Re: cipro and tobi together - Patty

[Guest guest]

Patty,

Please send us the address of Tyler's hospital (and your last name),

so that we can send Tyler a card. I hope that he gets better soon.

Gale

> My son Tyler 8 had been on tobi for the full 28 dys, then they

added

> another 2 wks, the last 3wks of that schedule they added cipro.I

> posted

> previously that he did not get much better.His pfts improved, but

he

> still has a crackle so now he gets admitted on Thurs.The dr told me

> he would be on zithromax, cf coordinator dumbfounded, says will be

> on something else(Iknow I didnt pull that out of the air, I've

never

> even heard of zithro before, but whatever).But now Im wondering why

> the tobi and cipro didnt clear the crackle.He use to do his vest

> once daily, but it was upped to twice a day, which might I add was

a

> living nightmare for me to deal w/my ornery defiant son who hates

> the world because of this cf stuff anyway!I did everything I could

> just the way I was suppose to I now I feel a little like a failure

> (The fact that my husband and family insinuate that its my fault

hes

> sick to begin with doesnt help.)The stress this cf puts on my

> household is, well I cant even find a word for it.But I am aware

> that my marriage cant sustain much more, its been a shaky 6 yrs

> anyway.(quite frankly I've outgrown him and we'd all be alot better

> w/out him but Ted was right when he posted how hard it is to make

it

> as a single caretaker of a cfer, ESPECIALLY when you have other

> children).

> Patty, mom to Ty,8,w/cf and 2 wo/cf