Addresses

[Guest guest]

This post is for all our new Members that have joint the greatest support Group on Line. Please Read and Replay ASAP.

Hallo all new members !!!!

I would like to take the time to say to each of you " Herzlich Willkommen " to this fine group.

I hope you all will post real soon so we do get to know each other a little better. I would like to tell you all about this group here.

My name is Heidi also know as Mrs. Nosey.

It is my Husband that has this darn RP. Right

now he is doing great. He is down on his Prednison to 0 mg a day. He also takes 800mg

of Ibuprofen 3 x a day. Then he takes 2 different stomach medicine to protect his stomach. The are Prilosec 2x a day and Cytotec 100mg 4 x a day. He also takes Vitamins : Multy Vat. 1 x day, E 1000mg in the morning E 400mg in the evening, B12, 2 Extra Strength Tums ( Sugar Free ) 3 x a day.This is for Calcium plus it does not hurt the stomach.The most important thing is do take your medicine and Vitamins ON TIME EVERYDAY LIKE YOU SHOULD !!!!!!! And never

skip !!!!! Ja at times you might get to feel better and think O I am doing great today I wont need it today. WRONG !!!!!!! Most of the RP'ers need

to take it all the time in order to keep it in a sleeping mood. Check with your DRs. OK Plus remember when you been on a high dose of Prednison and starting to cut down you need to do it very SLOW !!!!! The mayo clinic told us once you are down to 10 mg then go down only 1 mg a month. The Prednison does come in the 1 mg dose!!!!

Don"s RP has been in sleeping mood for quit a few months now. But believe me he does NOT miss any medicine or Vitamins. Now to the rest of the offers the group has. We have a address list of all our members here. If you would like to have one I be happy to send you one. Here is how you can get one. Yup, there is a catch too this LOL All you need to do is send me your

Full name with home address ,Phone # , Birthday ( do not have to have the year ) your Email addy . I in turn will print you one and send it to you true slow snail mail. But the most important thing is you got to do is remember

YOU MAY NOT GIVE OUT ANY OF THIS INFORMATION TO ANY ONE OUT SIDE THIS GROUP !!!!!!!!!! This is only Information for the group use. So here is my addy .

heidi@...

Believe me it is so nice to have you might even get a Phone call from our Phone Bandit here . LOL Ok I just hope and pray you all keep posting and ask all the ? you have. We talk about the whole person here not just RP. We cry and laugh together. Yup, we like jokes too. LOL

Your Family member also can post if the like.

Well that all from Mrs. Nosey right now.

Sending you all a warm gentle Hug from Okie

land.

Heidi

DISCLAIMER!!WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU

[Guest guest]

Dear Heidi,

I am one of the new guys in the group and already I am

eagar to learn more about all the friends I am meeting

here.

Who am I?

Estes Sr

201 Yorktowne Drive

Winchester, KY

7/21/40

I am retiring July 31 from my second career. I have

been the Assistant Director of the Lexington Public

Library for over 20 years.

Before coming here I spent 21 years in the Army. After

seven years enlisted time in Supply and Aviation

Maintenance I went to OCS and was commissioned in May

1964. I was in the Infantry in Logistics until my

first year in RVN and then flight school. I was a

test pilot, maintenance officer and Assault Company XO

during my second year in RVN. After RVN and college I

transferred to the Finance Corp and spent 7 years as a

Finance and Accounting officer. I retired on Oct 1

1979 and came to the Library in Jan 1980.

I've been married 3 times. I have 5 children Kay,

Chip, Steve, BJ, Mark and two stepchildren and

. My wife and I have been together for 12

years.

That is my resume. Can I join RP?

__________________________________________________

[Guest guest]

In a message dated 7/4/02 6:46:19 AM Pacific Daylight Time,

bobestes72140@... writes:

<<

That is my resume. Can I join RP?

>>

Yes, you can Bob....BUT,, you have to promise to go to the DR. LOL SOON!!!!

[Guest guest]

Bob, thanks for your resume.. It is so nice to get to know everyone. That's

what makes us so close.

I am married to Rich (for 28 years) have three daughters, ,

and . I have one grandaughter, Makeila.

