Leap of Faith

[Guest guest]

Hello group,

I'm sorry to so long to get back in touch with you guys. I've

been going through a lot of problems and doing a lot of searching. I

was told about nine months ago that I would only be able to keep

stenting my pancreas for 12 to 18 months, after that my only option

would be TP, without the chance of ICT, turning me into a surgical

diabetic. The relationship between myself and my GI doctor has been

deteriorating since my doctor reached what he believed was

appropriate and final pain control which was Lorcet four times a

day. I had to get some type of relief and by a strange twist of

fate, while I was in the hospital recovering from an attack, I was

administered an IM shot for pain and the nurse apparently injured my

sciatic nerve which gave me another incurable curse called RSD or

CRPS, anyway I was now on my way to finally getting help for my pain.

Anyway after my last stenting I had the most violent and

painful " recoveries " that I have ever had, I was actually vomiting

blood, but my GI doctor discharged me from the hospital before my

condition stablized enough for me to even ingest water. I have had

enough, I had an appointment today and told him that I want him to

remove whatever is left inside me. I really am not comfortable with

him prefoming the ERCP to get this done but I don't think that I

could find another doctor who will preform the procedure. I was led

to believe that on my last ERCP that I had my old stent removed but I

found out that the old stent was left in and two more stents were

added. I have been having more bouts of vomiting and nausea than I

have had in years. So I prayed, then I prayed some more, then I

finally found an answer. Since I was going to run out of pancreas to

stent anyway,I might as well face this now. I told every one in my

family about my decision and they all stand behind me and the

decision that I have made. I am going to put the whole thing in

God's hands since no doctor living has an answer for this disease

anyway. I know in my heart this is the right decision. So I ask all

of you to pray with me and I'll try to stay in touch as well as I

possibly can. God bless you all. I'd appreciate any feed back from

the group on this.

Sincerely,

Percy L.

Dallas, TX

P.S. A special hello to Heidi, you have always been especially

supportive.

[Guest guest]

Dear Percy, Before you make such a life changing decision, why don't you

email Dr. Sutherland to see if he could help you in any kind of way. Before

talking about surgical diabetes. Why not do a full panctreatectomy, then get

cadavers to give you your islets and you wont be diabetic just have to take

rejection pills? Its an option to look at. It sounds to me as if your Dr.

doesn't want to admit hes not sure what to do. I think you should look into an

second opinion to see your options. If you have any questions email me back

please. Love Always,

Leap of Faith

Hello group,

I'm sorry to so long to get back in touch with you guys. I've

been going through a lot of problems and doing a lot of searching. I

was told about nine months ago that I would only be able to keep

stenting my pancreas for 12 to 18 months, after that my only option

would be TP, without the chance of ICT, turning me into a surgical

diabetic. The relationship between myself and my GI doctor has been

deteriorating since my doctor reached what he believed was

appropriate and final pain control which was Lorcet four times a

day. I had to get some type of relief and by a strange twist of

fate, while I was in the hospital recovering from an attack, I was

administered an IM shot for pain and the nurse apparently injured my

sciatic nerve which gave me another incurable curse called RSD or

CRPS, anyway I was now on my way to finally getting help for my pain.

Anyway after my last stenting I had the most violent and

painful " recoveries " that I have ever had, I was actually vomiting

blood, but my GI doctor discharged me from the hospital before my

condition stabilized enough for me to even ingest water. I have had

enough, I had an appointment today and told him that I want him to

remove whatever is left inside me. I really am not comfortable with

him performing the ERCP to get this done but I don't think that I

could find another doctor who will preform the procedure. I was led

to believe that on my last ERCP that I had my old stent removed but I

found out that the old stent was left in and two more stents were

added. I have been having more bouts of vomiting and nausea than I

have had in years. So I prayed, then I prayed some more, then I

finally found an answer. Since I was going to run out of pancreas to

stent anyway,I might as well face this now. I told every one in my

family about my decision and they all stand behind me and the

decision that I have made. I am going to put the whole thing in

God's hands since no doctor living has an answer for this disease

anyway. I know in my heart this is the right decision. So I ask all

of you to pray with me and I'll try to stay in touch as well as I

possibly can. God bless you all. I'd appreciate any feed back from

the group on this.

Sincerely,

Percy L.

Dallas, TX

P.S. A special hello to Heidi, you have always been especially

supportive.

[Guest guest]

Percy,

I believe that whatever decision you come to will be the direction

God wants you to take. If you choose to consult with Dr Sutherland

(which is something I would be doing should I be in your shoes),

that is the decision He would have helped you come to. I hope you

find some success soon.

[Guest guest]

Percy,

I too made a " leap of faith " last year because the surgeries and

constant ERCPs were actually making me sicker. The only foreign

implement in my body know is a port a cath since I have no IV access

if I am hospitalized. All I have been doing is watching what I eat

and hollistic meds. I have gone from having an attack every week to

one every 6-8 weeks and now longer need to use my durigesic patches.

Needless to say my quality of life is much better in my opinion. I

know this isn't the best approach for everyone but you come to the

point to where enough is enough of poking and proding that doesn't

result in fixing you. I wish you awacb too!!

> Percy in Dallas here, and I would first like to wish you all

to be A.W.A.C.B. (as well as you can be). It seems that I may have

given some of you the wrong impression as to what my " leap of faith "

amounts to. I have made the decision to have all foreign implements,

implants, and basically anything that isn't original taken out of my

body and will not allow anymore ercp's, probes, or prodding done to

my body. I feel that it has become counterproductive.

>