Re: he can only handle 4 foods.

[Guest guest]

I can't contribute much insite into what to do about the situation since

we're not that experienced with scd. What I did want to point out is that

it seems a little early for salad. That is a raw vegie, and I'd be

surprised if anyone could handle something like that only four months into

the diet.

Meleah scd 05/06

iel 3.5yrs asd, Ethan 5yrs., Mark 18mth., both nt

he can only handle 4 foods.

> We have been scd for almost 4 months and his food just keeps getting

> more limited. We were fiengold before starting scd so I alreaddy

> knew he couldnt handle food with salicylates and phenoles. All he

> can eat is meat cooked plaim, green beens, pears, bannan, and salad.

> he has sensor issues so he wont eat the pares cooked. He did for

> the intro but he got sooo sick I can't get him to eat anything he

> ate on the intro.

> we have ben on enzymes a little over a month an they have helped a

> lot. He is much happer and all around better. But we cant eat any

> new food. Its hard befor the diet he was self limitting and now he

> wants to try new things ant all the things we have tried causes

> problems. Lots of problems. And then I have no you cant have the

> apple, muffin, eggs, honey, ect.

> Iam not thinking of giving up its not a choice he is doing good in

> school if he hasnt had anything he shouldnt and he tells me he feels

> better.

> On top of all this my daughter and I are also sed. we are all gap

> kids. Lots of issues. I have to give her food on the sly becase her

> brother cant have it. He doesnt cheet and I wnt to keep it that way

> by making all our meals he can eat. but that means we eat the same

> thing all the time ALL THE TIME. Any help would be nice.

> Thanks scd 3 months feingold 11 months

>

>

>

>

>

> For information on the Specific Carbohydrate Diet, please read the book

> _Breaking the Vicious Cycle_ by Elaine Gottschall and read the following

> websites:

> http://www.breakingtheviciouscycle.info

> and

> http://www.pecanbread.com

>

>

[Guest guest]

Will he eat things made from ground meat? Such as meatballs, meat loaf? If so,

you can gradually add all kinds of pureed veggies into those recipes. There is

also the " sneaky " pancakes recipes.... and other ideas from the " picky eaters "

section on pecanbread.com in " overcoming difficulties " . I would also agree with

Meleah that it's really too soon for raw foods.... and if you're using both

salad and raw pears, this may actually be getting in the way of progress toward

true long-term gut healing. I'm really glad to hear that he's better... and

happier... than before. That's wonderful.

But, I would expect him to lose some of these food intolerances over time as the

leaky gut heals. The fact that he WANTS to try new things is a good sign, but

not being able to tolerate anything new actually is a red flag to me that

you're not quite getting the full healing you probably were hoping for. The raw

foods are too difficult to digest, except for someone who has been on SCD many

months, and whatever we can't digest can possibly be feeding the " bad guys " .

This really could be what's " holding up the show " , so to speak.

Have you tried butternut squash? Would he not eat that because of the texture?

I will admit, I am not aware of whether or not it is high in salicylates. It is

something that is generally well-tolerated.... but you might have to sneak some

pureed squash into meatballs or something, just to see if his gut would tolerate

it.

Patti

he can only handle 4 foods.

We have been scd for almost 4 months and his food just keeps getting

more limited. We were fiengold before starting scd so I alreaddy

knew he couldnt handle food with salicylates and phenoles. All he

can eat is meat cooked plaim, green beens, pears, bannan, and salad.

he has sensor issues so he wont eat the pares cooked. He did for

the intro but he got sooo sick I can't get him to eat anything he

ate on the intro.

we have ben on enzymes a little over a month an they have helped a

lot. He is much happer and all around better. But we cant eat any

new food. Its hard befor the diet he was self limitting and now he

wants to try new things ant all the things we have tried causes

problems. Lots of problems. And then I have no you cant have the

apple, muffin, eggs, honey, ect.

Iam not thinking of giving up its not a choice he is doing good in

school if he hasnt had anything he shouldnt and he tells me he feels

better.

On top of all this my daughter and I are also sed. we are all gap

kids. Lots of issues. I have to give her food on the sly becase her

brother cant have it. He doesnt cheet and I wnt to keep it that way

by making all our meals he can eat. but that means we eat the same

thing all the time ALL THE TIME. Any help would be nice.

