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Re: Abby on Tobi & Cipro

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You are so lucky. I am so jealous. We have had almost two weeks of

pure hell with TOBI. Zach starts to cry when he sees the neb now.

We are at our wits end. He burns up so many calories fighting that

I can't imagine he will have lost weight when this is all over. He

wakes up if we try to do it when he is sleeping. He hates Bubbles

with a passion. We have to use the Pari Baby or we can't even get

it near his face. I cannot wait until this is over.

I called the Pari company about taking the valve off for the Pari

baby mask and they said it would be ineffective. I called TOBI

about stopping and starting the treatment so he can calm down and

they said we could do that only for a minute at a time, because the

TOBI can lose its effectiveness.

Thanks. I needed to vent. TOBI SUCKS!

Sara

> We started the Cipro yesterday but the Tobi Sun night. She

screamed

> the entire time and we were both sweating when we were finished.

I

> had to stop half way because I thought she was going to throw up

or

> pass out or something. Mon. am she fought just as hard. Then

> something very weird happened. Beginning Mon. night, she now sits

> there on my knee very still and calm and watches TV or her sisters

> WITH A SMILE. She takes the whole thing and never even squirms.

> It's almost eerie.

>

> With our Pari Pro Neb Ultra compressor and the Pari LC Plus neb

(with

> cap off) with " Bubbles the Fish " mask (a Pari accessory) Tobi

takes

> about 12 minutes total. I plan to keep her on Tobi until we've

had a

> couple of cultures without any Pa.

>

> Joe

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Does he like dinosaurs?? They have that mask too. Maybe a fish book or

tape movie) would help him like it .say it was Nemo???????????????

Just a sneaky thought:):

LOVE & HUGS, grandmoMBEv

Re: Abby on Tobi & Cipro

You are so lucky. I am so jealous. We have had almost two weeks of

pure hell with TOBI. Zach starts to cry when he sees the neb now.

We are at our wits end. He burns up so many calories fighting that

I can't imagine he will have lost weight when this is all over. He

wakes up if we try to do it when he is sleeping. He hates Bubbles

with a passion. We have to use the Pari Baby or we can't even get

it near his face. I cannot wait until this is over.

I called the Pari company about taking the valve off for the Pari

baby mask and they said it would be ineffective. I called TOBI

about stopping and starting the treatment so he can calm down and

they said we could do that only for a minute at a time, because the

TOBI can lose its effectiveness.

Thanks. I needed to vent. TOBI SUCKS!

Sara

> We started the Cipro yesterday but the Tobi Sun night. She

screamed

> the entire time and we were both sweating when we were finished.

I

> had to stop half way because I thought she was going to throw up

or

> pass out or something. Mon. am she fought just as hard. Then

> something very weird happened. Beginning Mon. night, she now sits

> there on my knee very still and calm and watches TV or her sisters

> WITH A SMILE. She takes the whole thing and never even squirms.

> It's almost eerie.

>

> With our Pari Pro Neb Ultra compressor and the Pari LC Plus neb

(with

> cap off) with " Bubbles the Fish " mask (a Pari accessory) Tobi

takes

> about 12 minutes total. I plan to keep her on Tobi until we've

had a

> couple of cultures without any Pa.

>

> Joe

-------------------------------------------

The opinions and information exchanged on this list should IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

TREATMENTS.

------------------------------------

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