Guest guest Posted December 28, 2003 Report Share Posted December 28, 2003 In a message dated 12/28/2003 8:25:27 PM Central Standard Time, baileyk80@... writes: Hi all I just got this from ........ " Katy,Wow, this hard to write. Savannah has gotten even sicker. She now is in like a coma like state. She doesn't even know who I am. She is now in diapers, she has no control on bodily functions. We even suction out her mouth. She is to weak to even do anything for herself. We even have to turn her. Her doctor thinks we have maxed out on the toxicity in her kidneys and we should start seeing improvement. If she quits peeing then we go to Oklahoma City for dialysis. I'm praying that it doesn't come to that. It's really hard to know that right now Savannah doesn't even know me. I plan to have a good cry when all this is over.lolCatch you later. Take Care my friend- " I haven't gotten to talk to her on the phone yet, but as soon as I do I will let you all know more. Katy Mom to Austin 4 no CF & Piper 17 months w/CF OH Know!! Please Please keep us posted!!! Tell her we are all praying for her!!! Deb A Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 28, 2003 Report Share Posted December 28, 2003 Oh no!!! This is terrible. I'm thinking of them very hard now. Becky mom of Ricky 8 and Andy 5 > Hi all I just got this from ........ > > " > Katy,Wow, this hard to write. Savannah has gotten even sicker. She now is in like a coma like state. She doesn't even know who I am. She is now in diapers, she has no control on bodily functions. We even suction out her mouth. She is to weak to even do anything for herself. We even have to turn her. Her doctor thinks we have maxed out on the toxicity in her kidneys and we should start seeing improvement. If she quits peeing then we go to Oklahoma City for dialysis. I'm praying that it doesn't come to that. It's really hard to know that right now Savannah doesn't even know me. I plan to have a good cry when all this is over.lolCatch you later. Take Care my friend- " > > I haven't gotten to talk to her on the phone yet, but as soon as I do I will let you all know more. > > > > Katy > Mom to Austin 4 no CF & Piper 17 months w/CF > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 28, 2003 Report Share Posted December 28, 2003 We will all be hoping really HARD for her and for her kidneys! Hard as this is to hear, and hard as it is on Savannah and her relatives, we hope for the best, while preparing for the worst--I think those of us with cf and with kids with cf all have to do that--to one degree or another, but this is really sad! Love to Savannah and all to whom she is dear, n Rojas, wcf, mom of 3 adults, youngest who has cf also Re: Savannah Update #3 Oh no!!! This is terrible. I'm thinking of them very hard now. Becky mom of Ricky 8 and Andy 5 > Hi all I just got this from ........ > > " > Katy,Wow, this hard to write. Savannah has gotten even sicker. She now is in like a coma like state. She doesn't even know who I am. She is now in diapers, she has no control on bodily functions. We even suction out her mouth. She is to weak to even do anything for herself. We even have to turn her. Her doctor thinks we have maxed out on the toxicity in her kidneys and we should start seeing improvement. If she quits peeing then we go to Oklahoma City for dialysis. I'm praying that it doesn't come to that. It's really hard to know that right now Savannah doesn't even know me. I plan to have a good cry when all this is over.lolCatch you later. Take Care my friend- " > > I haven't gotten to talk to her on the phone yet, but as soon as I do I will let you all know more. > > > > Katy > Mom to Austin 4 no CF & Piper 17 months w/CF > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2003 Report Share Posted December 29, 2003 This is too sad. Please keep us posted. Love, Gale > Hi all I just got this from ........ > > " > Katy,Wow, this hard to write. Savannah has gotten even sicker. She now is in like a coma like state. She doesn't even know who I am. She is now in diapers, she has no control on bodily functions. We even suction out her mouth. She is to weak to even do anything for herself. We even have to turn her. Her doctor thinks we have maxed out on the toxicity in her kidneys and we should start seeing improvement. If she quits peeing then we go to Oklahoma City for dialysis. I'm praying that it doesn't come to that. It's really hard to know that right now Savannah doesn't even know me. I plan to have a good cry when all this is over.lolCatch you later. Take Care my friend- " > > I haven't gotten to talk to her on the phone yet, but as soon as I do I will let you all know more. > > > > Katy > Mom to Austin 4 no CF & Piper 17 months w/CF > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2003 Report Share Posted December 29, 2003 Gale, hard to hear, but I want to be there, if only as an outlet, as a member of this list! Love to all on this list, and to Gale, who always cares! n Rojas Re: Savannah Update #3 This is too sad. Please keep us posted. Love, Gale > Hi all I just got this from ........ > > " > Katy,Wow, this hard to write. Savannah has gotten even sicker. She now is in like a coma like state. She doesn't even know who I am. She is now in diapers, she has no control on bodily functions. We even suction out her mouth. She is to weak to even do anything for herself. We even have to turn her. Her doctor thinks we have maxed out on the toxicity in her kidneys and we should start seeing improvement. If she quits peeing then we go to Oklahoma City for dialysis. I'm praying that it doesn't come to that. It's really hard to know that right now Savannah doesn't even know me. I plan to have a good cry when all this is over.lolCatch you later. Take Care my friend- " > > I haven't gotten to talk to her on the phone yet, but as soon as I do I will let you all know more. > > > > Katy > Mom to Austin 4 no CF & Piper 17 months w/CF > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2003 Report Share Posted December 29, 2003 It breaks my heart to hear of things like this happening to people;the pain they must be experiencing is more than I can fathem.Plz let know that she is in the hearts and prayers of so many; I even asked my cf son(he's the most spiritual and compassionate), to pray for little Savannah with me, bless her little heart! Plz keep us posted... Patty, mom to Ty 8wcf & 2wocf > Hi all I just got this from ........ > > " > Katy,Wow, this hard to write. Savannah has gotten even sicker. She now is in like a coma like state. She doesn't even know who I am. She is now in diapers, she has no control on bodily functions. We even suction out her mouth. She is to weak to even do anything for herself. We even have to turn her. Her doctor thinks we have maxed out on the toxicity in her kidneys and we should start seeing improvement. If she quits peeing then we go to Oklahoma City for dialysis. I'm praying that it doesn't come to that. It's really hard to know that right now Savannah doesn't even know me. I plan to have a good cry when all this is over.lolCatch you later. Take Care my friend- " > > I haven't gotten to talk to her on the phone yet, but as soon as I do I will let you all know more. > > > > Katy > Mom to Austin 4 no CF & Piper 17 months w/CF > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2003 Report Share Posted December 29, 2003 and Savannah are in the hearts and hopes of so many right now--let us hope that it helps! Hard to hear, but harder for her and her mom! Love, n Re: Savannah Update #3 It breaks my heart to hear of things like this happening to people;the pain they must be experiencing is more than I can fathem.Plz let know that she is in the hearts and prayers of so many; I even asked my cf son(he's the most spiritual and compassionate), to pray for little Savannah with me, bless her little heart! Plz keep us posted... Patty, mom to Ty 8wcf & 2wocf > Hi all I just got this from ........ > > " > Katy,Wow, this hard to write. Savannah has gotten even sicker. She now is in like a coma like state. She doesn't even know who I am. She is now in diapers, she has no control on bodily functions. We even suction out her mouth. She is to weak to even do anything for herself. We even have to turn her. Her doctor thinks we have maxed out on the toxicity in her kidneys and we should start seeing improvement. If she quits peeing then we go to Oklahoma City for dialysis. I'm praying that it doesn't come to that. It's really hard to know that right now Savannah doesn't even know me. I plan to have a good cry when all this is over.lolCatch you later. Take Care my friend- " > > I haven't gotten to talk to her on the phone yet, but as soon as I do I will let you all know more. > > > > Katy > Mom to Austin 4 no CF & Piper 17 months w/CF > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2003 Report Share Posted December 29, 2003 Oh I am so orry to hear this. Prayers are going up for Savannah. Savannah Update #3 Hi all I just got this from ........ " Katy,Wow, this hard to write. Savannah has gotten even sicker. She now is in like a coma like state. She doesn't even know who I am. She is now in diapers, she has no control on bodily functions. We even suction out her mouth. She is to weak to even do anything for herself. We even have to turn her. Her doctor thinks we have maxed out on the toxicity in her kidneys and we should start seeing improvement. If she quits peeing then we go to Oklahoma City for dialysis. I'm praying that it doesn't come to that. It's really hard to know that right now Savannah doesn't even know me. I plan to have a good cry when all this is over.lolCatch you later. Take Care my friend- " I haven't gotten to talk to her on the phone yet, but as soon as I do I will let you all know more. Katy Mom to Austin 4 no CF & Piper 17 months w/CF Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2003 Report Share Posted December 29, 2003 This is very sad news. I am so sorry to hear it. I will keep all good thoughts and prayers for Savannah and her family. I hope things turn around soon for them. Savannah, I hope you and your kidneys will be ok very soon. We're all pulling for you, sweetheart. Love, Jill Savannah Update #3 Hi all I just got this from ........ " Katy,Wow, this hard to write. Savannah has gotten even sicker. She now is in like a coma like state. She doesn't even know who I am. She is now in diapers, she has no control on bodily functions. We even suction out her mouth. She is to weak to even do anything for herself. We even have to turn her. Her doctor thinks we have maxed out on the toxicity in her kidneys and we should start seeing improvement. If she quits peeing then we go to Oklahoma City for dialysis. I'm praying that it doesn't come to that. It's really hard to know that right now Savannah doesn't even know me. I plan to have a good cry when all this is over.lolCatch you later. Take Care my friend- " I haven't gotten to talk to her on the phone yet, but as soon as I do I will let you all know more. Katy Mom to Austin 4 no CF & Piper 17 months w/CF Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2003 Report Share Posted December 29, 2003 n, Thanks for meeting me for lunch this week. I had a great time. I even got to eat my first " matsa ball " . I can't wait to get home though. Too much family can be stressfull. You met Meg. She is my favorite sister-in-law. She is really sweet. Love, Gale > > Hi all I just got this from ........ > > > > " > > Katy,Wow, this hard to write. Savannah has gotten even sicker. She > now is in like a coma like state. She doesn't even know who I am. She > is now in diapers, she has no control on bodily functions. We even > suction out her mouth. She is to weak to even do anything for > herself. We even have to turn her. Her doctor thinks we have maxed > out on the toxicity in her kidneys and we should start seeing > improvement. If she quits peeing then we go to Oklahoma City for > dialysis. I'm praying that it doesn't come to that. It's really hard > to know that right now Savannah doesn't even know me. I plan to have > a good cry when all this is over.lolCatch you later. Take Care my > friend- " > > > > I haven't gotten to talk to her on the phone yet, but as soon as I > do I will let you all know more. > > > > > > > > Katy > > Mom to Austin 4 no CF & Piper 17 months w/CF > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2003 Report Share Posted December 29, 2003 Re: Savannah Update #3 n, Thanks for meeting me for lunch this week. I had a great time. I even got to eat my first " matsa ball " . I can't wait to get home though. Too much family can be stressfull. You met Meg. She is my favorite sister-in-law. She is really sweet. Love, Gale > > Hi all I just got this from ........ > > > > " > > Katy,Wow, this hard to write. Savannah has gotten even sicker. She > now is in like a coma like state. She doesn't even know who I am. She > is now in diapers, she has no control on bodily functions. We even > suction out her mouth. She is to weak to even do anything for > herself. We even have to turn her. Her doctor thinks we have maxed > out on the toxicity in her kidneys and we should start seeing > improvement. If she quits peeing then we go to Oklahoma City for > dialysis. I'm praying that it doesn't come to that. It's really hard > to know that right now Savannah doesn't even know me. I plan to have > a good cry when all this is over.lolCatch you later. Take Care my > friend- " > > > > I haven't gotten to talk to her on the phone yet, but as soon as I > do I will let you all know more. > > > > > > > > Katy > > Mom to Austin 4 no CF & Piper 17 months w/CF > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2003 Report Share Posted December 29, 2003 Gale and I had a fine time, despite my croaky (at that time) voice. However, gang, Matzah ball is spelled the way I spelled it. I steered them to the craziest NY-style deli/restaurant west of Chicago, or maybe even Milwaukee, and they all survived! They were just all so sweet; Gale is in person just like she reads/sounds on line-- Now if they can only get safely back home! Love to you all, n Re: Savannah Update #3 n, Thanks for meeting me for lunch this week. I had a great time. I even got to eat my first " matsa ball " . I can't wait to get home though. Too much family can be stressfull. You met Meg. She is my favorite sister-in-law. She is really sweet. Love, Gale > > Hi all I just got this from ........ > > > > " > > Katy,Wow, this hard to write. Savannah has gotten even sicker. She > now is in like a coma like state. She doesn't even know who I am. She > is now in diapers, she has no control on bodily functions. We even > suction out her mouth. She is to weak to even do anything for > herself. We even have to turn her. Her doctor thinks we have maxed > out on the toxicity in her kidneys and we should start seeing > improvement. If she quits peeing then we go to Oklahoma City for > dialysis. I'm praying that it doesn't come to that. It's really hard > to know that right now Savannah doesn't even know me. I plan to have > a good cry when all this is over.lolCatch you later. Take Care my > friend- " > > > > I haven't gotten to talk to her on the phone yet, but as soon as I > do I will let you all know more. > > > > > > > > Katy > > Mom to Austin 4 no CF & Piper 17 months w/CF > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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