Re: fatigue, eyes and then some

[Guest guest]

--- Lee27a@... wrote:

> I went to the cornea specialist, again, now it's

> once every three weeks.

> Both of my eyes have gotten worse. I am putting

> steroid drops in the one eye

> 4 times a day and the other one is so dry that I my

> vision is getting worse.

> The one I am putting drops in seems to be shot. He

> said he is trying not to

> give a a cornea transplant because I don't have a

> healthy area for the

> transplant to take place??

> Another thing that is bothering me is the fatigue

> that I have. Is this also

> part of RP? Also, the pain I have with my legs, my

> back, my fingers, my head

> and the bottom of my feet.

> I just want to lay or sit down. It is so hard to be

> this way. The nurse

> said some of it is due to fibromyalgia but I think

> it is all RP related since

> my eyes are so involved.

>

> Thanks for listening,

> Sharon

>

Sharon, fatigue is definitely a part of RP. I think

it can be exacerbated by some of the meds, when I am

on my regular dose of 5mg pred my knees, hips,

fingers,neck and lower back all hurt to some degree,

including at night. Right now because I am on 20 mg

due to the recent flare all those nagging pain s have

gone and my energy levels are much higher!!! Mind you

it's partly fake!!! Also not sleeping well, but pred

does give you a false sense of wellbeing. I am sure

there is overlap however and some of it is from the

fibromyalgia.

I am really sympathetic about the eyes though. Every

time I read a post about eye problems I rush off and

start putting my drops in again! I was dx with dry

eyes long before I started having rp problems, so I

have been putting lubricating drops in for quite a

while, desperately hoping it will ward off problems

for longer. Both my parents developed cataracts and

my father had glaucoma and my sister had to have a

corneal transplant, healthy eyes don't seem to be a

big part of our family!! You are obviously doing all

you can by checking with the specialist. I hope it

improves. Take care, love Liz

__________________________________________________

[Guest guest]

Sharon & Liz

eyes

legs

back

hips

neck

knees

feet

flare

fatigue

fingers

fibromyalgia

Head-

Hands-

Hart-

Home

and

Friends

You know how it goes. One word just leads to another!

bashful, blue

(aka Glaucoma Girl)

[Guest guest]

Blue,

From one "Glaucoma Girl to another",I must say I enjoy reading your posts.

SandySharon & LizeyeslegsbackhipsneckkneesfeetflarefatiguefingersfibromyalgiaHead-Hands-Hart-HomeandFriendsYou know how it goes. One word just leads to another!bashful, blue(aka Glaucoma Girl)DISCLAIMER!!WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU

[Guest guest]

Glaucoma before? Glaucoma after?

Glaucoma ain't no cause for laughter!

Our eyes messed up with this RP

get so bad that we can't see!

Why can't this cRaP just let us be?

Sandy,

I would like to hear your Glaucoma story.

blue