Guest guest Posted December 4, 2006 Report Share Posted December 4, 2006 Hi All, My family is new to the SCD diet and just got past the intro diet. We are doing the diet because of my son-- 4 yrs old- who has autism and leaky gut. Ben never had any overt symptoms of GI problems (i.e. diarrhea, constipation, etc.) except for slightly bloated belly, but diagnostic tests show leaky gut. My question is this...how fast should we move through the introductory stages of the diet. What am I looking for in terms of his " tolerance " to new foods (stage 2 and afterwards...)? Is it just presence or absence of bloated tummy? How about behavior? This is tricky with an autistic child...He has been pretty hyperactive and seems to have more sensory issues since we started the diet. We are probably past a die-off phase (we have been on the diet about 2.5 weeks already). Show we stay at the stage (Stage I) where we are until the behaviors go away? Or am I looking at GI-related symptoms more in terms of determining tolerance and readiness to move to the new stage. Appreciate any thoughts-- particularly from folks that have autistic kids!!! Regards, Martha (Mom to Ben---SCD 2.5 wks) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2006 Report Share Posted December 4, 2006 Hi Martha, You have to use your imagination a little bit to think about what's actually going on in his gut. Yes, you are no doubt seeing some die-off symptoms right now.... so keep in mind that there were actual colonies of overgrown bad bacteria attached to his gut wall. It's those colonies that damaged his gut by hooking on and perforating the gut lining with their nasty little " tentacles " . As those colonies begin to die-off (and this does not necessarily happen all at once, in just the first week or so.... it may take some time to get ALL of them gone), they will detach from the lining of your son's gut and pass on through. What's left behind then, is tender, raw new tissue.... that needs to be treated ULTRA gently until it can fully heal and a new biofilm of GOOD, balance flora builds up to become a new protective layer. This is one HUGE reason to stick with EASY TO DIGEST foods.... all peeled, de-seeded and cooked.... for a while. Brand new healthy tissue needs to be treated with very tender loving care. He may not have had much in the way of " obvious " GI symptoms.... but leaky gut definitely IS a GI symptom so there is a lot of healing that needs to happen. If you rush, you'll regret it later. It's really hard to say " how long " for any one kid (or adult)..... so just hang in there and take it slow and easy. This is not a race. It may be many months before he is really ready for things like raw foods and whole nuts, etc. Stick with us.... we're here for you. Keep us informed of what you observe in terms of behavior, physical or GI stuff. Patti how long int first stages? Hi All, My family is new to the SCD diet and just got past the intro diet. We are doing the diet because of my son-- 4 yrs old- who has autism and leaky gut. Ben never had any overt symptoms of GI problems (i.e. diarrhea, constipation, etc.) except for slightly bloated belly, but diagnostic tests show leaky gut. My question is this...how fast should we move through the introductory stages of the diet. What am I looking for in terms of his " tolerance " to new foods (stage 2 and afterwards...)? Is it just presence or absence of bloated tummy? How about behavior? This is tricky with an autistic child...He has been pretty hyperactive and seems to have more sensory issues since we started the diet. We are probably past a die-off phase (we have been on the diet about 2.5 weeks already). Show we stay at the stage (Stage I) where we are until the behaviors go away? Or am I looking at GI-related symptoms more in terms of determining tolerance and readiness to move to the new stage. Appreciate any thoughts-- particularly from folks that have autistic kids!!! Regards, Martha (Mom to Ben---SCD 2.5 wks) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2006 Report Share Posted December 4, 2006 Martha, What foods is Ben eating now? Are you giving him a probiotic, scd 24 hr. homemade yogurt? We are doing scd for my 3.5yr. old son with a high functioning asd diagnosis. We did the intro diet for about four days, and then began to slowly introduce new foods. He did not have any obvious GI problems before scd. We began to introduce new foods based on his bowel movements rather than behavior. We do watch for sensitivity to foods when they are introduced both with negative behavioral issues(increased stimming, irritability, ect.) as well as with GI problems(undigested foods in stool, constepation, diahrea, ect.). It's different for every child..you will hear this over and over. Keep a food journal for each day stating what he ate/drank and both bowel and behavior notes. This will help you to determine problem foods. If you haven't already seen it, there is a food stages chart at pecanbread.com listed in the food preparation section. This isn't set in stone, but will give you an idea of which foods are usually tolerated first. Meleah scd 05/06 iel 3.5yrs. asd, Ethan 5yrs., Mark 19mths., both nt how long int first stages? Hi All, My family is new to the SCD diet and just got past the intro diet. We are doing the diet because of my son-- 4 yrs old- who has autism and leaky gut. Ben never had any overt symptoms of GI problems (i.e. diarrhea, constipation, etc.) except for slightly bloated belly, but diagnostic tests show leaky gut. My question is this...how fast should we move through the introductory stages of the diet. What am I looking for in terms of his " tolerance " to new foods (stage 2 and afterwards...)