Guest guest Posted October 16, 2003 Report Share Posted October 16, 2003 Lee, he does sound to be a remarkable boy! Three hundred cheers for you and your judgement and for him and his compliance! Love to you and to yours, n Rojas, wcf, mom of 3 adults, youngest wcf, too Thankyou for the kind welcome-Lee > Thankyou all for the kind welcome. I feel like family already! > Re: 's progress > is now 20 1/2 months and is 10kg. > Whe he was born the Dr's told me he would not catch up (to other kids his age) size wise til he was at least 2 y.o. Now they're saying he should be caught up already. > I'm not worried about his size at all. My whole family were skinny kids, my two nephews (no CF) are both VERY skinny at 14 and 5 y.o. I realise it's important to get weight on them, but sometimes I think the CF team forget how prem he was. They have nothing to campare him to, cos he's the premiest Cf child so far in Aust I'm told. Everytime the CF team vistit (every 3 months they come to a local hospital in our town) I tremble. I am so scared they are going to say he's too skinny. This visit the dietitian was ecstatic? She hadn't seen him for 6 months, and she remembers how little he was at 2 weeks. Sometimes I have to tell little white lies regarding his feeding (I was advised to) he isnt that crash hot with finger foods. He has never picked anything up off the carpet and put it in his mouth! Unlike some kids who pick up everything. He still doesnt eat a biscuit as fast as I'd like, but he gets there. > He has always sat perfectly still for Nebs and physio and when you walk into the lounge with his syringes/meds he opens his mouth before you even sit down next to him. I'm sure this wont last forever. > Thanks again for the kind words > Regards Lee mother of Raeamond 20m with cf > > > > --------------------------------- > Yahoo! Personals > - New people, new possibilities. FREE for a limited time! > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2003 Report Share Posted October 16, 2003 Is it O.K to ask if we could write our State and Country ( & /or town) when signing off? ie Lee, mum to 20m cf Bunbury, WA, Aust marionjrojas wrote: Lee, he does sound to be a remarkable boy! Three hundred cheers for you and your judgement and for him and his compliance! Love to you and to yours, n Rojas, wcf, mom of 3 adults, youngest wcf, too Thankyou for the kind welcome-Lee > Thankyou all for the kind welcome. I feel like family already! > Re: 's progress > is now 20 1/2 months and is 10kg. > Whe he was born the Dr's told me he would not catch up (to other kids his age) size wise til he was at least 2 y.o. Now they're saying he should be caught up already. > I'm not worried about his size at all. My whole family were skinny kids, my two nephews (no CF) are both VERY skinny at 14 and 5 y.o. I realise it's important to get weight on them, but sometimes I think the CF team forget how prem he was. They have nothing to campare him to, cos he's the premiest Cf child so far in Aust I'm told. Everytime the CF team vistit (every 3 months they come to a local hospital in our town) I tremble. I am so scared they are going to say he's too skinny. This visit the dietitian was ecstatic? She hadn't seen him for 6 months, and she remembers how little he was at 2 weeks. Sometimes I have to tell little white lies regarding his feeding (I was advised to) he isnt that crash hot with finger foods. He has never picked anything up off the carpet and put it in his mouth! Unlike some kids who pick up everything. He still doesnt eat a biscuit as fast as I'd like, but he gets there. > He has always sat perfectly still for Nebs and physio and when you walk into the lounge with his syringes/meds he opens his mouth before you even sit down next to him. I'm sure this wont last forever. > Thanks again for the kind words > Regards Lee mother of Raeamond 20m with cf > > > > --------------------------------- > Yahoo! Personals > - New people, new possibilities. FREE for a limited time! > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2003 Report Share Posted October 16, 2003 SURE, It is nice to know where folks are from . who their wee ones are , etc. Glad your here, as I said before. you will love all the folks here too!! LOVE & HUGS, grandmomBEV Re: Thankyou for the kind welcome-Lee Is it O.K to ask if we could write our State and Country ( & /or town) when signing off? ie Lee, mum to 20m cf Bunbury, WA, Aust marionjrojas wrote: Lee, he does sound to be a remarkable boy! Three hundred cheers for you and your judgement and for him and his compliance! Love to you and to yours, n Rojas, wcf, mom of 3 adults, youngest wcf, too Thankyou for the kind welcome-Lee > Thankyou all for the kind welcome. I feel like family already! > Re: 's progress > is now 20 1/2 months and is 10kg. > Whe he was born the Dr's told me he would not catch up (to other kids his age) size wise til he was at least 2 y.o. Now they're saying he should be caught up already. > I'm not worried about his size at all. My whole family were skinny kids, my two nephews (no CF) are both VERY skinny at 14 and 5 y.o. I realise it's important to get weight on