Re: 1 years since I knew something was wrong...

December 6, 2003

Val,

I think that Torin is very lucky to have a mommy like you. We do not

know what is always best. I think Torin's life is going to be

different than most kids but on the other hand we all face our own

chalenges and they are as tough as the the next guys. My middle

child has had a very tough time learning how to read, every Saturday

we have to drive him to the town next door to us, to a tutor. Today

he was complaining that he has it so hard. I laughed inside of me,

if he only knew what the word means. On the other hand we are lucky

in the sense that we treasure every moment that we spent with our

kids, most people take a lot of things for granted, we don't. So,

my point is that enjoy your baby as much as you can, they grow very

fast. Once they hit those terrible two's is down hill, just joking

that's when the fun begins! It is very hard to tell a new mom to

relax every thing falls right in place as you go along, the second

child is usually a breeze.

I do not want to comment about the doctor the same thing happen to me

when I had a miscarriage, heartless is the word.

Love to you Val and to your baby Torin,

> Hi everybody....it has been one year since CF came and change our

> life, but then we had no idea it was CF...I went to the ob/gyn

> appointment and my belly was 10 in larger than normal...the doctor

> sent me to a specialist at the same time...there I had one of the

> saddest hours of my life...the doctor was looking at the ultrasound

> and ask if I have hands derformation history thru my family. I said

> no! he said...your baby has just 3 finger on his hand...and

deformed

> legs ...and a obstruction in his intestines ( cold like that)...I

> cry out loud...the only thing I said was " I want my mum " over and

> over...they took 2 liters of liquid of my belly and did a

> amniosintesis ( ok..had no idea how to sp...)....the result came

> normal...no abnormality...I have no idea how it happened...I guess

> they didn't test to cf...it was kind obvious that CF was a

> possibility...well...one month latter they induced torin ...dind't

> work...I had a c-section then...he has all the fingers..perfect

> legs...but the amnio was wrong....there was a abnormality...he has

> CF...I wondered once...maybe it would be better the 3 fingers and

> the problems with his legs than CF...but My mum always says...Life

> gives us exact what we are able to handle...Life gave me a baby w/

> CF...And we will deal w/ it just fine.

> I just wanted to share...

> love u all

> val

> mum of torin w/ cf and 10 fingers, perfect legs , trying to walk

December 7, 2003

YOUR MOM is sooooooo right!! It seems she also raised a wonderful little

gal who grew to be a wonderful MOM herself. ------soooooo, the story will

also say, Had a wonderful wee son who also will grow up to be a wonderful

son & live happily ever after .......as the one who gave us the life sees

fit!!

Have a great week , sweet gal!

LOVE & HUGS,

GrandmomBEV

1 years since I knew something was wrong...

Hi everybody....it has been one year since CF came and change our

life, but then we had no idea it was CF...I went to the ob/gyn

appointment and my belly was 10 in larger than normal...the doctor

sent me to a specialist at the same time...there I had one of the

saddest hours of my life...the doctor was looking at the ultrasound

and ask if I have hands derformation history thru my family. I said

no! he said...your baby has just 3 finger on his hand...and deformed

legs ...and a obstruction in his intestines ( cold like that)...I

cry out loud...the only thing I said was " I want my mum " over and

over...they took 2 liters of liquid of my belly and did a

amniosintesis ( ok..had no idea how to sp...)....the result came

normal...no abnormality...I have no idea how it happened...I guess

they didn't test to cf...it was kind obvious that CF was a

possibility...well...one month latter they induced torin ...dind't

work...I had a c-section then...he has all the fingers..perfect

legs...but the amnio was wrong....there was a abnormality...he has

CF...I wondered once...maybe it would be better the 3 fingers and

the problems with his legs than CF...but My mum always says...Life

gives us exact what we are able to handle...Life gave me a baby w/

CF...And we will deal w/ it just fine.

I just wanted to share...

love u all

val

mum of torin w/ cf and 10 fingers, perfect legs , trying to walk

-------------------------------------------

The opinions and information exchanged on this list should IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS.

------------------------------------

December 7, 2003

Hi, Val

Thankyou for sharing w/us.That must ahve been a very scary time for

you.It brought tears to my eyes remembering the day thhe dr called

me on the phone (how impersonal) to tell me Ty had cf.I dropped to

the floor crying, I dont think I quit crying for about 2 yrs, during

which time I threw myself into alchol.He was dx almost 6 yrs ago.I

finally quit drinking 3 1/2 yrs ago to be a better mom.Its funny how

life throws things at you and how you handle it.I'm a better person

now because of it.I feel I can handle just about anything.Some days

as you know are rough, but you really can handle it.We just have to

be strong, for our children, and thats enough incentive for me.

Patty, mom to Ty,8, wcf & 2wocf.

> Hi everybody....it has been one year since CF came and change our

> life, but then we had no idea it was CF...I went to the ob/gyn

> appointment and my belly was 10 in larger than normal...the doctor

> sent me to a specialist at the same time...there I had one of the

> saddest hours of my life...the doctor was looking at the

ultrasound

> and ask if I have hands derformation history thru my family. I

said