Re: Hal - Give this a Shot

[Guest guest]

Hi: My doctorate is in jurisprudence not medicine, but I will try to

answer from personal experience only. Bacteria and mold colonize the

cavities in the body, and saying that a person is staph or pseudomonas

free is probably not being fair in the diagnosis. When I was ten and was

suffering from sinus infections, I developed nasal polyps, I was

diagnosed as having food allergies and put on a strict diet. I had

little strength to fight off the infections that ravaged me. I was able

to talk my way off the diet, gained weight, felt better but still had

polyps galore. It is more likely the polyps were caused by bacteria

infections rather than allergies as it has only been the past few years

that I haven't grown polyps. In my opinion (stand back for this one)

staph a. and pseudomonas, aspergillus, etc. will always inhabit a person

with CF, as they inhabit people who don't have the disease. They can

hang around in mucous and though we may have productive coughs, the

production of mucous is what makes this disease so insidious. By

maintaining a regimen of prevention as best we can and being disciplined

enough to do whatever is necessary to fight the infections when they

begin to take over, we hope to overcome the culprits. My two mutations

are:

W1282X and A455E. My first DNA was done at Baylor Univ., Dallas, and the

second study was done at Uni. of North Carolina. I go to the CF adult

center at Yale, and they want to eventually put me in a bottle for

display. I get to finish what's in the bottle first! Hal

Re: Gosh!

>

> My oldest has pseudomonas in her sinuses. So are you saying there is

> know way

> of getting rid of it out of you sinuses? We have been trying

everything.

>

> Neblizing antibiotics through her nose and nothing seems to work.

Deb A

>

>

>

[Guest guest]

This is pretty good. You & Shores will make a great display.

She is 76+ , so between you , that's a bunch of years. We all want to

know exactly what you both did that worked so very well.!!

Love & hugs,

GrandmomBEv

Re: Gosh!

>

> My oldest has pseudomonas in her sinuses. So are you saying there is

> know way of getting rid of it out of you sinuses? We have been trying

everything.

>

> Neblizing antibiotics through her nose and nothing seems to work.

Deb A

>

>

>

[Guest guest]

In a message dated 12/17/2003 12:20:30 PM Central Standard Time,

reamsfarm@... writes:

Joe Reams

This is exactly what my daughter is going through too. She has positive nose

culture and positive throat culture but negative bronchoscope. Our doctor

tells me that the pseudomonas is draining on to the throat but is not in the

lungs

because of the antibiotic we keep her on so it eradicates it before it can.

Deb A