I live in Manteca, Calif, which is a little cow town between Sacramento and

San Francisco.

I was diagnosed in 1999 with RP but had my first real flare in 1998 and I am

quite sure I have had it much longer.

I was an administrative asst for a home for mentally disabled adults and had

to quit because of fibromyalgia. That was in 1996. I loved my job and love

working with the clients.

My RP mainly affects my nose, ears and ribs. But I have found out now it has

affected my aortic valve and will be having it replaced the end of the month.

Other than that I have been doing pretty well. I am now down to 6mg of pred

and keeping my fingers crossed that I don't flare. I KNOW I can make it to

5mg. LOL

Thanks again for letting us know a little about you. Hope you have a

wonderful holiday.

[Guest guest]

Well Bob your in this group now and hope we can help you as much as you

need. Keep posting and reading you will learn. You do need a better Dr. let

me tell you.

Don't give up you are paying his salary and you tell him what you need .OK

He is working for you. And in this

group you will learn what you need. Please get to a DR. tomorrow so you can

stop this flare NOW !!!!!!!

DON " T WAIT !!!!!!!! Got a ? for you .LOL you send your addy and I thank you

for that but you forgot your Phone # !!!!!!! I will print you a addy list

this week and send it to you ok. Bye for now and GO TO THE DR

TOMORROW OK !!!!!!!

Heidi

> Dear Heidi,

>

> I am one of the new guys in the group and already I am

> eagar to learn more about all the friends I am meeting

> here.

>

> Who am I?

>

> Estes Sr

> 201 Yorktowne Drive

> Winchester, KY

>

> 7/21/40

>

> I am retiring July 31 from my second career. I have

> been the Assistant Director of the Lexington Public

> Library for over 20 years.

>

> Before coming here I spent 21 years in the Army. After

> seven years enlisted time in Supply and Aviation

> Maintenance I went to OCS and was commissioned in May

> 1964. I was in the Infantry in Logistics until my

> first year in RVN and then flight school. I was a

> test pilot, maintenance officer and Assault Company XO

> during my second year in RVN. After RVN and college I

> transferred to the Finance Corp and spent 7 years as a

> Finance and Accounting officer. I retired on Oct 1

> 1979 and came to the Library in Jan 1980.

>

> I've been married 3 times. I have 5 children Kay,

> Chip, Steve, BJ, Mark and two stepchildren and

> . My wife and I have been together for 12

> years.

>

> That is my resume. Can I join RP?

>

> __________________________________________________

>

[Guest guest]

--- Heidi

We cancelled our land line. Since cable internet

telemarketers were the only ones who ever called us on

it. We are just over the County line here in

County next to Fayette County so our land line was

long distance to everyone we knew in Lexington and we

wereLD to them. The cell phone had free LD and it was

local to lexington.

> New cell for Ret.

859 231 5540 Work 'til July 31

859 576 4595 Cell 'til July 31

__________________________________________________

[Guest guest]

HI Ann , It will be so great to get to know you.

Here is what are Group has to offer you and

all our new Members. I hope to hear from you soon again. Hang in there because here you will learn so much more about RP. And this will help you so much. Sorry I cant answer your first ? because Don does not take antibiotics. But I am sure some of our Members here will help you with it. OK

Sending you a gentle Hug from Oklahoma

Heidi

Hallo all new members !!!!

I would like to take the time to say to each of you " Herzlich Willkommen " to this fine group.

I hope you all will post real soon so we do get to know each other a little better. I would like to tell you all about this group here.

My name is Heidi also know as Mrs. Nosey.

It is my Husband that has this darn RP. Right

now he is doing great. He is down on his Prednison to 0mg a day. He also takes 800mg

of Ibuprofen 3 x a day. Then he takes 2 different stomach medicine to protect his stomach. The are Prilosec 2x a day and Cytotec 100mg 4 x a day. He also takes Vitamins : Multy Vat. 1 x day, E 1000mg in the morning E 400mg in the evening, B12, 2 Extra Strength Tums ( Sugar Free ) 3 x a day.This is for Calcium plus it does not hurt the stomach.The most important thing is do take your medicine and Vitamins ON TIME EVERYDAY LIKE YOU SHOULD !!!!!!! And never

skip !!!!! Ja at times you might get to feel better and think O I am doing great today I wont need it today. WRONG !!!!!!! Most of the RP'ers need

to take it all the time in order to keep it in a sleeping mood. Check with your DRs. OK Plus remember when you been on a high dose of Prednison and starting to cut down you need to do it very SLOW !!!!! The mayo clinic told us once you are down to 10 mg then go down only 1 mg a month. The Prednison does come in the 1 mg dose!!!!

