Guest guest Posted December 22, 2003 Report Share Posted December 22, 2003 Patty, I am not doing that well. I am in the hospital. I came in because I could not breathe anymore, so my brother took me to the ER. My stats were scary. My fever was 39C, my sugers were 28 and my oxygen was 84. I was put into isolation right away and then on oxygen. Since then I am in the CF in-patient ward. I have had the hardest time ever. I am still on oxygen and have a partly collapsed lung. Still carrying this fever. I am so tired of being sick. Sometimes I feel like this will never end. I have a whole team working for me here, but I am not sure that it's enough. I can't sleep and am so tired, emotionally and physically. I fight not to let this beat me, but there are times when I want it to be over. I hope everyone is okay. I have to be here for a week or two more. Either way I am spending Christmas here and am missing my trip to sunny Cuba. I really wanted that trip, after so long on home care IV treatment, I just wanted to have a nice Christmas and trip. I don't know where this came from, but it's one more argument against home-care. My anti-biotics were not being monitored by the right people (or at all) and began to work against me after a while. I never knew it, and I ended up like this. I should have been in a hospital a month ago and safe and well for the holidays. Thanks for writing Patty. I have my laptop here so I can email, when I am not in the midst of a fever, then all I can do is sleep. I'll post more when I feel better. But I do read them, so keep writing these great posts everyone. Natalia On Monday, December 22, 2003, at 07:15 PM, Lam-Harkonen wrote: > Hi Natalia, > Just a concerned cf parent from yahoo cfparents group missing your > posts and concerned about you.Saw on your last post 12/17 you > werereal ille you ok?Hope to hear from you on group soon, my thoughts > and prayers are with you. > Patty, mom to Ty,8wcf and 2little ones wocf > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 23, 2003 Report Share Posted December 23, 2003 Howdeeeeeeeee, I am really mad that you had to go thru this stuff. You are so right------you should have been at hospital ..OR have a much better " hi-tech " home care. If they don't have a " HI-TECH " team in their company -change companies. At least try.......... Home care is a special group & they really need to know the disease & how to monitor you. We had such a company with (7) offices in FL...It just MUST be carefully watched. get well quick --don't give up . Write as you feel able & know we are all pulling for you LOVE & HUGS, grandmoMBEV Re: Natalia R U OK? Patty, I am not doing that well. I am in the hospital. I came in because I could not breathe anymore, so my brother took me to the ER. My stats were scary. My fever was 39C, my sugers were 28 and my oxygen was 84. I was put into isolation right away and then on oxygen. Since then I am in the CF in-patient ward. I have had the hardest time ever. I am still on oxygen and have a partly collapsed lung. Still carrying this fever. I am so tired of being sick. Sometimes I feel like this will never end. I have a whole team working for me here, but I am not sure that it's enough. I can't sleep and am so tired, emotionally and physically. I fight not to let this beat me, but there are times when I want it to be over. I hope everyone is okay. I have to be here for a week or two more. Either way I am spending Christmas here and am missing my trip to sunny Cuba. I really wanted that trip, after so long on home care IV treatment, I just wanted to have a nice Christmas and trip. I don't know where this came from, but it's one more argument against home-care. My anti-biotics were not being monitored by the right people (or at all) and began to work against me after a while. I never knew it, and I ended up like this. I should have been in a hospital a month ago and safe and well for the holidays. Thanks for writing Patty. I have my laptop here so I can email, when I am not in the midst of a fever, then all I can do is sleep. I'll post more when I feel better. But I do read them, so keep writing these great posts everyone. Natalia On Monday, December 22, 2003, at 07:15 PM, Lam-Harkonen wrote: > Hi Natalia, > Just a concerned cf parent from yahoo cfparents group missing your > posts and concerned about you.Saw on your last post 12/17 you > werereal ille you ok?Hope to hear from you on group soon, my thoughts > and prayers are with you. > Patty, mom to Ty,8wcf and 2little ones wocf > ------------------------------------------- The opinions and information exchanged on this list should IN NO WAY be construed as medical advice. PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 23, 2003 Report Share Posted December 23, 2003 Natalia, Get your rest and know there are many out here pulling and praying for YOU in a huge way. Don't allow this to rob you of all the peace and joy that is available as a result of this season. It is yours for the taking. Don't dare give up. Parents like me are counting on you big time. Love, Joe > > > Hi Natalia, > > Just a concerned cf parent from yahoo cfparents group missing your > > posts and concerned about you.Saw on your last post 12/17 you > > werereal ille you ok?Hope to hear from you on group soon, my thoughts > > and prayers are with you. > > Patty, mom to Ty,8wcf and 2little ones wocf > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 23, 2003 Report Share Posted December 23, 2003 Natalia;a lot of people on this list and others are pulling for you! Love to you, n Rojas Re: Natalia R U OK? Patty, I am not doing that well. I am in the hospital. I came in because I could not breathe anymore, so my brother took me to the ER. My stats were scary. My fever was 39C, my sugers were 28 and my oxygen was 84. I was put into isolation right away and then on oxygen. Since then I am in the CF in-patient ward. I have had the hardest time ever. I am still on oxygen and have a partly collapsed lung. Still carrying this fever. I am so tired of being sick. Sometimes I feel like this will never end. I have a whole team working for me here, but I am not sure that it's enough. I can't sleep and am so tired, emotionally and physically. I fight not to let this beat me, but there are times when I want it to be over. I hope everyone is okay. I have to be here for a week or two more. Either way I am spending Christmas here and am missing my trip to sunny Cuba. I really wanted that trip, after so long on home care IV treatment, I just wanted to have a nice Christmas and trip. I don't know where this came from, but it's one more argument against home-care. My anti-biotics were not being monitored by the right people (or at all) and began to work against me after a while. I never knew it, and I ended up like this. I should have been in a hospital a month ago and safe and well for the holidays. Thanks for writing Patty. I have my laptop here so I can email, when I am not in the midst of a fever, then all I can do is sleep. I'll post more when I feel better. But I do read them, so keep writing these great posts everyone. Natalia On Monday, December 22, 2003, at 07:15 PM, Lam-Harkonen wrote: > Hi Natalia, > Just a concerned cf parent from yahoo cfparents group missing your > posts and concerned about you.Saw on your last post 12/17 you > werereal ille you ok?Hope to hear from you on group soon, my thoughts > and prayers are with you. > Patty, mom to Ty,8wcf and 2little ones wocf > ------------------------------------------- The opinions and information exchanged on this list should IN NO WAY be construed as medical advice. PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. ------------------------------------ ------------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 23, 2003 Report Share Posted December 23, 2003 Natalia: I enjoyed reading your earlier e-mails and am sorry you are in the hospital. I thought maybe it would cheer you up to receive snail mail cards. If you would like that, please post the mailing address at the hospital or wherever you would like cards sent. Debbie Danny, 19 yo no cf, 16 w/cf (newly diagnosed) _________________________________________________________________ Grab our best dial-up Internet access offer: 6 months @$9.95/month. http://join.msn.com/?page=dept/dialup Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 24, 2003 Report Share Posted December 24, 2003 Natalia, I have been wondering where you were. Now I know. I am so sorry to hear that you are having such a rough time. I hope that the hospital gets you back on your feet quickly. It sounds like you have a really great brother. I am glad that you have him. Love, Gale > > > Hi Natalia, > > Just a concerned cf parent from yahoo cfparents group missing your > > posts and concerned about you.Saw on your last post 12/17 you > > werereal ille you ok?Hope to hear from you on group soon, my thoughts > > and prayers are with you. > > Patty, mom to Ty,8wcf and 2little ones wocf > > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.