Re: I give up!!!!

[Guest guest]

Susiecue, I know just how you feel. I was on metho for one year and was

pretty sick most of the time, but I just wouldn't give up. I was never able

to decrease my pred though. Finally I DID feel like chucking it all big time

and I went and TOLD the dr that he had to give me something else. He poo

pooed it and I iNSISTED. He put me on Imuran and for some reason I was even

sicker. Couldn't keep anything down. Well, that only lasted for two weeks.

LOL When I went to Stanford they put me on Plaquenil. They thought my body

was toxic to the meds. This is not the case with most people. They are able

to take metho or Imuran. I was just one of the unfortunate ones. LOL

Plaquenil has worked wonders for me. I was down to 7mg of pred before the

surgery and no flares. YEAH!! Remember, we are all different and our bodies

all react differently to different meds. sounds like you are due for a new

one.

You better rant, rave, cry and anything else you want ot do. We are all here

for you and we have all had our turn at feeling like chucking it.

Please let us know what the dr says. We all love ya and are worried about

you.

I'm sending extra hugs your way

[Guest guest]

Susiecue,

Do you take Metho by mouth? I was having trouble so I switched to injectable Metho to bypass the stomach. That worked out better for me.

And yes, there are lots of times I feel like chucking it all. There have been plenty of times when I went to bed at night praying that I would not have to face another day. But I keep hanging in there hoping something will help me feel better.

Sending you lots of hugs,

Sandy

This last month has been the pits. I have been so nauseated. I went for my physical on Weds. & told my pcp I felt rotten. She was hesitant to give me anything because of all the medications I'm on. By Thurs I was really bad. I went to bed at 6:45. I never even lay down during the day so you can imagine how sick I was. I called the pcp back Fri night & all I could say is Please help me. I'm on Compazine 3 times a day. I took one Fri. night when I went to bed & I was ravenously hungry yesterday morning. We went for our usual Sat. Morning breakfast & I ate like there was no tomorrow. Went for blood work & came home & was sick & on the couch again all day. When I talked to the pcp we figured it might be the MTX building up in my body. I have always had a little queasiness from it but nothing I couldn't live with. I am to talk to the rheumy tomorrow & see what he thinks. Unless they can counteract the effects, I'm through with it. This is no way to live.

Has anyone else had this problem? What did they do for you? Between bein down on the pred & having mood swings, sick from this shit, moving to the new house in a month, all someone has to do to me is look wrong & I cry. I've really been trying to not let this get the best of me but I just can't do it no more. My knees have also been acting up.

I know I shouldn't complain & a lot of you are in much worse shape than I'm in, but it's been hard to come to terms with all this. Do any of you ever feel like chucking it all?

Thanks for your shoulders,

Luv ya,

SusiecueDISCLAIMER!!WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU

[Guest guest]

Susiecue, I know it is so tough at times. You hang in there and I will say a Prayer to the Lord to get you through times like this. Sending hugs your way, Sharon

[Guest guest]

To Susiecue,

People feel like that sometimes. You felt like that the other day.

I feel like that sometimes. I can only speak for myself; but it's

better for me to say it anyway I can, than to hold it in my mind to

fester and grow into " the Monster That Devoured Cleveland. "

Most people don't like to hear about these things. Many people

can never understand. A few people will.

This is written for you `cause blue does too!

I give up!!!!

I gave up yesterday

I gave up the day before

I give up so often

Sometimes it's just a chore!

When I look back to yesterday

or perhaps the day before

I think of you guys standing there

Singing " That's What Friends Are For! "

When I feel like giving up

I just sit down, you see...

I scratch my head and laugh out loud

And write bad poetry!

I can't see tomorrow.

I have just this " day before "

I will live and love my fullest

And... maybe one day more!

--------------------------------------------

blue

P.S. Last line sort of reminds me of that /Fillips song line:

... just hold on ... for one more day (or something like that?)

I guess that was on the edge of what I was thinking (?) I'm

always sort of on-the-edge!!! ; )

P.P.S. Folks with RP have been known to share their shoulders!