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Re: IPL -

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Joe,

The infant PFT was developed by Dr. Castile in Columbus, OH. I

believe that there are a number of centers capable of doing the tests

now. Dr. Castile is a great person. I am sure that you could email

Dr. Castile with questions. Toni (Abby's mom) had some questions

while at the CF Clinic today and she told me that Dr. Castile

probably spent two hours talking to her. She said that the clinic

closed and the lights in the hall were off and Dr. Castile was still

talking to her and her husband about Abby and about future CF studies.

Abby has a PFT every six months.

I tried to paste the URL below. It looks like you may have to retype

it.

http://www.prnewswire.com/cgi-bin/stories.pl?

ACCT=104 & STORY=/www/story/02-09-2000/0001136365 & EDATE=

Gale

> ,

>

> Is the one in St. Louis the only one in the states or are there

> more? If there are, do you know where? I would like to get some

> good tests on Abby now for future reference.

>

> Joe

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Thanks Gale. I hope to find one here in FL

Joe

> > ,

> >

> > Is the one in St. Louis the only one in the states or are there

> > more? If there are, do you know where? I would like to get some

> > good tests on Abby now for future reference.

> >

> > Joe

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You can see more at http://www.collinsmedical.com/ There is also an AVI

movie on this site of the IPL in use.

A tech note:

http://www.collinsmedical.com/LV%20TechNote%20Body.htm

There is contact info on the web site. Perhaps you could ask them for a list

of Hospitals in the US that have this. IF you get one, post it to the list.

_____

From: Joe

Sent: Tuesday, November 11, 2003 8:28 PM

To: cfparents

Subject: IPL -

,

Is the one in St. Louis the only one in the states or are there

more? If there are, do you know where? I would like to get some

good tests on Abby now for future reference.

Joe

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Our clinic in Seattle does them. Our daughter had one at 6 months and

is getting another one next month. I know there are quite a few around

the country that have them available now. We have also signed up to do

a research study so the PFT tests are free and they pay us for our

travel.

IPL -

,

Is the one in St. Louis the only one in the states or are there

more? If there are, do you know where? I would like to get some

good tests on Abby now for future reference.

Joe

-------------------------------------------

The opinions and information exchanged on this list should IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

TREATMENTS.

------------------------------------

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Children's Hospital of Philadelphia does infant PFT's now. The just got the

equipment within the last year, so missed out on them.

Mom of and one on the way

IPL -

,

Is the one in St. Louis the only one in the states or are there

more? If there are, do you know where? I would like to get some

good tests on Abby now for future reference.

Joe

-------------------------------------------

The opinions and information exchanged on this list should IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

TREATMENTS.

------------------------------------

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