Re: at a loss

[Guest guest]

I'm sorry to hear that you little guy is having such a hard time. I would seek a second opinion from another ortho. I know it can be hard especially when there are only a few select places that specialize in child bands.

Best of luck to you and Jayden.

Lorie

Mom to Spencer and Alizabeth 18 mo

Spencer- Left Plagio- DOC band Grad 9/07-12/07

Glendale, AZ

[sPAM] at a loss

Well everyone. I could use some input here. Jayden is having some bad bad luck with his Hanger helmet. At first they thought he was allergic to the foam padding in the first one so they made a second one. The second one irritated him more than the first cause the foam in the second was more plasic like and really held the sweat "fresh" so to speak all day. I mean the first one he would sweat but he would not be dripping in sweat when I took it off, but the second, the sweat was just wet wet dripping wet all day. So the first one made him break out in blisters/boils which was cultured and turned out to be a staph infection which is ped said was caused by pressure points in the helmet cause had it been a normal staph, it would have been everywhere on his body not just on his head. So thats when we got the second helmet. Well...now the second helmet is causing those blisters and boils too. So much that I take it off more often than I should hence the darn thing has probably not been effective. I mean literally this weekend we went on a two hour road trip with the helmet on. When I took it off to wash it my son had blisters/boils starting to form and under the blisters it was like big knots bulges under. I just simply do not understand. His orthotist has not heard of this, and honestly I have looked and looked but cant seem to find anything either. His ortho even opened the openening bigger at our last appointment to hopefully help the sweat issue. I'm not sure if its just the nasty sweat causing this or what. I mean, obviously this isnt something that can be adjusted, and I'm not so sure that its a bad orthotist thing. Colorado is also not a band friendly state so even IF I thought of getting a second opinion, I havent been able to find any other doctors that do this. PLUS, there is not CT out here or any place that would offer the DOC band. I think its the closed in area of the Hanger helmet(which actually is pretty much the exact same thing as the Starband and even orthoamerica has confirmed this with me) Im just at a loss. Even though his ortho says he has grown in length I just dont see how. He hasnt even gone a full month wearing it 23 hours a day yet! She says she wants him to be done by Xmas, but honestly...to me...his head looks exacly the same. FLAT FLAT FLAT and WIDE!!!!!!! Everyone talks meanly to me because I'm "subjecting" my son to "torture" with those blisters/boils. How is my son the only child that may never be able to wear one of these bands I just do not understand. if you were me what would you do? Try to wear the helmet as prescribed and see what happens? Or just toss in the towel at this point? I'm just not sure switching doctors would even do anything as the bands offered in colorado are so similar. And I do like our ortho, I dont think this is something she can even help with, and I'm sure she feels just as helpless as I do.