? Is it just presence or absence of bloated tummy? How about behavior? This is tricky with an autistic child...He has been pretty hyperactive and seems to have more sensory issues since we started the diet. We are probably past a die-off phase (we have been on the diet about 2.5 weeks already). Show we stay at the stage (Stage I) where we are until the behaviors go away? Or am I looking at GI-related symptoms more in terms of determining tolerance and readiness to move to the new stage. Appreciate any thoughts-- particularly from folks that have autistic kids!!! Regards, Martha (Mom to Ben---SCD 2.5 wks) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2006 Report Share Posted December 4, 2006 Hi Robin, Right now he is eating only what is on the stage 1 list on the chart that you are referring to (zucchini, spinach, carrots, green beads, meats, SCD legal juices (apple cider and Welch's grape juice-- diluted). I am dying to introduce more foods--but he is behaving so badly right now that I am not sure what is going on. Bowel movements are fine. Belly is not bloated, but I did hear him cry out in his sleep last night -- which is an indication of some kind of pain. We have been GFCF for 9 months now and I really hesitate to introduce milk of any kind....were you GFCF? How did your son react when you gave the yogurt to him? Martha robin wrote: > Martha, > What foods is Ben eating now? Are you giving him a probiotic, scd 24 > hr. homemade yogurt? We are doing scd for my 3.5yr. old son with a > high functioning asd diagnosis. We did the intro diet for about four > days, and then began to slowly introduce new foods. He did not have > any obvious GI problems before scd. We began to introduce new foods > based on his bowel movements rather than behavior. We do watch for > sensitivity to foods when they are introduced both with negative > behavioral issues(increased stimming, irritability, ect.) as well as > with GI problems(undigested foods in stool, constepation, diahrea, > ect.). It's different for every child..you will hear this over and > over. Keep a food journal for each day stating what he ate/drank and > both bowel and behavior notes. This will help you to determine problem > foods. If you haven't already seen it, there is a food stages chart at > pecanbread.com listed in the food preparation section. This isn't set > in stone, but will give you an idea of which foods are usually > tolerated first. > Meleah scd 05/06 > iel 3.5yrs. asd, Ethan 5yrs., Mark 19mths., both nt Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2006 Report Share Posted December 4, 2006 Everyone afraid to try the goat yogurt must read this. I'm sure there are articles to back me up as well. The casein in the goat yogurt has been reduced by the process of making yogurt. The proteins are broken down more so than if if were just goat milk that was going to be consumed. It is the safest " casein tester " there is. If those who try the goat yogurt do not tolerate it, then casein usually is NOT introduced. If you're that worried try the nut yogurt for a while like we did. Just hoping to lend some encouragement here. Jenn & K Re: how long int first stages? Hi Robin, Right now he is eating only what is on the stage 1 list on the chart that you are referring to (zucchini, spinach, carrots, green beads, meats, SCD legal juices (apple cider and Welch's grape juice-- diluted). I am dying to introduce more foods--but he is behaving so badly right now that I am not sure what is going on. Bowel movements are fine. Belly is not bloated, but I did hear him cry out in his sleep last night -- which is an indication of some kind of pain. We have been GFCF for 9 months now and I really hesitate to introduce milk of any kind....were you GFCF? How did your son react when you gave the yogurt to him? Martha robin wrote: > Martha, > What foods is Ben eating now? Are you giving him a probiotic, scd 24 > hr. homemade yogurt? We are doing scd for my 3.5yr. old son with a > high functioning asd diagnosis. We did the intro diet for about four > days, and then began to slowly introduce new foods. He did not have > any obvious GI problems before scd. We began to introduce new foods > based on his bowel movements rather than behavior. We do watch for > sensitivity to foods when they are introduced both with negative > behavioral issues(increased stimming, irritability, ect.) as well as > with GI problems(undigested foods in stool, constepation, diahrea, > ect.). It's different for every child..you will hear this over and > over. Keep a food journal for each day stating what he ate/drank and > both bowel and behavior notes. This will help you to determine problem > foods. If you haven't already seen it, there is a food stages chart at > pecanbread.com listed in the food preparation section. This isn't set > in stone, but will give you an idea of which foods are usually > tolerated first. > Meleah scd 05/06 > iel 3.5yrs. asd, Ethan 5yrs., Mark 19mths., both nt Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2006 Report Share Posted December 4, 2006 Martha, We were gf/cf for only two weeks before I found scd. iel had never given me any indication that he had a casein addiction though. He actually didn't really care for dairy prior to scd. He would do anything for a cracker, pretzel, pasta, ect. We did keep dairy out for about five weeks into scd just to be cautious. He started with the 24hr. scd goat yogurt in a small amount. We didn't see any bad reactions, so kept going. I know that you are really anxious to add some new foods, but he is getting a pretty balanced diet if he is actually eating all of the foods that you listed. I'd take it slow. If his behavior is terrible...worse than pre-scd...and he is also crying out in his sleep, then this could be die-off or maybe even an intolerance to one of the foods that he's eating. Are you giving him activated charcoal or epsin salts baths? This can help ease his discomfort. Any other thoughts here, moderators? Meleah Re: how long int first stages? Hi Robin, Right now he is eating only what is on the stage 1 list on the chart that you are referring to (zucchini, spinach, carrots, green beads, meats, SCD legal juices (apple cider and Welch's grape juice-- diluted). I am dying to introduce more foods--but he is behaving so badly right now that I am not sure what is going on. Bowel movements are fine. Belly is not bloated, but I did hear him cry out in his sleep last night -- which is an indication of some kind of pain. We have been GFCF for 9 months now and I really hesitate to introduce milk of any kind....were you GFCF? How did your son react when you gave the yogurt to him? Martha robin wrote: > Martha, > What foods is Ben eating now? Are you giving him a probiotic, scd 24 > hr. homemade yogurt? We are doing scd for my 3.5yr. old son with a > high functioning asd diagnosis. We did the intro diet for about four > days, and then began to slowly introduce new foods. He did not have > any obvious GI problems before scd. We began to introduce new foods > based on his bowel movements rather than behavior. We do watch for > sensitivity to foods when they are introduced both with negative > behavioral issues(increased stimming, irritability, ect.) as well as > with GI problems(undigested foods in stool, constepation, diahrea, > ect.). It's different for every child..you will hear this over and > over. Keep a food journal for each day stating what he ate/drank and > both bowel and behavior notes. This will help you to determine problem > foods. If you haven't already seen it, there is a food stages chart at > pecanbread.com listed in the food preparation section. This isn't set > in stone, but will give you an idea of which foods are usually > tolerated first. > Meleah scd 05/06 > iel 3.5yrs. asd, Ethan 5yrs., Mark 19mths., both nt Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2006 Report Share Posted December 4, 2006 Hi Patti, This is good advice. It is so hard for me to see a regression in behavior-- we have been working so hard with him. I just need to be patient and have faith!! We will definitely stay on cooked fruits and veggies for a while. A few more questions.... Afer checking out what supplements that Ben is taking, I see that the only one that is not SCD-legal is his probiotic -- KyoDophalis--it has potato starch. I saw from the list on PecanBread.com what commercially available brands are SCD-legal. The reason that we have been taking this brand is because our doctor (www.drkaslow.com) said that it attaches well to the intestinal wall. Do you know if the SCDopholis brand also attaches well? Have any experience with combining SCD diet with chelation therapy. I've heard that chelation kicks up yeast. My doctor has already prescribed a chelation regime for him, but we have been waiting to get started until we had the diet. I think that my plan is to keep him on cooked fruits and vegetables throughout the chelation process-- which is likely to last a couple of months at least. Any thoughts of any special that I should be doing? Regards, Martha > > Hi Martha, > > You have to use your imagination a little bit to think about what's actually going on in his gut. Yes, you are no doubt seeing some die-off symptoms right now.... so keep in mind that there were actual colonies of overgrown bad bacteria attached to his gut wall. It's those colonies that damaged his gut by hooking on and perforating the gut lining with their nasty little " tentacles " . > > As those colonies begin to die-off (and this does not necessarily happen all at once, in just the first week or so.... it may take some time to get ALL of them gone), they will detach from the lining of your son's gut and pass on through. What's left behind then, is tender, raw new tissue.... that needs to be treated ULTRA gently until it can fully heal and a new biofilm of