NANCY dont know where to begin

September 3, 2002

Gosh I don't know where to begin. I am in a major flare right now

and I don't know if it is the stress from my dads death last month

and still dealing with all of that or if it is from the procedure I

had last week. They shot some stuff in my neck to try and get the

disc off the nerves and they sedated me in the operating room so no

telling what else crawled inside my body. HAHA. But right now my

right ear looks like Dumbos and is a deathly red and purple color

and hurts like H-------------------l. Also my throat and chest are

on fire and my breathing is getting harder. I am the same place I

was in a year ago. I ended in ICU with this same symptoms on 1000 mg

of pred drip. And that was right after I had my ear biopsy so I am

thinking any type of procedure to your body must bring on flares. I

am still on the cytoxan but no predisone. I called my Specialist on

RP (YEA RIGHT!!) who is 2 hours away in Houston and I said I am on

my way so you can see my red ear, he said just go to your Dr. and

have him call me. Which I did and my Dr. here is scared to death of

this and doesnt know what to do so the Houston Dr. said to give me a

medro pak. I really dont think it will help but who knows. I told

him I better not end up in the hospital again. I cant believe a year

has passed since I have been diagnosed with this. BOY TIME FLIES

WHEN YOU ARE HAVING FUN HAHHAHA I have been sick and house bound

almost for a whole year.Oh well I guess I had nothing else better to

do. I have been trying to read all the posts but right now my hand

is still numb

and hurting go figure and my eyes get blurry from still high sugars

and now with my ears the left is crying also I can hardly talk on

the phone. SO I AM JUST GOING TO STAND IN THE ROAD AND HOLLER AT

EVERYONE GOING BY BEFORE I GO COMPLETELY STIRR CRAZY.

Since I cant breathe laying down I guess I will spend the night in

my chair in front of this precious box.

Oh well enough of my ranting , a quick hello to all the newbies and

a Happy Birthday to everyone I have missed.Luv and hugs from Texas

NANCY

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