RE: Fwd: I AM A NEW MEMBER AND JUST WANTED TO SAY HELLO

[Guest guest]

Welcome aboard

[Guest guest]

I wish you a nice welcome here .You will really enjoy. thanks for coming on

line with us all

LOVE & HUGS, grandmomBEV

Re: Fwd: I AM A NEW MEMBER AND JUST WANTED TO SAY

HELLO

Welcome aboard

[Guest guest]

Dear Bev,

Thank-you for replying to me. I sent a letter but I don't know if the group

got it or not. I decided to hit the reply key to make sure you get this. I

always type my own e-mails and never type reply. My daughter is 11 with cystic

fibrosis. She has a feeding tube and is on a pump overnight for extra calories.

She eats very little. She is a good height and weight and you would never know

that she has one. They started her on a new formula overnight and her face

itched. They increased the amount and she improved. Now she seems to have the

same problem. I have been putting creme on her face. We go to the clinic next

week. Do you have any experience with feeding tubes? I noticed that you are very

helpful with everyone. Thanks again.

Love,

[Guest guest]

Dear ,

Thank you for your nice words I really feel these lists are the best things

in the world too. You will get answers if you haven't already . No , about

the feeding tubes. My granddaughter hasn't had to use one yet. She is 19+ &

been very fortunate that she hasn't needed. She is 6feet tall also.

I am sure that some folks who have had the feeding tubes

themselves----or -their child will get back on list to you. Best wishes,

LOVE & HUGS,

grandmomBEV

Re: Fwd: I AM A NEW MEMBER AND JUST WANTED TO SAY

HELLO

Dear Bev,

Thank-you for replying to me. I sent a letter but I don't know if the group

got it or not. I decided to hit the reply key to make sure you get this. I

always type my own e-mails and never type reply. My daughter is 11 with

cystic

fibrosis. She has a feeding tube and is on a pump overnight for extra

calories.

She eats very little. She is a good height and weight and you would never

know

that she has one. They started her on a new formula overnight and her face

itched. They increased the amount and she improved. Now she seems to have

the

same problem. I have been putting creme on her face. We go to the clinic

next

week. Do you have any experience with feeding tubes? I noticed that you are

very

helpful with everyone. Thanks again.

Love,

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