GOOD, balance flora builds up to become a new protective layer. > > This is one HUGE reason to stick with EASY TO DIGEST foods.... all peeled, de-seeded and cooked.... for a while. Brand new healthy tissue needs to be treated with very tender loving care. He may not have had much in the way of " obvious " GI symptoms.... but leaky gut definitely IS a GI symptom so there is a lot of healing that needs to happen. If you rush, you'll regret it later. > > It's really hard to say " how long " for any one kid (or adult)..... so just hang in there and take it slow and easy. This is not a race. It may be many months before he is really ready for things like raw foods and whole nuts, etc. > > Stick with us.... we're here for you. Keep us informed of what you observe in terms of behavior, physical or GI stuff. > > Patti > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2006 Report Share Posted December 4, 2006 I'm sorry to say that I am not familiar with the probiotic product you're using. All I can tell you is that it's completely not compatible with SCD if it has potato starch. You would undermine all your hard work. That would be sad. I don't know how the SCDophilus compares in terms of " attaching to the intestinal wall " . We just know that we need to keep a good supply of legal acidophilus flowing in to help take up the space once occupied by gut pathogens.... and re-balance the flora. I'm afraid that if your doctor prescribed this product with potato starch, he must not be very familiar with SCD. It's a dilemma that many parents face.... the same doctor's who advise going on SCD are prescribing products that are SCD illegal. I personally do not have experience with chelation. I would advise any parent to stick with SCD for a good long time BEFORE attempting chelation.... and that is just based on what I've read here from other parents. Patti Re: how long int first stages? Hi Patti, This is good advice. It is so hard for me to see a regression in behavior-- we have been working so hard with him. I just need to be patient and have faith!! We will definitely stay on cooked fruits and veggies for a while. A few more questions.... Afer checking out what supplements that Ben is taking, I see that the only one that is not SCD-legal is his probiotic -- KyoDophalis--it has potato starch. I saw from the list on PecanBread.com what commercially available brands are SCD-legal. The reason that we have been taking this brand is because our doctor (www.drkaslow.com) said that it attaches well to the intestinal wall. Do you know if the SCDopholis brand also attaches well? Have any experience with combining SCD diet with chelation therapy. I've heard that chelation kicks up yeast. My doctor has already prescribed a chelation regime for him, but we have been waiting to get started until we had the diet. I think that my plan is to keep him on cooked fruits and vegetables throughout the chelation process-- which is likely to last a couple of months at least. Any thoughts of any special that I should be doing? Regards, Martha Recent Activity a.. 21New Members Visit Your Group Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2006 Report Share Posted December 4, 2006 Martha, I'm going to throw my two cents in here because my son is doing chelation therapy right now. You are right to wait to start chelation until his gut has some time to heal using scd. I'm sorry. I've forgotten. How long have you been doing scd again? Someone told me at the start of scd that a good dan doctor won't prescribe chelation until the gut has cleaned up even a little bit. Also, what medication has your doctor prescribed for the chelation therapy? Transdermal methods are much easier on the gut, and less likely to cause yeast problems. Just make sure to be very diligent aout no dietary infractions happening. You can also do some antifungals during that time. Oil of oregano, carrot juice w/ fresh garlic, and grapefruit seed extract are all good, and I've heard that you should rotate them. We've not done this yet, but may be starting it up. My dan dietician said that rotating between the three about every month is sufficient for most people. I hope this helps. Let me know if you have any more questions about the chelation and scd. Meleah Re: how long int first stages? Hi Patti, This is good advice. It is so hard for me to see a regression in behavior-- we have been working so hard with him. I just need to be patient and have faith!! We will definitely stay on cooked fruits and veggies for a while. A few more questions.... Afer checking out what supplements that Ben is taking, I see that the only one that is not SCD-legal is his probiotic -- KyoDophalis--it has potato starch. I saw from the list on PecanBread.com what commercially available brands are SCD-legal. The reason that we have been taking this brand is because our doctor (www.drkaslow.com) said that it attaches well to the intestinal wall. Do you know if the SCDopholis brand also attaches well? Have any experience with combining SCD diet with chelation therapy. I've heard that chelation kicks up yeast. My doctor has already prescribed a chelation regime for him, but we have been waiting to get started until