Guest guest Posted November 11, 2003 Report Share Posted November 11, 2003 Joe, The infant PFT was developed by Dr. Castile in Columbus, OH. I believe that there are a number of centers capable of doing the tests now. Dr. Castile is a great person. I am sure that you could email Dr. Castile with questions. Toni (Abby's mom) had some questions while at the CF Clinic today and she told me that Dr. Castile probably spent two hours talking to her. She said that the clinic closed and the lights in the hall were off and Dr. Castile was still talking to her and her husband about Abby and about future CF studies. Abby has a PFT every six months. I tried to paste the URL below. It looks like you may have to retype it. http://www.prnewswire.com/cgi-bin/stories.pl? ACCT=104 & STORY=/www/story/02-09-2000/0001136365 & EDATE= Gale > , > > Is the one in St. Louis the only one in the states or are there > more? If there are, do you know where? I would like to get some > good tests on Abby now for future reference. > > Joe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 2003 Report Share Posted November 11, 2003 Thanks Gale. I hope to find one here in FL Joe > > , > > > > Is the one in St. Louis the only one in the states or are there > > more? If there are, do you know where? I would like to get some > > good tests on Abby now for future reference. > > > > Joe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 2003 Report Share Posted November 11, 2003 You can see more at http://www.collinsmedical.com/ There is also an AVI movie on this site of the IPL in use. A tech note: http://www.collinsmedical.com/LV%20TechNote%20Body.htm There is contact info on the web site. Perhaps you could ask them for a list of Hospitals in the US that have this. IF you get one, post it to the list. _____ From: Joe Sent: Tuesday, November 11, 2003 8:28 PM To: cfparents Subject: IPL - , Is the one in St. Louis the only one in the states or are there more? If there are, do you know where? I would like to get some good tests on Abby now for future reference. Joe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 2003 Report Share Posted November 11, 2003 Our clinic in Seattle does them. Our daughter had one at 6 months and is getting another one next month. I know there are quite a few around the country that have them available now. We have also signed up to do a research study so the PFT tests are free and they pay us for our travel. IPL - , Is the one in St. Louis the only one in the states or are there more? If there are, do you know where? I would like to get some good tests on Abby now for future reference. Joe ------------------------------------------- The opinions and information exchanged on this list should IN NO WAY be construed as medical advice. PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2003 Report Share Posted November 12, 2003 Children's Hospital of Philadelphia does infant PFT's now. The just got the equipment within the last year, so missed out on them. Mom of and one on the way IPL - , Is the one in St. Louis the only one in the states or are there more? If there are, do you know where? I would like to get some good tests on Abby now for future reference. Joe ------------------------------------------- The opinions and information exchanged on this list should IN NO WAY be construed as medical advice. PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. ------------------------------------ Quote Link to comment Share on other sites More sharing options...
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