Guest guest Posted November 19, 2003 Report Share Posted November 19, 2003 You are so lucky. I am so jealous. We have had almost two weeks of pure hell with TOBI. Zach starts to cry when he sees the neb now. We are at our wits end. He burns up so many calories fighting that I can't imagine he will have lost weight when this is all over. He wakes up if we try to do it when he is sleeping. He hates Bubbles with a passion. We have to use the Pari Baby or we can't even get it near his face. I cannot wait until this is over. I called the Pari company about taking the valve off for the Pari baby mask and they said it would be ineffective. I called TOBI about stopping and starting the treatment so he can calm down and they said we could do that only for a minute at a time, because the TOBI can lose its effectiveness. Thanks. I needed to vent. TOBI SUCKS! Sara > We started the Cipro yesterday but the Tobi Sun night. She screamed > the entire time and we were both sweating when we were finished. I > had to stop half way because I thought she was going to throw up or > pass out or something. Mon. am she fought just as hard. Then > something very weird happened. Beginning Mon. night, she now sits > there on my knee very still and calm and watches TV or her sisters > WITH A SMILE. She takes the whole thing and never even squirms. > It's almost eerie. > > With our Pari Pro Neb Ultra compressor and the Pari LC Plus neb (with > cap off) with " Bubbles the Fish " mask (a Pari accessory) Tobi takes > about 12 minutes total. I plan to keep her on Tobi until we've had a > couple of cultures without any Pa. > > Joe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 19, 2003 Report Share Posted November 19, 2003 Does he like dinosaurs?? They have that mask too. Maybe a fish book or tape movie) would help him like it .say it was Nemo??????????????? Just a sneaky thought:): LOVE & HUGS, grandmoMBEv Re: Abby on Tobi & Cipro You are so lucky. I am so jealous. We have had almost two weeks of pure hell with TOBI. Zach starts to cry when he sees the neb now. We are at our wits end. He burns up so many calories fighting that I can't imagine he will have lost weight when this is all over. He wakes up if we try to do it when he is sleeping. He hates Bubbles with a passion. We have to use the Pari Baby or we can't even get it near his face. I cannot wait until this is over. I called the Pari company about taking the valve off for the Pari baby mask and they said it would be ineffective. I called TOBI about stopping and starting the treatment so he can calm down and they said we could do that only for a minute at a time, because the TOBI can lose its effectiveness. Thanks. I needed to vent. TOBI SUCKS! Sara > We started the Cipro yesterday but the Tobi Sun night. She screamed > the entire time and we were both sweating when we were finished. I > had to stop half way because I thought she was going to throw up or > pass out or something. Mon. am she fought just as hard. Then > something very weird happened. Beginning Mon. night, she now sits > there on my knee very still and calm and watches TV or her sisters > WITH A SMILE. She takes the whole thing and never even squirms. > It's almost eerie. > > With our Pari Pro Neb Ultra compressor and the Pari LC Plus neb (with > cap off) with " Bubbles the Fish " mask (a Pari accessory) Tobi takes > about 12 minutes total. I plan to keep her on Tobi until we've had a > couple of cultures without any Pa. > > Joe ------------------------------------------- The opinions and information exchanged on this list should IN NO WAY be construed as medical advice. PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 19, 2003 Report Share Posted November 19, 2003 Do they have masks for 11? Rosemary in NY with 3 children (13, 11 and 7) with CF. I have a dog named TOBI and have coined the phrase " BREATHE DAMMIT " Quote Link to comment Share on other sites More sharing options...
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