Re: Going to The ER ( I cussed sorry)

[Guest guest]

Becki,

I'm sorry things are going so badly for you, i know it sounds

so " light " just to say sorry.The way youre being treated is awful and

i hope its no indication as to what i'll be going through when my

cfer gets aa little older.You sound much nicer than me, somehow the

scorpio in me kicks in if i even detect any non-compliance for what i

want or need especially when it comes to my kids.I would think the er

is the LAST place you should be, can't you talk to anyone else?If

not, which i'm assuming or you probably would have done so already,

when you DO see the dr i'd give him a big ole ear full!!!!!!!!HE

chose this line of work, and i understand they have lives too, but if

they dont want to be interupted thru din-din, there needs to be

another dr in the group on call, or SOMETHING!!!

I saw youre coming to Florida, but didnt see in your post why.Do you

live down here?I'm in Pinellas Park(just north of St.Pete).Anytime

you are bored any time of day or night, e-mail me, even if you dont

have much to say, just knowing someone will listen sometimes

helps.Best thing is to I-M on yahoo.hark523@...(sorry, still

big dummy on computers and cant figure out how to make my eaddress go

light blue so all you have to do is click on it, but you get the

point, right?

Hang in there...we're all rooting for you!!!! (\0/)

Patty, mom to Tyler,8wcf and 2wocf in the sunshine state,oh ya, THIS

is the time of year i remember why i moved down here!!!

> LOL...

> I called the docs this morning and was told to go to the ER b/c the

docs

> aren't seeing patients until after the holiday....excuse

me ....isn't this a pulmo

> office where people can drop dead at the drop of a hat if not

treated

> quickly.I mean YAH, Im the only cystic but he has COPDers who are

on the vent all the

> tome. What happens to them.

> Then the nurse calls back and says I need to hurry up and go to the

ER b/c it

> really is an inconvience for the doc to be called after dinner for

orders.

> Good God all Mighty, my treatment never changes.Why can't they

direct admit

> me...

> I just can't believe they said it is an inconvience to have the doc

notified

> of me after dinner. I mean lordie, Ive been puking since

Thursday,Diarrhea

> since Wed, PRojectile vomiting mucus across the room for 3 days ( I

actually hit

> the other side of the room last night...what a true talent I

have..LOL )

> Then to top it off they call in a med that isn't anywhere to be

found ! ! ! !

> I'd say Im the one who's been screwed over not them.

>

> Then I call Phycians Mutual to see if my claim got there.I was

informed we've

> been dropped b/c I was in the hospital and couldn't make the

payment and Brad

> didn't believe me when I said it needed to get there ASAP. He waits

a week to

> send it off.So now we're out almost $2,000 we were gonna use for my

Mayo

> Trip.

>

> I cried and cried. I feel like shit and then get kicked in the

mouth. I

> called up anyone who would listen....and then cried to them.

> The true is it just hit me... I am completely reliant on other

people.I mean

> Brads somewhat independant but when he's sick we need help. I'm no

better than

> a 2 year old. I needed someone to get my meds, pay the bills, fix

me food

> when Im too sick to go downstairs (or I will just live in the bed)

For several

> days I brought up a box of oranges and a 2 Liter of soda and thats

all I ate and

> drank (it all came up anyway). It is truely depressing to know that

my 21 yo

> sister is 100% more adult than I am. There is no way I could ever

surviive

> alone .That is a really scary thing to realize

> Then last night as Im taking a shower and was using my shower care

I realized

> ,good lord, what has happened to me. I remember speaking to friends

who were

> as sick as I am and they passed away. That thought is truely

sickening.

>

> I can remember talking to Rita and she was yelling at me to turn my

02 up b/c

> I was SAT'ing crappy.We talked for hours at night b/c what else is

there to

> do in the hospital( although I found that the Krispy Cream Guy

comes at

> night...LOL). She passed away a month later.I mean all it takes is

one bad infection

> and WHAM your screwed.

>

> Sorry this letter is this depressing.I am in an majorly irritable

crummy mood

> and my lungs are killing me pain wise ( I guess literallly too).

