Guest guest Posted November 27, 2003 Report Share Posted November 27, 2003 Hi Barbara, I don't know about your question, but would it be possible to get Kristy a compressor and nebulizer to use at home? My daughter feels a neb treatment helps her asthma much more than a few puffs of ventolin. I am surprised Kristy doesn't have one. I'd definitely look into getting her one if she doesn't have one already. love, M mom of Nick age 21 nocf, used to have asthma, and 19 wcf and asthma Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 27, 2003 Report Share Posted November 27, 2003 Hi We do have a compresser and nebuliser at home but when it comes to asthma meds her specialist hates it being used...too many germs carried in nebs! (even though we have a few times lately because Kristy was just too exhausted to do 12 puffs via the spacer at bedtime). Also got the lecture from the emergency room too about it's more effective delivery via a spacer. I was quite surprised when I found out last year 1 neb of ventolin is equal to 12 puffs. I am lucky enough to have plenty of ventolin nebs left from when my eldest needed them mid year. Sometimes I feel like I'm walking a tightrope dealing with doctors Barbara > Hi Barbara, > I don't know about your question, but would it be possible to get Kristy a compressor and nebulizer to use at home? My daughter feels a neb treatment helps her asthma much more than a few puffs of ventolin. I am surprised Kristy doesn't have one. I'd definitely look into getting her one if she doesn't have one already. > > love, > M > mom of Nick age 21 nocf, used to have asthma, and 19 wcf and asthma > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 27, 2003 Report Share Posted November 27, 2003 Barbara, You mean her CF specialist? Interesting, I feel like I am missing something, does she have cf? Does she do pulmozyme(Dnase) or Tobi? " too many germs in nebs " . You know we do sometimes 5 nebs a day and we have to. I just don't know where they are coming from. Am I missing something? How old is your child? mom of a 10 wcf, Venanzio 7 nocf, Pepe 3 nocf > > Hi Barbara, > > I don't know about your question, but would it be possible to get > Kristy a compressor and nebulizer to use at home? My daughter > feels a neb treatment helps her asthma much more than a few puffs of > ventolin. I am surprised Kristy doesn't have one. I'd definitely > look into getting her one if she doesn't have one already. > > > > love, > > M > > mom of Nick age 21 nocf, used to have asthma, and 19 wcf > and asthma > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 27, 2003 Report Share Posted November 27, 2003 Hi Yes it is her CF specialist. Some time ago Kristy asked if she could take her atrovent via the nebuliser because it worked so much better during a hosptial stay (not the normal hospital). Kristy was informed NO WAY, nebulisers can carry too many germs. I queried this because Kristy is on Pulmozyme, (and has had nebulised antibiotics in the past) the doctor informed us that is only because there isn't another way to take it. Arguing/discussing is not an option I feel confident about, have to confess I am somewhat intimidated by this doctor most of the time - trying to find solutions for this. Barbara Mum to Nicky 15 wocf and Kristy 13 wcf > > > Hi Barbara, > > > I don't know about your question, but would it be possible to > get > > Kristy a compressor and nebulizer to use at home? My daughter > > feels a neb treatment helps her asthma much more than a few puffs > of > > ventolin. I am surprised Kristy doesn't have one. I'd definitely > > look into getting her one if she doesn't have one already. > > > > > > love, > > > M > > > mom of Nick age 21 nocf, used to have asthma, and 19 wcf > > and asthma > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 28, 2003 Report Share Posted November 28, 2003 too many germs in nebulizer? I have never heard such a thing wow...we do treatments around the clock every 4 hours thats interesting Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 28, 2003 Report Share Posted November 28, 2003 Hi Barbara, I just saw your signature and realized you are not in the USA, that might be the difference. We, in the USA, are told to wash all the neb cups with warm, soapy water and let air dry, desinfect every other day. I hate the fact that you are intimidated by the doctors but if you feel like they are doing what is right for her and she is doing well, that's the most important thing. I wish you the best. > > > > Hi Barbara, > > > > I don't know about your question, but would it be possible to > > get > > > Kristy a compressor and nebulizer to use at home? My daughter > > > feels a neb treatment helps her asthma much more than a few > puffs > > of > > > ventolin. I am surprised Kristy doesn't have one. I'd > definitely > > > look into getting her one if she doesn't have one already. > > > > > > > > love, > > > > M > > > > mom of Nick age 21 nocf, used to have asthma, and 19 > wcf > > > and asthma > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 28, 2003 Report Share Posted November 28, 2003 Barbara, I haven't had any experience yet with CF but I know with my son's asthma there is different