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RE: Cf Downer:(:(

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Patty,

Hang in there! Of course everything will be fine. You follow the

doctors directions and do what you think is right. That way, in the

end you can sleep knowing that you did everything you could possible

do, and that should be satisfying enough. There are certain things

we can't control, but gosh darnit, we sure as heck can give all we

have. Thats all anybody would ask for. Just remember that there are

no guarantees...for anybody, healthy or ill. Parents across the

world loose children everyday so be grateful for what you have, for

the time that you have it! You are going to be ok!

Now, please try and have a Happy Holiday!

e, mom to Ian 13 nocf and 10 wcf

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Patty,

I think that we all have our " down " moments. I have them more often

when I get tired. Toni (my daughter, Abby's mom) gets real depressed

when ever Abby has a bad day. The pain is just too great. I keep

hoping for a cure in time to help everyone on this list!

Love,

Gale

Grandma to Abby (2yo wcf)

> Went on cf memorial link, BAD choice.Now very depressed.(why do i

do

> that to myself?)Need some kind of support group in area, or

somebody

> with some answers.I need SOME reassurance that my son is going to

be

> ok if i just do everything the docs tell me to do, cant seem to

find

> anybody willing to sugarcoat whats going on.Sometimes i feel really

> alone, thank God i can at least talk to all you, or i'd pull my

hair

> out(thanks by the way), but sometimes i need more.I hope i can take

> my mind off this,i dread another sleepless night worrying about the

> challenges in my life i face that i have no control over(control,

ME,

> the QUEEN of needing control!)Its so strange that my " black and

> white, NO gray " personality generally serves me well; in this

> circumstance it hinders happiness and generally tends to cause me

> grief and anxiety.Sorry to be such a downer tonight; i rest better

> knowing that if I hurt so bad inside tonight maybe its so ten fold

> can smile tomorrow!

>

> Sad day in FLA,

> Patty, mom to Tyler 8wcf and 2 little ones wocf

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Patty,

I've had those days sometimes too. Ya know what gets me out of them?

Thinking how strong I need to be for my son. I don't want him to be

afraid, so I have to be strong for him. You must do the same. That is

why were are all here, here in cyber space, feeling the same way that

you do, we are here to help each other.

Hope this helps.

Cheryl, mom to 3 boys, Zac 7 yrs. wocf, Jake 3 yrs. wocf, Matty 22 mos.

wcf

Cf Downer:(:(

Went on cf memorial link, BAD choice.Now very depressed.(why do i do

that to myself?)Need some kind of support group in area, or somebody

with some answers.I need SOME reassurance that my son is going to be

ok if i just do everything the docs tell me to do, cant seem to find

anybody willing to sugarcoat whats going on.Sometimes i feel really

alone, thank God i can at least talk to all you, or i'd pull my hair

out(thanks by the way), but sometimes i need more.I hope i can take

my mind off this,i dread another sleepless night worrying about the

challenges in my life i face that i have no control over(control, ME,

the QUEEN of needing control!)Its so strange that my " black and

white, NO gray " personality generally serves me well; in this

circumstance it hinders happiness and generally tends to cause me

grief and anxiety.Sorry to be such a downer tonight; i rest better

knowing that if I hurt so bad inside tonight maybe its so ten fold

can smile tomorrow!

Sad day in FLA,

Patty, mom to Tyler 8wcf and 2 little ones wocf

-------------------------------------------

The opinions and information exchanged on this list should IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

TREATMENTS.

------------------------------------

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Patty ,

This is a perfect place & all the lists. They are folks who want to help &

those who need the comfort of others as well. You can always call me ,

anytime. It is toll free. i speak with many folks each day. & as was

yesterday , visited by so many . There were 3 families by yesterday. i love

it . several folks just need to talk.. We all do that from time to time.

YES, there is GREAT hope. I KNOW many researchers are working on so many

different ways to help----cure & just care for us & our children with CF.

Look at the many folks you have heard from over 30 in here.....You also

hear from folks over 40-----50----60----70 on the lists too. Heavens knows

how many more

we're NOT hearing from. We(our children:):) will be better off each day. So

put your pretty smile back up & let the holidays

begin.........................For your wee one BUT also for YOU, & all your

family . You all deserve that

LOVE & HUGS, GrandmomBEV

1---anytime

Cf Downer:(:(

Went on cf memorial link, BAD choice.Now very depressed.(why do i do

that to myself?)Need some kind of support group in area, or somebody

with some answers.I need SOME reassurance that my son is going to be

ok if i just do everything the docs tell me to do, cant seem to find

anybody willing to sugarcoat whats going on.Sometimes i feel really

alone, thank God i can at least talk to all you, or i'd pull my hair

out(thanks by the way), but sometimes i need more.I hope i can take

my mind off this,i dread another sleepless night worrying about the

challenges in my life i face that i have no control over(control, ME,

the QUEEN of needing control!)Its so strange that my " black and

white, NO gray " personality generally serves me well; in this

circumstance it hinders happiness and generally tends to cause me

grief and anxiety.Sorry to be such a downer tonight; i rest better

knowing that if I hurt so bad inside tonight maybe its so ten fold

can smile tomorrow!

Sad day in FLA,

Patty, mom to Tyler 8wcf and 2 little ones wocf

-------------------------------------------

The opinions and information exchanged on this list should IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS.

------------------------------------

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Hi! ,

It is important that we continue to remember those who are less fortunate

than us that have lost the fight with CF. But we do not need to visit the

memorial link to do that! This is the season for us to be Thankful!

Thankful for our wonderful children who give us great hugs and kisses.

Thankful for our family who supports us. Thankful for the good doctors and

nurses who take care of us and our children. And yes, thankful for the bad

doctors and nurses because they give us a measurement so we know when we

have good ones. Thank you to the scientists that are diligently working

every day to find a cure for OUR disease. Thankful for the great

medications and treatments that are available to our elders and our

children. Thankful for the insurance we have to help pay for these things

or to the many many programs that help in one way or another to make our

lives a little easier. AND LAST BUT CERTAINLY NOT LEAST, THANK YOU TO ALL

THE WONDERFUL PEOPLE WHO ARE HERE FOR SUPPORT EACH AND EVERY DAY.

Tina W., mother of , 26yo nocf & , 18yo wcf

Cf Downer:(:(

Went on cf memorial link, BAD choice.Now very depressed.(why do i do

that to myself?)Need some kind of support group in area, or somebody

with some answers.I need SOME reassurance that my son is going to be

ok if i just do everything the docs tell me to do, cant seem to find

anybody willing to sugarcoat whats going on.Sometimes i feel really

alone, thank God i can at least talk to all you, or i'd pull my hair

out(thanks by the way), but sometimes i need more.I hope i can take

my mind off this,i dread another sleepless night worrying about the

challenges in my life i face that i have no control over(control, ME,

the QUEEN of needing control!)Its so strange that my " black and

white, NO gray " personality generally serves me well; in this

circumstance it hinders happiness and generally tends to cause me

grief and anxiety.Sorry to be such a downer tonight; i rest better

knowing that if I hurt so bad inside tonight maybe its so ten fold

can smile tomorrow!

Sad day in FLA,

Patty, mom to Tyler 8wcf and 2 little ones wocf

-------------------------------------------

The opinions and information exchanged on this list should IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS.

------------------------------------

_____

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