Guest guest Posted June 12, 2002 Report Share Posted June 12, 2002 Ok as some of you know we did a ? thingy since before X mas. And I thought since we have so many new members I will ask once more and also ask for Part 4 of this.Here first are the first 3 ? we had. If you have not done this yet please do so. Yes we also would like to use your stories in our news letters. 1st ? was : How long did you have RP ?? 2 1/2 yrs When where you finally Diagnosed with it?? October 1999 2nd? was : How have you dealt with it since ?? One day at a time What is the worst Part of dealing with RP?? The not knowing of what is going to happen with my health 3th ? was : What kind of support do you have at home ?? I have a wonderful husband that worrys about me and trys to understand what I am going through. I really dont talk alot about it to my 2 girls as they have enough problems in there life right now. Now part 4 is a little harder but very important also. Part 4 is for your spouse and Family !!! Please ask you spouse and Family to help us get part 4 together. Part 4 : What is the hardest part in dealing with our loved ones RP ?? What could the do to help us to help them ?? My Husband says: He really worrys about me, When I get upset, he always says: Dont get stressed out, I dont want you to Flare!!!! He also says its hard to remember I have this diease as I look fine most of the time when I am not flaring. He gets mad when I am not feeling good and I dont say anything. What he says I could do to help him is to have him more involved in my health. If I want him to go to the Dr with me I should ask him and not feel like I am bothering him. Quote Link to comment Share on other sites More sharing options...
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