> Anyways...I will be going to the ER b/c my docs are screw heads and

are busy

> with holiday shopping....Please pray I don't get stuck in an ER

bed for

> days...they have waiting lists here b/c of the flu.Thats another

thing.I have to

> sit in the dang ER surrounded by sick flu patients and people who

have God knows

> what.

>

> I went as far as putting all the Christmas cards up in the house to

improve

> my mood.I mean if I can't do my usual decorations I gotta do

something(I go all

> out for the holiday). I also Lysol'ed the heck out of the

house.....Brad and

> I have been passing the flu back and forth now for awhile. My poor

dog is

> depressed and confused.Mommy goes in and Daddy come out and vice

versa.

> Anyways...Off I go to see the wonderful expressions of the nurses

and ER docs

> when they listen to my chest.Actually its quite amusing...LOL

>

> Anyways..I'll get word to Linnie and she's update everyone and send

word out

> to the other lists.

> Gosh, I will be so glad when I get to Florida and can get

listed.Maybe this

> time next year I'll be too busy running and playing to be online

(Naw....Im too

> much of a computer geek.I'll just run and type at the same time or

> something....I am ADD if you hadn't noticed).

>

> Anyways...

>

> MERRY MERRY CHRISTMAS

> and a

> HAPPY NEW YEAR.

>

>

>

> Becki

> YOUR FAVORITE LilGooberGirl

> YOUNGLUNG EMAIL SUPPORT LIST

> www.topica.com/lists/younglung

> Pediatric Interstitial Lung Disease Society

> http://groups.yahoo.com/group/InterstitialLung_Kids/

>

>

>

[Guest guest]

Becki,

I am so sorry you have to go through this cr_p. I hope someday that every

health care provider is in this same situation and will have to rely on a cf

patient or a cf patient's family member to provide for them. They just

don't get it. It is bad enough to feel like cr_p. Then to be at their

mercy! My wish & prayer for you in the coming year is that you and Brad

quit passing this stuff around and that you get listed and this is all a

memory. I wish I was closer and I would come and decorate your hospital

room for you. Now give your puppy a hug and pack your bag. I hope they get

you processed and in a room in a short amount of time.(I know that is

wishful thinking but I really do wish it) Hope to hear from you soon.

Tina W., mother of Steph, 18yo wcf

Going to The ER ( I cussed sorry)

LOL...

I called the docs this morning and was told to go to the ER b/c the docs

aren't seeing patients until after the holiday....excuse me ....isn't this a

pulmo

office where people can drop dead at the drop of a hat if not treated

quickly.I mean YAH, Im the only cystic but he has COPDers who are on the

vent all the

tome. What happens to them.

Then the nurse calls back and says I need to hurry up and go to the ER b/c

it

really is an inconvience for the doc to be called after dinner for orders.

Good God all Mighty, my treatment never changes.Why can't they direct admit

me...

I just can't believe they said it is an inconvience to have the doc notified

of me after dinner. I mean lordie, Ive been puking since Thursday,Diarrhea

since Wed, PRojectile vomiting mucus across the room for 3 days ( I actually

hit

the other side of the room last night...what a true talent I have..LOL )

Then to top it off they call in a med that isn't anywhere to be found ! ! !

!

I'd say Im the one who's been screwed over not them.

Then I call Phycians Mutual to see if my claim got there.I was informed

we've

been dropped b/c I was in the hospital and couldn't make the payment and

Brad

didn't believe me when I said it needed to get there ASAP. He waits a week

to

send it off.So now we're out almost $2,000 we were gonna use for my Mayo

Trip.

I cried and cried. I feel like shit and then get kicked in the mouth. I

called up anyone who would listen....and then cried to them.

The true is it just hit me... I am completely reliant on other people.I mean

Brads somewhat independant but when he's sick we need help. I'm no better

than

a 2 year old. I needed someone to get my meds, pay the bills, fix me food

when Im too sick to go downstairs (or I will just live in the bed) For

several

days I brought up a box of oranges and a 2 Liter of soda and thats all I ate

and

drank (it all came up anyway). It is truely depressing to know that my 21 yo

sister is 100% more adult than I am. There is no way I could ever surviive

alone .That is a really scary thing to realize

Then last night as Im taking a shower and was using my shower care I

realized

,good lord, what has happened to me. I remember speaking to friends who were

as sick as I am and they passed away. That thought is truely sickening.