opinions about nebs vs puffers. We go to a children's hospital ER when our son's asthma gets bad which means seeing different doctors. Everytime we go the discharge plan is different. Some want him on neb only, some puffer only, some say use whatever suites us - it can get confusing. I discussed this confusion with one specialist and he gave me some advice I have found very helpful. He said to me " You are a Liamologist " - in otherwards I am the one that sees him on a daily basis. I know what works and what doesn't. He expressed that parents need to feel a vital part of the medical team. This advice has helped me learn to not be intimidated by the doctors. Also taking someone with you can really help - especially if you have a friend in the medical field. (My husband is a nurse - he's great with the docs " As far as the neb issue goes - for my son's asthma when he is having episodes we use the neb. For him it seems to work better. Hope you find some answers ASAP. Carolyn in Canada > > > > Hi Barbara, > > > > I don't know about your question, but would it be possible to > > get > > > Kristy a compressor and nebulizer to use at home? My daughter > > > feels a neb treatment helps her asthma much more than a few > puffs > > of > > > ventolin. I am surprised Kristy doesn't have one. I'd > definitely > > > look into getting her one if she doesn't have one already. > > > > > > > > love, > > > > M > > > > mom of Nick age 21 nocf, used to have asthma, and 19 > wcf > > > and asthma > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 28, 2003 Report Share Posted November 28, 2003 I was wondering about that too, because sometimes we also do around 7 nebs a day counting pulmozyme and Tobi. The nebs can be boiled or soaked in control 3. " Too many germs " doesn't really make sense to me either. A breathing treatment is more effective than the inhaler, imho. love, M Re: CF and Asthma Barbara, You mean her CF specialist? Interesting, I feel like I am missing something, does she have cf? Does she do pulmozyme(Dnase) or Tobi? " too many germs in nebs " . You know we do sometimes 5 nebs a day and we have to. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 28, 2003 Report Share Posted November 28, 2003 Hi We wash all the neb cups daily in warm soapy water and I boil them every other day. Barbara > Hi Barbara, > > I just saw your signature and realized you are not in the USA, that > might be the difference. We, in the USA, are told to wash all the > neb cups with warm, soapy water and let air dry, desinfect every > other day. I hate the fact that you are intimidated by the doctors > but if you feel like they are doing what is right for her and she is > doing well, that's the most important thing. > I wish you the best. > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 28, 2003 Report Share Posted November 28, 2003 Thanks Carolyn! It would be so much easier if the info was consistent all the time. I feel better since speaking to our GP yesterday, his advice was very similar to what the specialist gave you. Barbara > Barbara, > I haven't had any experience yet with CF but I know with my son's > asthma there is different opinions about nebs vs puffers. We go to a > children's hospital ER when our son's asthma gets bad which means > seeing different doctors. Everytime we go the discharge plan is > different. Some want him on neb only, some puffer only, some say use > whatever suites us - it can get confusing. > > I discussed this confusion with one specialist and he gave me some > advice I have found very helpful. He said to me " You are a > Liamologist " - in otherwards I am the one that sees him on a daily > basis. I know what works and what doesn't. He expressed that > parents need to feel a vital part of the medical team. > > This advice has helped me learn to not be intimidated by the doctors. > Also taking someone with you can really help - especially if you have > a friend in the medical field. (My husband is a nurse - he's great > with the docs " > > As far as the neb issue goes - for my son's asthma when he is having > episodes we use the neb. For him it seems to work better. > > Hope you find some answers ASAP. > > Carolyn in Canada Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 28, 2003 Report Share Posted November 28, 2003 Barbara, I boiled our neb cups one time, biggest mistake. I was not supposed to boil them and I damaged them, :-) My kids thought it was funny. > > Hi Barbara, > > > > I just saw your signature and realized you are not in the USA, > that > > might be the difference. We, in the USA, are told to wash all the > > neb cups with warm, soapy water and let air dry, desinfect every > > other day. I hate the fact that you are intimidated by the > doctors > > but if you feel like they are doing what is right for her and she > is > > doing well, that's the most important thing. > > I wish you the best. > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 29, 2003 Report Share Posted November 29, 2003 OH I forgot to mention, you can only boil the pari nebs, not the disposable kind you get in the hospital or cheaply out of the hospital. (sorry) love, M Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.