, love Liz

<DIV></DIV> & gt; & gt;

<DIV></DIV> & gt; & gt;

__________________________________________________

<DIV></DIV> & gt; & gt;