I can remember talking to Rita and she was yelling at me to turn my 02 up

b/c

I was SAT'ing crappy.We talked for hours at night b/c what else is there to

do in the hospital( although I found that the Krispy Cream Guy comes at

night...LOL). She passed away a month later.I mean all it takes is one bad

infection

and WHAM your screwed.

Sorry this letter is this depressing.I am in an majorly irritable crummy

mood

and my lungs are killing me pain wise ( I guess literallly too).

Anyways...I will be going to the ER b/c my docs are screw heads and are busy

with holiday shopping....Please pray I don't get stuck in an ER bed for

days...they have waiting lists here b/c of the flu.Thats another thing.I

have to

sit in the dang ER surrounded by sick flu patients and people who have God

knows

what.

I went as far as putting all the Christmas cards up in the house to improve

my mood.I mean if I can't do my usual decorations I gotta do something(I go

all

out for the holiday). I also Lysol'ed the heck out of the house.....Brad and

I have been passing the flu back and forth now for awhile. My poor dog is

depressed and confused.Mommy goes in and Daddy come out and vice versa.

Anyways...Off I go to see the wonderful expressions of the nurses and ER

docs

when they listen to my chest.Actually its quite amusing...LOL

Anyways..I'll get word to Linnie and she's update everyone and send word out

to the other lists.

Gosh, I will be so glad when I get to Florida and can get listed.Maybe this

time next year I'll be too busy running and playing to be online (Naw....Im

too

much of a computer geek.I'll just run and type at the same time or

something....I am ADD if you hadn't noticed).

Anyways...

MERRY MERRY CHRISTMAS

and a

HAPPY NEW YEAR.

Becki

YOUR FAVORITE LilGooberGirl

YOUNGLUNG EMAIL SUPPORT LIST

www.topica.com/lists/younglung

Pediatric Interstitial Lung Disease Society

http://groups.yahoo.com/group/InterstitialLung_Kids/

<http://groups.yahoo.com/group/InterstitialLung_Kids/>

[Guest guest]

Oh Becki!

I just want to give you a big hug and smack those lame doctors! To leave you

hanging since last week and not even tell you then that they wouldn't be able to

see you this week either is just the LAMEST thing ever! Inconvenient? I hope

you told them that it was inconvenient that they called in a med that no one had

AND that you were left projectile vomiting all weekend!!!!!!!!!!!

I hope someone there has a bit of sense in their head and doesn't leave you out

with the flu people!!!!!

Feel better soon. We'll be thinking of you!

Going to The ER ( I cussed sorry)

LOL...

I called the docs this morning and was told to go to the ER b/c the docs

aren't seeing patients until after the holiday....excuse me ....isn't this a

pulmo

office where people can drop dead at the drop of a hat if not treated

quickly.I mean YAH, Im the only cystic but he has COPDers who are on the vent

all the

tome. What happens to them.

Then the nurse calls back and says I need to hurry up and go to the ER b/c it

really is an inconvience for the doc to be called after dinner for orders.

Good God all Mighty, my treatment never changes.Why can't they direct admit

me...

I just can't believe they said it is an inconvience to have the doc notified

of me after dinner. I mean lordie, Ive been puking since Thursday,Diarrhea

since Wed, PRojectile vomiting mucus across the room for 3 days ( I actually

hit

the other side of the room last night...what a true talent I have..LOL )

Then to top it off they call in a med that isn't anywhere to be found ! ! ! !

I'd say Im the one who's been screwed over not them.

Then I call Phycians Mutual to see if my claim got there.I was informed we've

been dropped b/c I was in the hospital and couldn't make the payment and Brad

didn't believe me when I said it needed to get there ASAP. He waits a week to

send it off.So now we're out almost $2,000 we were gonna use for my Mayo

Trip.

