Re: Welcome newcomer Anne!

[Guest guest]

Anne,

Welcome to the group! Sorry to hear that you have RP. Thank goodness they have diagnosed you in the early stages and maybe they will be able to get a better handle on it. As for the antibiotic treatment I think there are some in the group who are on it. I am sure they will get back to you about it too! You will find that we are all here to help each other. Never feel like anything you bring up will cause problems. We are a pretty open minded group here.

Please feel free to post any time you like. We are here for you any time. Looking forward to getting to know you better.

Lots of love

Glenda

Hi, everyone. I was diagnosed with RP and Behcet's syndrome last week (by a well-knownRP doc in Boston). My symptoms are pretty mild right now, but I've been experiencing flaresand remissions for the past 21 months (since the birth of my child). I read on a patient web-sitethat some RP patients have found the antibiotic protocol (minocin) to be an effective treatment for RP. Doany of you have experience with it or know what doctors might be knowledgeable about RPand AP? I know that this treatment is controversial in some circles, so I hope I'm notstirring up any bad feelings by asking this!! I look forward to getting to know you all.Best,Anne

[Guest guest]

Welcome to the group, Anne. You will really love it here. I was just dx with RP in March. Everyone here makes you feel so welcome. Take care.

Love, Sharon