them, but sometimes I think the CF team forget how prem he was. They have nothing to campare him to, cos he's the premiest Cf child so far in Aust I'm told. Everytime the CF team vistit (every 3 months they come to a local hospital in our town) I tremble. I am so scared they are going to say he's too skinny. This visit the dietitian was ecstatic? She hadn't seen him for 6 months, and she remembers how little he was at 2 weeks. Sometimes I have to tell little white lies regarding his feeding (I was advised to) he isnt that crash hot with finger foods. He has never picked anything up off the carpet and put it in his mouth! Unlike some kids who pick up everything. He still doesnt eat a biscuit as fast as I'd like, but he gets there. > He has always sat perfectly still for Nebs and physio and when you walk into the lounge with his syringes/meds he opens his mouth before you even sit down next to him. I'm sure this wont last forever. > Thanks again for the kind words > Regards Lee mother of Raeamond 20m with cf > > > > --------------------------------- > Yahoo! Personals > - New people, new possibilities. FREE for a limited time! > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2003 Report Share Posted October 16, 2003 The true test of how well is doing is how YOU as his mother feel he is doing. If he is eating well that is all that counts. Like you said. They don't have anything to compare it to. You are with him every day and can see the results. Pat yourself on the back. You are a good Mom and take good care of . You are doing a great job. Tina W., mother of Steph, almost 18yo wcf Thankyou for the kind welcome-Lee Thankyou all for the kind welcome. I feel like family already! Re: 's progress is now 20 1/2 months and is 10kg. Whe he was born the Dr's told me he would not catch up (to other kids his age) size wise til he was at least 2 y.o. Now they're saying he should be caught up already. I'm not worried about his size at all. My whole family were skinny kids, my two nephews (no CF) are both VERY skinny at 14 and 5 y.o. I realise it's important to get weight on them, but sometimes I think the CF team forget how prem he was. They have nothing to campare him to, cos he's the premiest Cf child so far in Aust I'm told. Everytime the CF team vistit (every 3 months they come to a local hospital in our town) I tremble. I am so scared they are going to say he's too skinny. This visit the dietitian was ecstatic? She hadn't seen him for 6 months, and she remembers how little he was at 2 weeks. Sometimes I have to tell little white lies regarding his feeding (I was advised to) he isnt that crash hot with finger foods. He has never picked anything up off the carpet and put it in his mouth! Unlike some kids who pick up everything. He still doesnt eat a biscuit as fast as I'd like, but he gets there. He has always sat perfectly still for Nebs and physio and when you walk into the lounge with his syringes/meds he opens his mouth before you even sit down next to him. I'm sure this wont last forever. Thanks again for the kind words Regards Lee mother of Raeamond 20m with cf --------------------------------- Yahoo! Personals - New people, new possibilities. FREE for a limited time! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 2003 Report Share Posted October 19, 2003 Lee, Wow, you are lucky. Abby fights the neb treatments. We have to do them while she is sleeping. Gale > Thankyou all for the kind welcome. I feel like family already! > Re: 's progress > is now 20 1/2 months and is 10kg. > Whe he was born the Dr's told me he would not catch up (to other kids his age) size wise til he was at least 2 y.o. Now they're saying he should be caught up already. > I'm not worried about his size at all. My whole family were skinny kids, my two nephews (no CF) are both VERY skinny at 14 and 5 y.o. I realise it's important to get weight on them, but sometimes I think the CF team forget how prem he was. They have nothing to campare him to, cos he's the premiest Cf child so far in Aust I'm told. Everytime the CF team vistit (every 3 months they come to a local hospital in our town) I tremble. I am so scared they are going to say he's too skinny. This visit the dietitian was ecstatic? She hadn't seen him for 6 months, and she remembers how little he was at 2 weeks. Sometimes I have to tell little white lies regarding his feeding (I was advised to) he isnt that crash hot with finger foods. He has never picked anything up off the carpet and put it in his mouth! Unlike some kids who pick up everything. He still doesnt eat a biscuit as fast as I'd like, but he gets there. > He has always sat perfectly still for Nebs and physio and when you walk into the lounge with his syringes/meds he opens his mouth before you even sit down next to him. I'm sure this wont last forever. > Thanks again for the kind words > Regards Lee mother of Raeamond 20m with cf > > > > --------------------------------- > Yahoo! Personals > - New people, new possibilities. FREE for a limited time! > > Quote Link to comment Share on other sites More sharing options...
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