Guest guest Posted December 22, 2003 Report Share Posted December 22, 2003 Patty, Hang in there! Of course everything will be fine. You follow the doctors directions and do what you think is right. That way, in the end you can sleep knowing that you did everything you could possible do, and that should be satisfying enough. There are certain things we can't control, but gosh darnit, we sure as heck can give all we have. Thats all anybody would ask for. Just remember that there are no guarantees...for anybody, healthy or ill. Parents across the world loose children everyday so be grateful for what you have, for the time that you have it! You are going to be ok! Now, please try and have a Happy Holiday! e, mom to Ian 13 nocf and 10 wcf Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 22, 2003 Report Share Posted December 22, 2003 Patty, I think that we all have our " down " moments. I have them more often when I get tired. Toni (my daughter, Abby's mom) gets real depressed when ever Abby has a bad day. The pain is just too great. I keep hoping for a cure in time to help everyone on this list! Love, Gale Grandma to Abby (2yo wcf) > Went on cf memorial link, BAD choice.Now very depressed.(why do i do > that to myself?)Need some kind of support group in area, or somebody > with some answers.I need SOME reassurance that my son is going to be > ok if i just do everything the docs tell me to do, cant seem to find > anybody willing to sugarcoat whats going on.Sometimes i feel really > alone, thank God i can at least talk to all you, or i'd pull my hair > out(thanks by the way), but sometimes i need more.I hope i can take > my mind off this,i dread another sleepless night worrying about the > challenges in my life i face that i have no control over(control, ME, > the QUEEN of needing control!)Its so strange that my " black and > white, NO gray " personality generally serves me well; in this > circumstance it hinders happiness and generally tends to cause me > grief and anxiety.Sorry to be such a downer tonight; i rest better > knowing that if I hurt so bad inside tonight maybe its so ten fold > can smile tomorrow! > > Sad day in FLA, > Patty, mom to Tyler 8wcf and 2 little ones wocf Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 22, 2003 Report Share Posted December 22, 2003 Patty, I've had those days sometimes too. Ya know what gets me out of them? Thinking how strong I need to be for my son. I don't want him to be afraid, so I have to be strong for him. You must do the same. That is why were are all here, here in cyber space, feeling the same way that you do, we are here to help each other. Hope this helps. Cheryl, mom to 3 boys, Zac 7 yrs. wocf, Jake 3 yrs. wocf, Matty 22 mos. wcf Cf Downer:( Went on cf memorial link, BAD choice.Now very depressed.(why do i do that to myself?)Need some kind of support group in area, or somebody with some answers.I need SOME reassurance that my son is going to be ok if i just do everything the docs tell me to do, cant seem to find anybody willing to sugarcoat whats going on.Sometimes i feel really alone, thank God i can at least talk to all you, or i'd pull my hair out(thanks by the way), but sometimes i need more.I hope i can take my mind off this,i dread another sleepless night worrying about the challenges in my life i face that i have no control over(control, ME, the QUEEN of needing control!)Its so strange that my " black and white, NO gray " personality generally serves me well; in this circumstance it hinders happiness and generally tends to cause me grief and anxiety.Sorry to be such a downer tonight; i rest better knowing that if I hurt so bad inside tonight maybe its so ten fold can smile tomorrow! Sad day in FLA, Patty, mom to Tyler 8wcf and 2 little ones wocf ------------------------------------------- The opinions and information exchanged on this list should IN NO WAY be construed as medical advice. PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 23, 2003 Report Share Posted December 23, 2003 Patty , This is a perfect place & all the lists. They are folks who want to help & those who need the comfort of others as well. You can always call me , anytime. It is toll free. i speak with many folks each day. & as was yesterday , visited by so many . There were 3 families by yesterday. i love it . several folks just need to talk.. We all do that from time to time. YES, there is GREAT hope. I KNOW many researchers are working on so many different ways to help----cure & just care for us & our children with CF. Look at the many folks you have heard from over 30 in here.....You also hear from folks over 40-----50----60----70 on the lists too. Heavens knows how many more we're NOT hearing from. We(our children:) will be better off each day. So put your pretty smile back up & let the holidays begin.........................For your wee one BUT also for YOU, & all your family . You all deserve that LOVE & HUGS, GrandmomBEV 1---anytime Cf Downer:( Went on cf memorial link, BAD choice.Now very depressed.(why do i do that to myself?)Need some kind of support group in area, or somebody with some answers.I need SOME reassurance that my son is going to be ok if i just do everything the docs tell me to do, cant seem to find anybody willing to sugarcoat whats going on.Sometimes i feel really alone, thank God i can at least talk to all you, or i'd pull my hair out(thanks by the way), but sometimes i need more.I hope i can take my mind off this,i dread another sleepless night worrying about the challenges in my life i face that i have no control over(control, ME, the QUEEN of needing control!)Its so strange that my " black and white, NO gray " personality generally serves me well; in this circumstance it hinders happiness and generally tends to cause me grief and anxiety.Sorry to be such a downer tonight; i rest better knowing that if I hurt so bad inside tonight maybe its so ten fold can smile tomorrow! Sad day in FLA, Patty, mom to Tyler 8wcf and 2 little ones wocf ------------------------------------------- The opinions and information exchanged on this list should IN NO WAY be construed as medical advice. PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 23, 2003 Report Share Posted December 23, 2003 Hi! , It is important that we continue to remember those who are less fortunate than us that have lost the fight with CF. But we do not need to visit the memorial link to do that! This is the season for us to be Thankful! Thankful for our wonderful children who give us great hugs and kisses. Thankful for our family who supports us. Thankful for the good doctors and nurses who take care of us and our children. And yes, thankful for the bad doctors and nurses because they give us a measurement so we know when we have good ones. Thank you to the scientists that are diligently working every day to find a cure for OUR disease. Thankful for the great medications and treatments that are available to our elders and our children. Thankful for the insurance we have to help pay for these things or to the many many programs that help in one way or another to make our lives a little easier. AND LAST BUT CERTAINLY NOT LEAST, THANK YOU TO ALL THE WONDERFUL PEOPLE WHO ARE HERE FOR SUPPORT EACH AND EVERY DAY. Tina W., mother of , 26yo nocf & , 18yo wcf Cf Downer:( Went on cf memorial link, BAD choice.Now very depressed.(why do i do that to myself?)Need some kind of support group in area, or somebody with some answers.I need SOME reassurance that my son is going to be ok if i just do everything the docs tell me to do, cant seem to find anybody willing to sugarcoat whats going on.Sometimes i feel really alone, thank God i can at least talk to all you, or i'd pull my hair out(thanks by the way), but sometimes i need more.I hope i can take my mind off this,i dread another sleepless night worrying about the challenges in my life i face that i have no control over(control, ME, the QUEEN of needing control!)Its so strange that my " black and white, NO gray " personality generally serves me well; in this circumstance it hinders happiness and generally tends to cause me grief and anxiety.Sorry to be such a downer tonight; i rest better knowing that if I hurt so bad inside tonight maybe its so ten fold can smile tomorrow! Sad day in FLA, Patty, mom to Tyler 8wcf and 2 little ones wocf ------------------------------------------- The opinions and information exchanged on this list should IN NO WAY be construed as medical advice. PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. ------------------------------------ _____ Quote Link to comment Share on other sites More sharing options...
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