we had the diet. I think that my plan is to keep him on cooked fruits and vegetables throughout the chelation process-- which is likely to last a couple of months at least. Any thoughts of any special that I should be doing? Regards, Martha > > Hi Martha, > > You have to use your imagination a little bit to think about what's actually going on in his gut. Yes, you are no doubt seeing some die-off symptoms right now.... so keep in mind that there were actual colonies of overgrown bad bacteria attached to his gut wall. It's those colonies that damaged his gut by hooking on and perforating the gut lining with their nasty little " tentacles " . > > As those colonies begin to die-off (and this does not necessarily happen all at once, in just the first week or so.... it may take some time to get ALL of them gone), they will detach from the lining of your son's gut and pass on through. What's left behind then, is tender, raw new tissue.... that needs to be treated ULTRA gently until it can fully heal and a new biofilm of GOOD, balance flora builds up to become a new protective layer. > > This is one HUGE reason to stick with EASY TO DIGEST foods.... all peeled, de-seeded and cooked.... for a while. Brand new healthy tissue needs to be treated with very tender loving care. He may not have had much in the way of " obvious " GI symptoms.... but leaky gut definitely IS a GI symptom so there is a lot of healing that needs to happen. If you rush, you'll regret it later. > > It's really hard to say " how long " for any one kid (or adult)..... so just hang in there and take it slow and easy. This is not a race. It may be many months before he is really ready for things like raw foods and whole nuts, etc. > > Stick with us.... we're here for you. Keep us informed of what you observe in terms of behavior, physical or GI stuff. > > Patti > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2006 Report Share Posted December 4, 2006 Hey Maleah, That's what I was worried about-- not to mention the fact that when we start the chelation therapy we won't know whether the behavior was due to the chelation kicking up yeast or a food sensitivity in the diet. We just started on the diet about 2.5 weeks ago so his gut definitely hasn't had time to heal. The medication is oral. How is chelation going for you? Any interesting results? He is taking Nystatin right now--do you think I should keep up with that or use the alternatives you suggest. Rotating makes sense to keep the beasts off guard. Martha > > Martha, > I'm going to throw my two cents in here because my son is doing chelation therapy right now. You are right to wait to start chelation until his gut has some time to heal using scd. I'm sorry. I've forgotten. How long have you been doing scd again? Someone told me at the start of scd that a good dan doctor won't prescribe chelation until the gut has cleaned up even a little bit. Also, what medication has your doctor prescribed for the chelation therapy? Transdermal methods are much easier on the gut, and less likely to cause yeast problems. Just make sure to be very diligent aout no dietary infractions happening. You can also do some antifungals during that time. Oil of oregano, carrot juice w/ fresh garlic, and grapefruit seed extract are all good, and I've heard that you should rotate them. We've not done this yet, but may be starting it up. My dan dietician said that rotating between the three about every month is sufficient for most people. I hope this helps. Let me know if you have any more questions about the chelation and scd. > Meleah > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2006 Report Share Posted December 4, 2006 We have seen great results with the chelation so far, and we've only done one round(8 weeks; doing 3 days on and four days off). We saw great results. We always chelated on Fri., Sat., and Sun. Every Sat. or Sun., we'd see him start doing something that he'd never done before developmental, speech, or other progress. We were scd for about 3 1/2 months before beginning. I would hold off on the chelation if you've only been scd for 2.5 weeks. Also, I'm curious as to why your doctor recommended oral chelation. Did he say why oral over transdermal? If not, I'd ask him why. Transdermal is much easier on the body. In terms of yeast, you should definitely read through some of the pecan bread files about Nistatin. It seems to go well for some people, but when they discontinue it, the yeast come back with a vengence. We've never used a prescription antifungal, but we did talk about it with the dan dietician today...she works in our dan doctor's office. She told me that if I ever seem concerned about yeast, I should try the oil of oregano, grapefruit seed extract, and carrot juice w/ garlic first. The prescription would be given as a last result if all else failed to get rid of it. So my personal opinion is, yes, drop the Nistatin. If you have a juicer, you could start with the carrot juice remedy right away. You juice two raw carrots and juice one garlic clove. That's it. I know that others here use oil of oregano and grapefruit seed extract(gse) also. They would definitely recommend scd legal, high quality brands