scd without tree nuts or peanuts?

[Guest guest]

I sent the following to the SCDinfo group, and members there suggested that we

join your listserve so I could ask the same questions. Thanks in advance for

all responses!

We are new members to the group, our 8 year old son has been on the diet for

about 4 weeks. Thank goodness we've seen enough progress in that time that we

think he will be able to avoid surgery for UC, which was what we were facing in

October because he was so ill and required 2 transfusions. He is cooperating

with the diet without a fuss because he says it makes him feel better.

In addition to the UC, our son also has a severe, life-threatening allergy to

peanuts and tree nuts. Is there anyone on the list who has been able to adhere

to the diet without using nuts or nut flour? Are there any ways to make baked

goods without nuts? Before starting the SCD he was on a gf/cf diet and had never

eaten eggs, but we hope it may be possible to try yogurt and eggs once he is in

remission.

Thanks again!

(celiac), mom to MM, 8, who was diagnosed with UC 20 months ago,

currently takes prednisolone (tapering) and azulfidine, discontinued treatment

with Remicade.

[Guest guest]

Welcome to the group ,

<< We are new members to the group, our 8 year old son has been on

the diet for about 4 weeks. Thank goodness we've seen enough progress

in that time that we think he will be able to avoid surgery for UC,

which was what we were facing in October because he was so ill and

required 2 transfusions. He is cooperating with the diet without a

fuss because he says it makes him feel better. >>

THat is quite fantastic! I developed UC as a preteen - it was a very

scary time for me and my family. I am thrilled to know that he is

able to avoid the surgery - you must be quite relieved!

<< In addition to the UC, our son also has a severe, life-threatening

allergy to peanuts and tree nuts. Is there anyone on the list who has

been able to adhere to the diet without using nuts or nut flour? Are

there any ways to make baked goods without nuts? >>

There have been quite a few with nut allergies. I don't know if any

of those families are current posters/reading the list daily. If not

you can search the pecanbread archives for threads on " nut free " by

using the key words " nut free " in the 'Search' engine at

http://health.groups.yahoo.com/group/pecanbread/message/59978 or an

advanced search at

http://health.groups.yahoo.com/group/pecanbread/msearch_adv

Some of the nut free recipes from http://pecanbread.com/recipes.html

include chicken pancakes, sneaky veggie pancakes, pumpkin pie filling

<< Before starting the SCD he was on a gf/cf diet and had never eaten

eggs, but we hope it may be possible to try yogurt and eggs once he

is in remission. >>

A number of people have been able to succesfully introduce eggs.

Some who have had trouble with regular store egs find that they are

able to eat free range chicken eggs (eggs from happy chickens) or

duck eggs. The recipes I posted above are egg recipes so you'll have

to wait until he's ready for eggs. I get terrible stomach

pains/immediate inflammation in the GI tract when I eat the store

eggs but I find that free range chicken eggs are fine.

<< Thanks again!

>

> (celiac), mom to MM, 8, who was diagnosed with UC 20 months

ago, currently takes prednisolone (tapering) and azulfidine,

discontinued treatment with Remicade. >>

How is he doing with tapering off the prednisolone? If he's have any

trouble weaning from it let me know, I've got a great weaning

schedule for steroids somewhere here.

Sheila, SCD Feb. 2001, UC 22yrs

mom of and

[Guest guest]

Thanks so much Sheila. We're tapering 1/4 tsp every 4-5 days, but know that as

he gets down below 10 mg it will be harder, we were able to get him off for 6

months last spring but he had to go back on in September. The syrup is very

sweet so I'm sure it's not good for the diet but he needs it right now. I'd

love to hear about your ideas for tapering. Thanks for your encouragement and

other suggestions too.

(celiac), mom to MM, 8, SCD 5 weeks, 15 mg pred, 1000 mg azulfadine

[Guest guest]

Hi ,

Do you know what is in the formulation of prednisolone that he is

taking? You may be able to have it formulated with legal supplement

fillers at a compounding pharmacy.

Sheila, SCD Feb. 2001, UC 23 yrs

mom of E and Dan

<< Thanks so much Sheila. We're tapering 1/4 tsp every 4-5 days, but

know that as he gets down below 10 mg it will be harder, we were able

to get him off for 6 months last spring but he had to go back on in

September. The syrup is very sweet so I'm sure it's not good for the

diet but he needs it right now. >>

[Guest guest]

Hi Sheila,

My son is taking Hi-Tech Pharmacal Prednisolone Sodium Phosphate, USP oral

solution, 15 mg/5 ml. He's down to 5 ml/day and doing ok. Thanks for the

suggestion about compounding this, I will check with his nutritional doctor to

see if he knows a compounding pharmacy that will do this.

(celiac) mom to 8 yr old ds with uc 21 months, SCD 5 weeks