RE: Re: Natalia R U OK?

[Guest guest]

Natalia,

I am so sorry you won't be able to go on your trip to Cuba. You can go to

Cuba another time, I don't think that it will be going anywhere soon. I am

praying that your are feeling better soon. It is such a drag when you don't

feel well and then to not be in your own bed and in your own house. I am

sending you hugs via this computer and hope you are felling much better soon

and will be returning home. OOOOOOOOOOOOOOOOO

Tina W., mother of 18yo wcf

Re: Natalia R U OK?

Patty,

I am not doing that well. I am in the hospital. I came in because I

could not breathe anymore, so my brother took me to the ER. My

stats were scary. My fever was 39C, my sugers were 28 and my oxygen

was 84. I was put into isolation right away and then on oxygen. Since

then I am in the CF in-patient ward. I have had the hardest time ever.

I am still on oxygen and have a partly collapsed lung. Still carrying

this fever. I am so tired of being sick. Sometimes I feel like this

will never end. I have a whole team working for me here, but I am not

sure that it's enough. I can't sleep and am so tired, emotionally and

physically. I fight not to let this beat me, but there are times when

I want it to be over.

I hope everyone is okay. I have to be here for a week or two more.

Either way I am spending Christmas here and am missing my trip to sunny

Cuba. I really wanted that trip, after so long on home care IV

treatment, I just wanted to have a nice Christmas and trip.

I don't know where this came from, but it's one more argument against

home-care. My anti-biotics were not being monitored by the right

people (or at all) and began to work against me after a while. I

never knew it, and I ended up like this. I should have been in a

hospital a month ago and safe and well for the holidays.

Thanks for writing Patty. I have my laptop here so I can email, when I

am not in the midst of a fever, then all I can do is sleep. I'll post

more when I feel better. But I do read them, so keep writing these

great posts everyone.

Natalia

On Monday, December 22, 2003, at 07:15 PM, Lam-Harkonen wrote:

> Hi Natalia,

> Just a concerned cf parent from yahoo cfparents group missing your

> posts and concerned about you.Saw on your last post 12/17 you

> werereal ille you ok?Hope to hear from you on group soon, my thoughts

> and prayers are with you.

> Patty, mom to Ty,8wcf and 2little ones wocf

>

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