if you ask. Hope this helps. Ask anything else you want. I'm glad to answer. Meleah Re: how long int first stages? Hey Maleah, That's what I was worried about-- not to mention the fact that when we start the chelation therapy we won't know whether the behavior was due to the chelation kicking up yeast or a food sensitivity in the diet. We just started on the diet about 2.5 weeks ago so his gut definitely hasn't had time to heal. The medication is oral. How is chelation going for you? Any interesting results? He is taking Nystatin right now--do you think I should keep up with that or use the alternatives you suggest. Rotating makes sense to keep the beasts off guard. Martha > > Martha, > I'm going to throw my two cents in here because my son is doing chelation therapy right now. You are right to wait to start chelation until his gut has some time to heal using scd. I'm sorry. I've forgotten. How long have you been doing scd again? Someone told me at the start of scd that a good dan doctor won't prescribe chelation until the gut has cleaned up even a little bit. Also, what medication has your doctor prescribed for the chelation therapy? Transdermal methods are much easier on the gut, and less likely to cause yeast problems. Just make sure to be very diligent aout no dietary infractions happening. You can also do some antifungals during that time. Oil of oregano, carrot juice w/ fresh garlic, and grapefruit seed extract are all good, and I've heard that you should rotate them. We've not done this yet, but may be starting it up. My dan dietician said that rotating between the three about every month is sufficient for most people. I hope this helps. Let me know if you have any more questions about the chelation and scd. > Meleah > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2006 Report Share Posted December 4, 2006 Hey Meleah, Who is your DAN doc? Just curious... Great to hear that chelation is going well for you guys! Our doctor has had a lot of good experience with chelation in general and with oral chelators in particular. Since he comes well recommended, I will trust him on this one for the moment, but definitely ask him when I see him. Please tell me more about dosing (amount and frequency for the carrot and garlic juice. i have been worried about building resistance to yeast with Nystatin. I will go out and get a juicer tonight! Thanks for all the info! Martha > > We have seen great results with the chelation so far, and we've only done one round(8 weeks; doing 3 days on and four days off). We saw great results. We always chelated on Fri., Sat., and Sun. Every Sat. or Sun., we'd see him start doing something that he'd never done before developmental, speech, or other progress. We were scd for about 3 1/2 months before beginning. I would hold off on the chelation if you've only been scd for 2.5 weeks. Also, I'm curious as to why your doctor recommended oral chelation. Did he say why oral over transdermal? If not, I'd ask him why. Transdermal is much easier on the body. ... <<original post clipped for length by moderator... >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 2006 Report Share Posted December 5, 2006 Martha, Our dan doctor is Dr. O'Hara, and she is awesome. We're in North Carolina, and she's in Connecticut. We do most everything through email or phone. He saw her for the initial visit in July while she was in our town speaking at an event. She wants us to do an annual in person visit, but otherwise we can do everything through email and phone unless we run into a major problem. I don't know a whole lot about the carrot juice and garlic antifungal treatment. I know that it is two raw carrots to one garlic clove. You can check the files here for more info, and I think that Sheila is really up on the treatment. I'd also go ahead and order the oil of oregano and grapefruit seed extract to have on hand for the rotation. I can't recommend any brands because I've never bought any, but I know other people here have used them. Can someone please recommend brands for Martha? Meleah Re: how long int first stages? Hey Meleah, Who is your DAN doc? Just curious... Great to hear that chelation is going well for you guys! Our doctor has had a lot of good experience with chelation in general and with oral chelators in particular. Since he comes well recommended, I will trust him on this one for the moment, but definitely ask him when I see him. Please tell me more about dosing (amount and frequency for the carrot and garlic juice. i have been worried about building resistance to yeast with Nystatin. I will go out and get a juicer tonight! Thanks for all the info! Martha > > We have seen great results with the chelation so far, and we've only done one round(8 weeks; doing 3 days on and four days off). We saw great results. We always chelated on Fri., Sat., and Sun. Every Sat. or Sun., we'd see him start doing something that he'd never done before developmental, speech, or other progress. We were scd for about 3 1/2 months before beginning. I would hold off on the chelation if you've only been scd for 2.5 weeks. Also, I'm curious as to why your doctor recommended oral chelation. Did he say why oral over