Re: Re: A Vent

[Guest guest]

That is so sad.........My granddaughter hasn't had any lung involvement

yet--she is 19+............Also , other than a burst appendix, no more

digestive problems. she did have a mecomium iliues at birth. At 2days old

the surgery fixed that & she sure doesn't remember that or ever had any

thing at all related to it. soooooo, Also , remember all these folks just

being DX now in the 30's, 40, & even 50's yrs. of age.................We

NEVER know unless tested. that can help them even more.

Your doing the right thing to try to get them tested

LOVE & HUGS, grandmombev

Re: A Vent

I have two sisters, a brother, and brother-in-law who could all be

carriers and no one is being tested to see if they are carriers. It

is amazing to me. They all think that this is something that

happened just to Zach. I have tried to explain that our parents

could have had four carriers or only one carrier, but we can't know

until they get the blood tests. I also have a niece who is 11 and

has never even had a cold. (Do I sound jealous??) She weighs more

than me, so I really doubt she could have cf, but she could be a

carrier too. My other niece is four and has had constant

infections. I have suggested that she should be tested, but since

she has not had any digestion problems like Zach, my sister is

convinced she doesn't have cf. All I can do is put the information

out there and hope for the best.

Sara - mommy of Zach 20 months (he is the cutest Eyeore for

Halloween)

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