at a loss

[Guest guest]

Well everyone. I could use some input here. Jayden is having some bad

bad luck with his Hanger helmet. At first they thought he was

allergic to the foam padding in the first one so they made a second

one. The second one irritated him more than the first cause the foam

in the second was more plasic like and really held the sweat " fresh "

so to speak all day. I mean the first one he would sweat but he would

not be dripping in sweat when I took it off, but the second, the

sweat was just wet wet dripping wet all day. So the first one made

him break out in blisters/boils which was cultured and turned out to

be a staph infection which is ped said was caused by pressure points

in the helmet cause had it been a normal staph, it would have been

everywhere on his body not just on his head. So thats when we got the

second helmet. Well...now the second helmet is causing those blisters

and boils too. So much that I take it off more often than I should

hence the darn thing has probably not been effective. I mean

literally this weekend we went on a two hour road trip with the

helmet on. When I took it off to wash it my son had blisters/boils

starting to form and under the blisters it was like big knots bulges

under. I just simply do not understand. His orthotist has not heard

of this, and honestly I have looked and looked but cant seem to find

anything either. His ortho even opened the openening bigger at our

last appointment to hopefully help the sweat issue. I'm not sure if

its just the nasty sweat causing this or what. I mean, obviously this

isnt something that can be adjusted, and I'm not so sure that its a

bad orthotist thing. Colorado is also not a band friendly state so

even IF I thought of getting a second opinion, I havent been able to

find any other doctors that do this. PLUS, there is not CT out here

or any place that would offer the DOC band. I think its the closed in

area of the Hanger helmet(which actually is pretty much the exact

same thing as the Starband and even orthoamerica has confirmed this

with me) Im just at a loss. Even though his ortho says he has grown

in length I just dont see how. He hasnt even gone a full month

wearing it 23 hours a day yet! She says she wants him to be done by

Xmas, but honestly...to me...his head looks exacly the same. FLAT

FLAT FLAT and WIDE!!!!!!! Everyone talks meanly to me because

I'm " subjecting " my son to " torture " with those blisters/boils. How

is my son the only child that may never be able to wear one of these

bands I just do not understand. if you were me what would you do? Try

to wear the helmet as prescribed and see what happens? Or just toss

in the towel at this point? I'm just not sure switching doctors would

even do anything as the bands offered in colorado are so similar. And

I do like our ortho, I dont think this is something she can even help

with, and I'm sure she feels just as helpless as I do.