I cried and cried. I feel like shit and then get kicked in the mouth. I

called up anyone who would listen....and then cried to them.

The true is it just hit me... I am completely reliant on other people.I mean

Brads somewhat independant but when he's sick we need help. I'm no better than

a 2 year old. I needed someone to get my meds, pay the bills, fix me food

when Im too sick to go downstairs (or I will just live in the bed) For several

days I brought up a box of oranges and a 2 Liter of soda and thats all I ate

and

drank (it all came up anyway). It is truely depressing to know that my 21 yo

sister is 100% more adult than I am. There is no way I could ever surviive

alone .That is a really scary thing to realize

Then last night as Im taking a shower and was using my shower care I realized

,good lord, what has happened to me. I remember speaking to friends who were

as sick as I am and they passed away. That thought is truely sickening.

I can remember talking to Rita and she was yelling at me to turn my 02 up b/c

I was SAT'ing crappy.We talked for hours at night b/c what else is there to

do in the hospital( although I found that the Krispy Cream Guy comes at

night...LOL). She passed away a month later.I mean all it takes is one bad

infection

and WHAM your screwed.

Sorry this letter is this depressing.I am in an majorly irritable crummy mood

and my lungs are killing me pain wise ( I guess literallly too).

Anyways...I will be going to the ER b/c my docs are screw heads and are busy

with holiday shopping....Please pray I don't get stuck in an ER bed for

days...they have waiting lists here b/c of the flu.Thats another thing.I have

to

sit in the dang ER surrounded by sick flu patients and people who have God

knows

what.

I went as far as putting all the Christmas cards up in the house to improve

my mood.I mean if I can't do my usual decorations I gotta do something(I go

all

out for the holiday). I also Lysol'ed the heck out of the house.....Brad and

I have been passing the flu back and forth now for awhile. My poor dog is

depressed and confused.Mommy goes in and Daddy come out and vice versa.

Anyways...Off I go to see the wonderful expressions of the nurses and ER docs

when they listen to my chest.Actually its quite amusing...LOL

Anyways..I'll get word to Linnie and she's update everyone and send word out

to the other lists.

Gosh, I will be so glad when I get to Florida and can get listed.Maybe this

time next year I'll be too busy running and playing to be online (Naw....Im

too

much of a computer geek.I'll just run and type at the same time or

something....I am ADD if you hadn't noticed).

Anyways...

MERRY MERRY CHRISTMAS

and a

HAPPY NEW YEAR.

Becki

YOUR FAVORITE LilGooberGirl

YOUNGLUNG EMAIL SUPPORT LIST

www.topica.com/lists/younglung

Pediatric Interstitial Lung Disease Society

http://groups.yahoo.com/group/InterstitialLung_Kids/

[Guest guest]

Hey

Well I went to the ER and there was a wait of at least 6 hours to see a doc

and there was a line of coughing and puking people with the flu and god knows

what else.I turned around and yelled at the Security Guard that I'd take my

chances of dropping Dead at home. I had had it...I was crying and gagging and

coughing.He said have a nice day...whatever dude

SO I call my doc office to get the Answering service and low and behold...

THEY DON'T HAVE ONE ! ! ! !

So now I am REALLY PISSED OFF ! ! !

So it's like what am I to do? I am hurting so bad now in my ribcage and

whatnot.I get a pain patch slap it on,take a phenergan and retreat to my heating

pad.

Brad has IV's tomarrow morning so we have a plan to do his 6am dose and head

to the ER and hopefully there won't be a line that early.Usually when they see

my Sat's and there in the 80's at rest on 6L they freak....or lets hope that

lights a fire under their butt.

Anyways....I just wanted to let yall know Im still at home dealing with this

crap. Brad says if it gets worse we'll call 911 and at least I'll bypass the

waiting room...LOL

I'll let everyone know what happens " K " ..

Albuterol here I come.....

