Guest guest Posted August 15, 2009 Report Share Posted August 15, 2009 Jen and Luli, What kind of spinal abonomalities? has asymmetrical thigh folds. It was discovered at her 6 or 9-month appointment and she had an x-ray of her hips to rule of hip dysplasia. It was negative, but now you have me a little bit worried. What else should I look for? If I take her to a chiro, will they discover this? greetings from new member [2 Attachments] [Attachment(s) from Amy included below] Hello plagio support group!My name is Amy and our 7.5-month-old daughter, Zia, is scheduled to be fitted for a helmet/band on Monday. So we are still in the relatively early stages of this process . . .I have a handful of questions to ask the group, but let me first share a brief version of our story: Our pediatrician alerted us about some mild asymmetry of her head during her first visit, and advised us to do some neck stretches and to switch which side she slept on relative to me. We also tried using a sleep positioner (wedge) starting at 3.5 months, and a Bumbo for sitting at 4 months, and have tried to carry her, and keep her off her back, as often as possible. Regardless of what we did, she almost always ended up on her back looking straight up, and her head did eventually flatten to a noticeable (and alarming to me) degree. We are presently working with a craniosacral physical therapist twice a week.Despite our efforts, she does indeed have mild/moderate plagio (don't know exactly how it will be classified since no one has done any official measuring, which presumably will be done on Monday), our pediatrician has given us the script for a helmet, and so we are moving forward with the process.So here are my questions:- Does anyone have experience with the Hanger cranial band? As far as we know, this is the only locally available option for us (we live in Chico, CA, about 90 miles north of Sacramento).- In addition to her flattened head, Zia's has a deviated gluteal fold (i.e. her butt crack veers off to the right at the top). Has anyone else had this issue? I'm not sure if it is related or coincidental to the plagio, but the physical therapist is working on this also since her sacrum/pelvis seems to be tilted and there is tightness in her side bending.- What type of specialist (doctor) do we want to be working with? We are currently seeking an appointment with a neurosurgeon in Sacramento. Is this the right direction to be going? It is apparently the standard referral from our pediatrician so we are pursuing it, at least for the moment.- I am feeling a great deal of regret and guilt at not acting sooner and feeling like I've failed in some important way as Zia's mom. Any suggestions about dealing with this would be greatly appreciated.I'm sure I am forgetting some other important questions, but I will send them out in another email when I think of them. In the meantime, I am so grateful to have connected with this community and look forward to your responses.AmyChico, CApictures of Zia attached (one front view, and one side view). I think the side view shows the flattening, though I've mostly avoided taking side-view pictures BECAUSE of her head shape, so I have a limited selection from which to choose.?? Quote Link to comment Share on other sites More sharing options...
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