Thanks scd 3 months feingold 11 months

[Guest guest]

>

> Will he eat things made from ground meat? Such as meatballs, meat

loaf? If so, you can gradually add all kinds of pureed veggies into

those recipes. There is also the " sneaky " pancakes recipes.... and

other ideas from the " picky eaters " section on pecanbread.com

in " overcoming difficulties " . I would also agree with Meleah that

it's really too soon for raw foods.... and if you're using both

salad and raw pears, this may actually be getting in the way of

progress toward true long-term gut healing. I'm really glad to hear

that he's better... and happier... than before. That's wonderful.

>

> But, I would expect him to lose some of these food intolerances

over time as the leaky gut heals. The fact that he WANTS to try new

things is a good sign, but not being able to tolerate anything new

actually is a red flag to me that you're not quite getting the full

healing you probably were hoping for. The raw foods are too

difficult to digest, except for someone who has been on SCD many

months, and whatever we can't digest can possibly be feeding

the " bad guys " . This really could be what's " holding up the show " ,

so to speak.

>

> Have you tried butternut squash? Would he not eat that because of

the texture? I will admit, I am not aware of whether or not it is

high in salicylates. It is something that is generally well-

tolerated.... but you might have to sneak some pureed squash into

meatballs or something, just to see if his gut would tolerate it.

>

> Patti

I do hide vegetables in his meat. I was wondering if it was the

raw fruit and salad. I am just having a hard time with him just

eating meat with vegetables cooked in . The lunch room help is

wondering why he is only eating meat. He wont heat up his beans. so

all he eats is meat and wont eat anythind that is soft. It took us a

while to get him to eat bannas. He never had diaherra so I was

hoping he was ok to have the raw but ripe pares.

thanks stacy

[Guest guest]

> > >

> > > Will he eat things made from ground meat? Such as meatballs,

meat

> > loaf? If so, you can gradually add all kinds of pureed veggies

into

> > those recipes. There is also the " sneaky " pancakes recipes....

and

> > other ideas from the " picky eaters " section on pecanbread.com

> > in " overcoming difficulties " . I would also agree with Meleah

that

> > it's really too soon for raw foods.... and if you're using both

> > salad and raw pears, this may actually be getting in the way of

> > progress toward true long-term gut healing. I'm really glad to

hear

> > that he's better... and happier... than before. That's wonderful.

> > >

> > > But, I would expect him to lose some of these food intolerances

> > over time as the leaky gut heals. The fact that he WANTS to try

new

> > things is a good sign, but not being able to tolerate anything

new

> > actually is a red flag to me that you're not quite getting the

full

> > healing you probably were hoping for. The raw foods are too

> > difficult to digest, except for someone who has been on SCD many

> > months, and whatever we can't digest can possibly be feeding

> > the " bad guys " . This really could be what's " holding up the

show " ,

> > so to speak.

> > >

> > > Have you tried butternut squash? Would he not eat that

because of

> > the texture? I will admit, I am not aware of whether or not it is

> > high in salicylates. It is something that is generally well-

> > tolerated.... but you might have to sneak some pureed squash into

> > meatballs or something, just to see if his gut would tolerate it.

> > >

> > > Patti

> >

> >

> > I do hide vegetables in his meat. I was wondering if it was the

> > raw fruit and salad. I am just having a hard time with him just

> > eating meat with vegetables cooked in . The lunch room help is

> > wondering why he is only eating meat. He wont heat up his beans.

so

> > all he eats is meat and wont eat anythind that is soft. It took

us a

> > while to get him to eat bannas. He never had diaherra so I was

> > hoping he was ok to have the raw but ripe pares.

> > thanks stacy

> >

> >

> >

> > For information on the Specific Carbohydrate Diet, please read

the book

> > _Breaking the Vicious Cycle_ by Elaine Gottschall and read the

following

> > websites:

> > http://www.breakingtheviciouscycle.info

> > and

> > http://www.pecanbread.com

> >

> >

[Guest guest]

>

> ,

>

> You are in a tough spot. One of the issues is dealing with school

staff. I know they can be difficult. When it comes to Katera's

diet, I have learned the hard way. We have ALL new staff this year

and I decided it is just plain none of their business. The

instructions I've given this year are:

>

> She eats NOTHING except what I send. Period.

>

> That's all. I've told them that she is on a special diet but....

no details and it is truly none of their business. I have stated

that it is CRITICAL that she does not EVER eat anything other than

what I send.... and that is in her IEP. They don't question me

anymore. She eats pretty much the same thing every day for lunch (I

rotate between two basic lunch meals) and I do more variety at home.

It's just simpler that way. She is only beginning to self-feed, so

I'm limited to foods that are easier for her to manage when spoon

feeding anyway.