transdermal? If not, I'd ask him why. Transdermal is much easier on the body. ... <<original post clipped for length by moderator... >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 2006 Report Share Posted December 5, 2006 She sounds great!!! I will consider her if it turns out that we aren't making progress with our current doc. I read up on the oil of oregano in the files last night...it sounds like it might be too harsh for a young child. Folks were suggesting oregano tea instead. Does anyone have any info or comments about this? I was wondering if it would have the same effect taking oregano tea as making a vegetable broth with oregano...anyone know anything about this? Robin--what do you do about dosing for the carrot juice--drink the juice from two carrots and one clove of garlic in a day? Let me know... Martha robin wrote: > Martha, > Our dan doctor is Dr. O'Hara, and she is awesome. We're in North > Carolina, and she's in Connecticut. We do most everything through > email or phone. He saw her for the initial visit in July while she was > in our town speaking at an event. She wants us to do an annual in > person visit, but otherwise we can do everything through email and > phone unless we run into a major problem. I don't know a whole lot > about the carrot juice and garlic antifungal treatment. I know that it > is two raw carrots to one garlic clove. You can check the files here > for more info, and I think that Sheila is really up on the treatment. > I'd also go ahead and order the oil of oregano and grapefruit seed > extract to have on hand for the rotation. I can't recommend any brands > because I've never bought any, but I know other people here have used > them. Can someone please recommend brands for Martha? > Meleah > > Re: how long int first stages? > > Hey Meleah, > > Who is your DAN doc? Just curious... > > Great to hear that chelation is going well for you guys! Our doctor > has had a lot of good experience with chelation in general and with > oral chelators in particular. Since he comes well recommended, I will > trust him on this one for the moment, but definitely ask him when I > see him. > > Please tell me more about dosing (amount and frequency for the carrot > and garlic juice. i have been worried about building resistance to > yeast with Nystatin. I will go out and get a juicer tonight! > > Thanks for all the info! > > Martha > > > > > > We have seen great results with the chelation so far, and we've only > done one round(8 weeks; doing 3 days on and four days off). We saw > great results. We always chelated on Fri., Sat., and Sun. Every Sat. > or Sun., we'd see him start doing something that he'd never done > before developmental, speech, or other progress. We were scd for > about 3 1/2 months before beginning. I would hold off on the > chelation if you've only been scd for 2.5 weeks. Also, I'm curious as > to why your doctor recommended oral chelation. Did he say why oral > over transdermal? If not, I'd ask him why. Transdermal is much > easier on the body. ... > <<original post clipped for length by moderator... >> > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 2006 Report Share Posted December 5, 2006 Hi Jenn, << Everyone afraid to try the goat yogurt must read this. I'm sure there are articles to back me up as well. The casein in the goat yogurt has been reduced by the process of making yogurt. The proteins are broken down more so than if if were just goat milk that was going to be consumed. It is the safest " casein tester " there is. >> The milk proteins in goat milk are smaller than cow milk protein; that is one reason why the goat milk is used. When we make milk into yogurt (SCD yogurt) it changes the shape of the casein molecule from 3 dimensional shape (more complex and harder to digest) to 2 dimensional shape (much easier for the body to digest). << If those who try the goat yogurt do not tolerate it, then casein usually is NOT introduced. >> If someone still has trouble with the goat yogurt (and they know beacuse they started with a tiny amount, (1/8 tsp) so it isn't a die off recation) they can then try dripping the yogurt. This removes some of the galactose and lactic acid which bothers a few individuals. << If you're that worried try the nut yogurt for a while like we did. Just hoping to lend some encouragement here. Jenn & K >> That's really great advice, Jenn Sheila, SCD Feb. 2001, UC 22yrs mom of and Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 6, 2006 Report Share Posted December 6, 2006 Hi Martha, << I read up on the oil of oregano in the files last night...it sounds like it might be too harsh for a young child. Folks were suggesting oregano tea instead. Does anyone have any info or comments about this? I was wondering if it would have the same effect taking oregano tea as making a vegetable broth with oregano...anyone know anything about this? >> Oil of oregano is pretty strong. I did take it full strength a couple of drops under the tongue combined with a Yeast enzyme (I used candizyme). The brand was " Enerex " . You can dilute the oregano in water or juice. It doesn't taste nasty it is just strong tasting kind of " minty/spicy " if I recall correctly. If you try it you could started diluted and work up the amounts to minimize initial die off and gradually increase it. I do not know if you'll get the antifungal effects with the tea or broth with oregano. The antifungal action is from the oil collected from the leaves and the tea and broth would be extremely diluted. It probably wouldn't hurt, but it may not have the desired effect. << Robin - what do you do about dosing for the carrot juice--drink the juice from two carrots and one clove of garlic in a day? Let me know.>> The instructions for the carrot/garlic juice are at http://health.groups.yahoo.com/group/pecanbread/files/ I did small amounts of this combo twice a day. I think I used 1 large carrot and 1 garlic clove. I diluted it the first couple of times with water. It isn't nice tasting so I stopped diluting it after a while and drank it straight, combined with the yeast enzyme. Then quickly had a glass of water after. Sheila, SCD Feb., 2001, UC 22yrs mom of and Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 6, 2006 Report Share Posted December 6, 2006 This is great! Thanks Sheila! Do you know anything about the grape seed extract? Regards, Martha Sheila Trenholm wrote: > Hi Martha, > > << I read up on the oil of oregano in the files last night...it sounds > like it might be too harsh for a young child. Folks were suggesting > oregano tea instead. Does anyone have any info or comments about this? > I was wondering if it would have the same effect taking oregano tea as > making a vegetable broth with oregano...anyone know anything about > this? >> > > Oil of oregano is pretty strong. I did take it full strength a couple > of drops under the tongue combined with a Yeast enzyme (I used > candizyme). The brand was " Enerex " . You can dilute the oregano in > water or juice. It doesn't taste nasty it is just strong tasting kind > of " minty/spicy " if I recall correctly. If you try it you could > started diluted and work up the amounts to minimize initial die off and > gradually increase it. I do not know if you'll get the antifungal > effects with the tea or broth with oregano. The antifungal action is > from the oil collected from the leaves and the tea and broth would be > extremely diluted. It probably wouldn't hurt, but it may not have the > desired effect. > > << Robin - what do you do about dosing for the carrot juice--drink the > juice from two carrots and one clove of garlic in a day? Let me know.>> > > The instructions for the carrot/garlic juice are at > http://health.groups.yahoo.com/group/pecanbread/files/ > <http://health.groups.yahoo.com/group/pecanbread/files/> > > I did small amounts of this combo twice a day. I think I used 1 large > carrot and 1 garlic clove. I diluted it the first couple of times with > water. It isn't nice tasting so I stopped diluting it after a while > and drank it straight, combined with the yeast enzyme. Then quickly > had a glass of water after. > > Sheila, SCD Feb., 2001, UC 22yrs > mom of and > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 6, 2006 Report Share Posted December 6, 2006 Grape seed extract is an antioxidant.... not an antifungal. Maybe you meant grapefruit seed extract? Patti Re: Re: how long int first stages? This is great! Thanks Sheila! Do you know anything about the grape seed extract? Regards, Martha Recent Activity a.. 20New Members Visit Your Group Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 6, 2006 Report Share Posted December 6, 2006 Thanks Patti!! Patti wrote: > Grape seed extract is an antioxidant.... not an antifungal. > > Maybe you meant grapefruit seed extract? > > Patti > > Re: Re: how long int first stages? > > This is great! Thanks Sheila! > > Do you know anything about the grape seed extract? > > Regards, > Martha > > Recent Activity > a.. 20New Members > Visit Your Group > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 7, 2006 Report Share Posted December 7, 2006 Hi Martha, << Do you know anything about the grape seed extract? >> Since we're talking about antifungals I'll guess you mean grapefruit seed extract. I did use grapefruit seed extract (GSE) in combination with the yeast enzyme. I tried it on its own first and then with the enzyme. There was a greater effect with both the GSE and the enzyme. It is strong tasting but not as " harsh " as the raw garlic in the carrot/garlic juice. I would rotate GSE, carrot/garlic juice and Oil of oregano. When I added the yeast enzyme to the mix I had increased die off and finally seemed to make 'head-way' with some very hardy yeast. Eventually I was able to drop the antifungals and just take the yeast enzyme. When the die off was intense I took epsom salt baths and made the epsom salt lotion. I don't take any of these now. I am taking, CLO, S. boulardii ( to fight harmful yeast and aid the good bacteria in yogurt), and yogurt made from Yogurmet starter and GI ProHealth. I started taking both types of yogurt so that I could get L. acidophilus and L. casei along with S. thermophilus and L. bulgaricus. Sheila, SCD Feb., 2001, UC 22yrs mom of and Quote Link to comment Share on other sites More sharing options...
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