Becki

YOUR FAVORITE LilGooberGirl

YOUNGLUNG EMAIL SUPPORT LIST

www.topica.com/lists/younglung

Pediatric Interstitial Lung Disease Society

http://groups.yahoo.com/group/InterstitialLung_Kids/

[Guest guest]

I am sooooooo sorry about your treatment ----or lack of at the ER. that

really needs to be written up.

I know with so many getting the flu ---of some kind------, I am sure there

is a panic for many who don't have the deadly flu that's out there. It

isn't easy for anyone. BUT BRAD is right . 911 will be the way to go with

your case. it is a TRUE ER situation. ...Many folks could have gone to their

docs or the stand alone centers for an evaluation ---Find out its a bad

cold----get treatment & go home & get better, instead of filling up ER .

I do hope your a wee bit better now --or are on your way to DOC'S........

Your in my " get well quick " thoughts

LOVE & HUGS, grandmomBEV

Re: Going to The ER ( I cussed sorry)

Hey

Well I went to the ER and there was a wait of at least 6 hours to see a doc

and there was a line of coughing and puking people with the flu and god

knows

what else.I turned around and yelled at the Security Guard that I'd take my

chances of dropping Dead at home. I had had it...I was crying and gagging

and

coughing.He said have a nice day...whatever dude

SO I call my doc office to get the Answering service and low and behold...

THEY DON'T HAVE ONE ! ! ! !

So now I am REALLY PISSED OFF ! ! !

So it's like what am I to do? I am hurting so bad now in my ribcage and

whatnot.I get a pain patch slap it on,take a phenergan and retreat to my

heating

pad.

Brad has IV's tomarrow morning so we have a plan to do his 6am dose and head

to the ER and hopefully there won't be a line that early.Usually when they

see

my Sat's and there in the 80's at rest on 6L they freak....or lets hope that

lights a fire under their butt.

Anyways....I just wanted to let yall know Im still at home dealing with this

crap. Brad says if it gets worse we'll call 911 and at least I'll bypass the

waiting room...LOL

I'll let everyone know what happens " K " ..

Albuterol here I come.....

Becki

YOUR FAVORITE LilGooberGirl

YOUNGLUNG EMAIL SUPPORT LIST

www.topica.com/lists/younglung

Pediatric Interstitial Lung Disease Society

http://groups.yahoo.com/group/InterstitialLung_Kids/

[Guest guest]

Becky-

First and foremost I hope you are at the docs right now. Can you can your

pulm doc on call and have him or her meet you at the Rr or get you in right

away. I have done this for my son and this reduces waiting in the ER time and

ensures you are being seen by somone who knows what they are doing. The

doc on call usually will get things hopping in this type of circumstance. I

really hope you get some relief soon.

Crystal mother of 2 1/2

> Hey

> Well I went to the ER and there was a wait of at least 6 hours to see a doc

> and there was a line of coughing and puking people with the flu and god

knows

> what else.I turned around and yelled at the Security Guard that I'd take my

> chances of dropping Dead at home. I had had it...I was crying and gagging

and

> coughing.He said have a nice day...whatever dude

> SO I call my doc office to get the Answering service and low and behold...

> THEY DON'T HAVE ONE ! ! ! !

> So now I am REALLY PISSED OFF ! ! !

>

> So it's like what am I to do? I am hurting so bad now in my ribcage and

> whatnot.I get a pain patch slap it on,take a phenergan and retreat to my

heating

> pad.

>

> Brad has IV's tomarrow morning so we have a plan to do his 6am dose and

head

> to the ER and hopefully there won't be a line that early.Usually when they

see

> my Sat's and there in the 80's at rest on 6L they freak....or lets hope that

> lights a fire under their butt.

>

> Anyways....I just wanted to let yall know Im still at home dealing with this

> crap. Brad says if it gets worse we'll call 911 and at least I'll bypass the

> waiting room...LOL

>

> I'll let everyone know what happens " K " ..

>

> Albuterol here I come.....