>

> If they are wondering why he is eating " only meat " you might tell

them that the veggies are baked IN to the meat.... but they are

mistaken if they think it's " only meat " then. It's just wrong for

them to be questioning you on this.

>

> If they won't heat up his green beans.... can you send them warm

in a thermos or something, if that's the only way he'll eat them? Or

would he eat them cold if he had some kind of a dip? SCD ketchup....

or honey/mustard? He could still do ripe bananas at school.... but

you'll need to send bananas along that are at the proper stage, not

let them just give him bananas they might have there.

>

> Believe me, I know what a trick it is to have a ripe banana always

on hand.... it's not easy. I always have about three bunches of

bananas, each at a different stage of ripening.... trying to prepare

for the next few days. I go into " banana panic " if we're out and I

go to the store and all there is is a huge table full of bright

GREEN bananas! I've been known to pull the produce guy aside and beg

him to go retrieve bananas that they've just pulled to throw away.

They think I'm nuts!

>

> You stated here that you have tried flaxseed as an egg

substitute. Do you mean since he's been on SCD? Or previously? You

do know that flaxseed is not legal, right?

>

> At this point, with a child that is severely limited in what foods

he can have, you are going to have a real challenge on your hands.

You need to come up with some tried-and-true basics for school and

try new things at home.

>

> I definitely think that it is too soon for the raw foods, and that

this has probably impaired his progress. I know you have a dilemma

with school and all, but putting these foods in too soon is just

shooting yourself in the foot.... and meaning that you'll have a

harder time getting past this.... if you ever do.

>

> When you say he can tolerate " salad " .... what do you mean by that?

Is it just lettuce only? Or what else is in it... other raw

veggies? What dressing?

>

> Is he anaphylactic to eggs? Or is this a sensitivity that shows

up in tests?

>

> If phenols are an issue, have you tried the No Fenol enzymes?

>

> I just think that if you could get a few months of 100% compliance

on all SCD legal, peeled and cooked only, you would begin to get

some real gut healing and some of his food intolerances would begin

to fade. This is what we've seen with other kids.

>

> I hate to tell you that I just think SCD might be too difficult

for you to accomplish.... but I really think it might be, unless you

get some private help from an SCD counselor or something. It would

be good to sit down and brainstorm a few " sure thing " meals that you

can cook large quantities of ahead.... and keep in the freezer....

and some alternative snack ideas that will work, AND that he will

accept.

>

> Do you have enough actual support at home? Husband fully

supportive of SCD.... other relatives and friends that understand,

etc? DAN doctor or ??

>

> Patti

> Re: he can only handle 4 foods.

>

>

> He is not so much a picky eater except when it comes to

> vegetables that are soft. we cant do any of the pancakes becase

of

> the eggs we have tried flaxseed to do the banna pancakes and

then

> it takea about 5 bannas to make an amount that looks like

> something.I am greatfull for all the thoughts I am getting it

and

> beleave that the raw foods are the problem Iam just not sure how

to

> remdy it at school. He gets snacks at school usually a banna or

a

> pear If I take away the pear (which I will) It Leaves him with

meat

> and bannas and I cant always keep up with them. I run out then

they

> arent ripe so we are back to meat. He is on the yougert very

small

> amount and he han another round of die off two days after

starting

> it .by the way how long does the yougert stay good. Iam not sure

I

> would know what bad yougert would tast like.

> Like I said my biggest worry is school. He wants food and he

reacts

> badly to almost all including honey. He has got a understanding

> teacher but I don't know for how much He has warn out everyone

in

> the past. Please don't take this as Iam not listening Iam . Iam

very

> worn out and it pains me that he wants to eat thes things and I

> have to tell him no. I wish it was a vacation time so I can do

the

> cooked fruit. He is not home enough to hold out other food to

get

> him to eat it becase I cant send him to schol with out eating.

When

> we did the intro dier I eased him in to it he ate chicken broth

> cooked peares just becase he ws hungry. but ttwo days in to it

he

> got verry sick he got to were he couldn't ever move himself on a

> pillow he could't walk he at its worst he his eyes were rolling

> back in his head and I thought he was going to go unconcious. It

> was so scarry we took him to irgent care and the gave him and IV

> and that helped a lot but the next day he was still not eating

it

> was his 6 day of a stand off.

> Iam just feeling really helpless right now. I fell crazy when

> someome is trying to be nice and gives him a banana and its

green

> and i have to tell him he cant eat it the person thinks I have

lost

> it. I am hearing you and greatfull for what is said Iam just

trying

> to fill in the missing parts of the full picture .

> Thanks so very much

>

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