Ronnie

[Guest guest]

Ronnie,

I've been meaning to respond to your e-mails. I loved reading your

words of encouragement to newbie . By sharing your own testimony

with her, I believe that it actually gave ALL of us some hope and

inspiration in dealing with RP.

I, too, recall a time when I was first diagnosed @ 33, and would often

cry over my situation. My condition worsened, and I eventually

developed vertigo which forced me to give up my job, which I loved! I

couldn't work for 3 years....I joined an e-support group called

" dizzinews, " but, it just wasn't specific enough to my RP symptoms....

Currently, I'm back to work part time, and, I'm feeling so blessed to be

a part of this RP support group, where I can get connected to those who

know first hand what it's like to confront RP.

Please continue to stay with the support group....we need you, we all

need each other...

Love and aloha, karen

P.S. I kind of know what you you mean about the age thing. Another RPer

stopped subscribing to the support group, and just subscribes to the

foundation. She told me that she didn't have too much in common with

some of the older members of the group (ie. grandmas, menopause), didn't

like all the jokes, and wanted to be in touch with RPers more in her age

group. She told me at least I was of child bearing age! <grin>. We've

been in touch over the telephone and we've even met in person. We e-mail

each other every week or so, and I send her bits of information that i've

gleaned from the rp support group. I'm hoping that she'll change her

mind some day and subscribe to the support group again because I think

that we can all learn from each other, no matter what our ages are!

" Don't let anyone look down on you because you are young, but set an

example for the believers in speech, in life, in love, in faith, and in

purity. " (I 4:12)