>

>

>

>

>

> Becki

> YOUR FAVORITE LilGooberGirl

> YOUNGLUNG EMAIL SUPPORT LIST

> www.topica.com/lists/younglung

> Pediatric Interstitial Lung Disease Society

> http://groups.yahoo.com/group/InterstitialLung_Kids/

>

>

>

[Guest guest]

Becki,

What in God's name is going on? Is your doctor and that hospital

that freakin' sorry? Are you in a 3rd world country somewhere? Why

can you not get some assistance? Can you get O2 at home? Can you

get a pulse/Ox monitor - one of the small ones - so you can keep your

sats up? I want to slap somebody about this but I don't know who to

slap. Give me names. I ain't no little boy. The security guard

would be first on the list. Some people need a hands on

demonstration of how it feels to not be able to breathe.

You have to get well for your appt. in JAX in Jan., right? Is that

still on?

I wish I could do something to help. If there is something please

know I'll do it.

Love,

Joe

> Well I went to the ER and there was a wait of at least 6 hours to

see a doc

> and there was a line of coughing and puking people with the flu and

god knows

> what else.I turned around and yelled at the Security Guard that I'd

take my

> chances of dropping Dead at home. I had had it...I was crying and

gagging and

> coughing.He said have a nice day...whatever dude

> SO I call my doc office to get the Answering service and low and

behold...

> THEY DON'T HAVE ONE ! ! ! !

> So now I am REALLY PISSED OFF ! ! !

>

> So it's like what am I to do? I am hurting so bad now in my ribcage

and

> whatnot.I get a pain patch slap it on,take a phenergan and retreat

to my heating

> pad.

>

> Brad has IV's tomarrow morning so we have a plan to do his 6am dose

and head

> to the ER and hopefully there won't be a line that early.Usually

when they see

> my Sat's and there in the 80's at rest on 6L they freak....or lets

hope that

> lights a fire under their butt.

>

> Anyways....I just wanted to let yall know Im still at home dealing

with this

> crap. Brad says if it gets worse we'll call 911 and at least I'll

bypass the

> waiting room...LOL

>

> I'll let everyone know what happens " K " ..

>

> Albuterol here I come.....

>

>

>

>

>

> Becki

> YOUR FAVORITE LilGooberGirl

> YOUNGLUNG EMAIL SUPPORT LIST

> www.topica.com/lists/younglung

> Pediatric Interstitial Lung Disease Society

> http://groups.yahoo.com/group/InterstitialLung_Kids/

>

>

>

[Guest guest]

Becky,

How depressing!!! I am so sad and upset for you. I can't believe

that your doctor is so " uncaring " . Shame on him. I don't usually

pray, but I prayed twice for you yesterday. I hope that you get

better really soon.

Love,

Gale

> Hey

> Well I went to the ER and there was a wait of at least 6 hours to

see a doc

> and there was a line of coughing and puking people with the flu and

god knows

> what else.I turned around and yelled at the Security Guard that I'd

take my

> chances of dropping Dead at home. I had had it...I was crying and

gagging and

> coughing.He said have a nice day...whatever dude

> SO I call my doc office to get the Answering service and low and

behold...

> THEY DON'T HAVE ONE ! ! ! !

> So now I am REALLY PISSED OFF ! ! !

>

> So it's like what am I to do? I am hurting so bad now in my ribcage

and

> whatnot.I get a pain patch slap it on,take a phenergan and retreat

to my heating

> pad.

>

> Brad has IV's tomarrow morning so we have a plan to do his 6am dose

and head

> to the ER and hopefully there won't be a line that early.Usually

when they see

> my Sat's and there in the 80's at rest on 6L they freak....or lets

hope that

> lights a fire under their butt.

>

> Anyways....I just wanted to let yall know Im still at home dealing

with this

> crap. Brad says if it gets worse we'll call 911 and at least I'll

bypass the

> waiting room...LOL

>

> I'll let everyone know what happens " K " ..

>

> Albuterol here I come.....

>

>

>

>

>

> Becki

> YOUR FAVORITE LilGooberGirl

> YOUNGLUNG EMAIL SUPPORT LIST

> www.topica.com/lists/younglung

> Pediatric Interstitial Lung Disease Society

> http://groups.yahoo.com/group/InterstitialLung_Kids/

>

>

>