Don"s RP has been in sleeping mood for quit a few months now. But believe me he does NOT miss any medicine or Vitamins. Now to the rest of the offers the group has. We have a address list of all our members here. If you would like to have one I be happy to send you one. Here is how you can get one. Yup, there is a catch too this LOL All you need to do is send me your

Full name with home address ,Phone # , Birthday ( do not have to have the year ) your Email addy . I in turn will print you one and send it to you true slow snail mail. But the most important thing is you got to do is remember

YOU MAY NOT GIVE OUT ANY OF THIS INFORMATION TO ANY ONE OUT SIDE THIS GROUP !!!!!!!!!! This is only Information for the group use. So here is my addy .

heidi@...

Believe me it is so nice to have you might even get a Phone call from our Phone Bandit here . LOL Ok I just hope and pray you all keep posting and ask all the ? you have. We talk about the whole person here not just RP. We cry and laugh together. Yup, we like jokes too. LOL

Your Family member also can post if the like.

Well that all from Mrs. Nosey right now.

Sending you all a warm gentle Hug from Okie

land.

Heidi

DISCLAIMER!!WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU

[Guest guest]

Hi Scarlet so nice to hear from you just so sorry you got that RP too. But hang in there maybe you be like Don here and get it under control sooner. I thought you also like to know what this group has to offer you and your Family. Please let us know a little about you self and your family. Yup, I am the nosey in this group. LOL Till later God Bless you and hope you post soon again.

Gentle Hug from Heidi

This post is for all our new Members that have joint the greatest support Group on Line. Please Read and Replay ASAP.

Hallo all new members !!!!

I would like to take the time to say to each of you " Herzlich Willkommen " to this fine group.

I hope you all will post real soon so we do get to know each other a little better. I would like to tell you all about this group here.

My name is Heidi also know as Mrs. Nosey.

It is my Husband that has this darn RP. Right

now he is doing great. He is down on his Prednison to 0 mg a day. He also takes 800mg

of Ibuprofen 3 x a day. Then he takes 2 different stomach medicine to protect his stomach. The are Prilosec 2x a day and Cytotec 100mg 4 x a day. He also takes Vitamins : Multy Vat. 1 x day, E 1000mg in the morning E 400mg in the evening, B12, 2 Extra Strength Tums ( Sugar Free ) 3 x a day.This is for Calcium plus it does not hurt the stomach.The most important thing is do take your medicine and Vitamins ON TIME EVERYDAY LIKE YOU SHOULD !!!!!!! And never

skip !!!!! Ja at times you might get to feel better and think O I am doing great today I wont need it today. WRONG !!!!!!! Most of the RP'ers need

to take it all the time in order to keep it in a sleeping mood. Check with your DRs. OK Plus remember when you been on a high dose of Prednison and starting to cut down you need to do it very SLOW !!!!! The mayo clinic told us once you are down to 10 mg then go down only 1 mg a month. The Prednison does come in the 1 mg dose!!!!

Don"s RP has been in sleeping mood for quit a few months now. But believe me he does NOT miss any medicine or Vitamins. Now to the rest of the offers the group has. We have a address list of all our members here. If you would like to have one I be happy to send you one. Here is how you can get one. Yup, there is a catch too this LOL All you need to do is send me your

Full name with home address ,Phone # , Birthday ( do not have to have the year ) your Email addy . I in turn will print you one and send it to you true slow snail mail. But the most important thing is you got to do is remember

YOU MAY NOT GIVE OUT ANY OF THIS INFORMATION TO ANY ONE OUT SIDE THIS GROUP !!!!!!!!!! This is only Information for the group use. So here is my addy .

heidi@...

Believe me it is so nice to have you might even get a Phone call from our Phone Bandit here . LOL Ok I just hope and pray you all keep posting and ask all the ? you have. We talk about the whole person here not just RP. We cry and laugh together. Yup, we like jokes too. LOL

Your Family member also can post if the like.

Well that all from Mrs. Nosey right now.

Sending you all a warm gentle Hug from Okie

land.

Heidi

DISCLAIMER!!WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU

[Guest guest]

Hi Heidi,

Thanks for the warm welcome. So good to hear from people who are going through similar experiences. Sorry to hear about your husband and hope all is going well now.

I live in Charlottesville VA with my Husband Steve. We are still "newlyweds" as some would say. We have been married over a year now. He has been wonderful throughout the entire RP ordeal and I'm very fortunate to have a husband who is so supportive. He sometimes reminds me when things are going wrong with my health, especially since many of my symptoms start out as allergies or sinus infections. (I like to live in "denial" too) Only because things are going so well right now. Last week was just a reminder that I do need to be more conscious and listen to my body. So far so good!!

Will keep you posted!!! Hope your husband is doing well too!!

Addresses

Hi Scarlet so nice to hear from you just so sorry you got that RP too. But hang in there maybe you be like Don here and get it under control sooner. I thought you also like to know what this group has to offer you and your Family. Please let us know a little about you self and your family. Yup, I am the nosey in this group. LOL Till later God Bless you and hope you post soon again.

Gentle Hug from Heidi

This post is for all our new Members that have joint the greatest support Group on Line. Please Read and Replay ASAP.

Hallo all new members !!!!

I would like to take the time to say to each of you " Herzlich Willkommen " to this fine group.

I hope you all will post real soon so we do get to know each other a little better. I would like to tell you all about this group here.

My name is Heidi also know as Mrs. Nosey.

It is my Husband that has this darn RP. Right

now he is doing great. He is down on his Prednison to 0 mg a day. He also takes 800mg

of Ibuprofen 3 x a day. Then he takes 2 different stomach medicine to protect his stomach. The are Prilosec 2x a day and Cytotec 100mg 4 x a day. He also takes Vitamins : Multy Vat. 1 x day, E 1000mg in the morning E 400mg in the evening, B12, 2 Extra Strength Tums ( Sugar Free ) 3 x a day.This is for Calcium plus it does not hurt the stomach.The most important thing is do take your medicine and Vitamins ON TIME EVERYDAY LIKE YOU SHOULD !!!!!!! And never

skip !!!!! Ja at times you might get to feel better and think O I am doing great today I wont need it today. WRONG !!!!!!! Most of the RP'ers need

to take it all the time in order to keep it in a sleeping mood. Check with your DRs. OK Plus remember when you been on a high dose of Prednison and starting to cut down you need to do it very SLOW !!!!! The mayo clinic told us once you are down to 10 mg then go down only 1 mg a month. The Prednison does come in the 1 mg dose!!!!

Don"s RP has been in sleeping mood for quit a few months now. But believe me he does NOT miss any medicine or Vitamins. Now to the rest of the offers the group has. We have a address list of all our members here. If you would like to have one I be happy to send you one. Here is how you can get one. Yup, there is a catch too this LOL All you need to do is send me your

Full name with home address ,Phone # , Birthday ( do not have to have the year ) your Email addy . I in turn will print you one and send it to you true slow snail mail. But the most important thing is you got to do is remember

YOU MAY NOT GIVE OUT ANY OF THIS INFORMATION TO ANY ONE OUT SIDE THIS GROUP !!!!!!!!!! This is only Information for the group use. So here is my addy .

heidi@...

Believe me it is so nice to have you might even get a Phone call from our Phone Bandit here . LOL Ok I just hope and pray you all keep posting and ask all the ? you have. We talk about the whole person here not just RP. We cry and laugh together. Yup, we like jokes too. LOL

Your Family member also can post if the like.

Well that all from Mrs. Nosey right now.

Sending you all a warm gentle Hug from Okie

land.

Heidi

DISCLAIMER!!WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU