Re: Article re: Young Children and Pa

[Guest guest]

If anyone is interested in this article and is having trouble tracking

it down, let me know. These are my daughter's doctors, I'm sure they

have copies of it.

Mom to Ellie, almost one year old! wCF and Jack 3yrs noCF

Article re: Young Children and Pa

-The exact title of the article is " Pseudomonas acquisition in young

patients with Cystic Fibrosis " from the Journal called CURRENT

OPINION IN PULMONARY MEDICINE 9: 492-497, 2003 Author Margaret

Rosenfeld, Bonnie Ramsey and L Gibson

I can't type in the whole thing but the summary says:

Chronic lower airway Pa infection is associated with significant

morbidity and mortality among CF patients. However, first acquisition

of Pa does not appear to cause an immediate and rapid decline in lung

function. Early Pa isolates non-mucoid, antibiotic sensitive and

present at low density suggesting a possible " window of opportunity "

for early intervention.

Anti-pseudomonal therapy for early infection results in transient Pa

eradication, be in-infection with Pa appears inevitable despite early

aggressive treatment. There are no controlled trials demonstrating

clinical benefit in young children. There is a critical need for

further investigation of the clinical outcomes associated with early

intervention, the long term safety profile and the optimal drug

regime.

I couldn't get a copy online but I got a photocopy from the

librarian

at our Children's Hospital. She would do this for anyone staff or

family.

Tina Mertz

-------------------------------------------

The opinions and information exchanged on this list should IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

TREATMENTS.

------------------------------------

[Guest guest]

Hey we see Dr Gibson at Seattle Children's too. And I work in the

Infant ICU there!

Tina mom to Zoe 3 woCF and almost 2!! with CF

[Guest guest]

I would like a copy of this article if your doctor has extras.

Thanks! Happy Birthday Soon Ellie!!

Sara

> If anyone is interested in this article and is having trouble

tracking

> it down, let me know. These are my daughter's doctors, I'm sure

they

> have copies of it.

>

>

> Mom to Ellie, almost one year old! wCF and Jack 3yrs noCF

[Guest guest]

I have been in the IICU for about 18mo here in Seattle and I actually

think I do remember when Ellie was born, because I keep an eye out

for mec. ileus babies since they are dear to my heart. But since

dealing with the mec ileus alone is so huge I don't usually say

anything about my son to the parents unless they understand the

diagnosis of CF already because it is a huge one.

I see doctor Gibson but I have also seen Dr Ramsey and they are both

considered " the best " . So our babies are in good hands.

I'm glad to hear she is doing well.

Tina

> Hi Tina,

> I've actually only met Dr Gibson, Dr Ramsey is Ellie's Doc. We

also see

> Dr Rosenfeld for the PFTs. We spent time in the ICU when Ellie was

born

> (she had meconium ileus. How long have you been there?

>

> Mom to Ellie, almost one year old! wCF and Jack 3yrs noCF

>

> Re: Article re: Young Children and Pa

>

> Hey we see Dr Gibson at Seattle Children's too. And I work in the

> Infant ICU there!

>

> Tina mom to Zoe 3 woCF and almost 2!! with CF

>

>

>

>

> -------------------------------------------

> The opinions and information exchanged on this list should IN NO

WAY

> be construed as medical advice.

>

> PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

> TREATMENTS.

>

> ------------------------------------

>

>

>

[Guest guest]

---Hi I am in Walla Walla, my daughter Amber 15 w/ cf see's her

doctor here and see's Dr. McCarthy over in Spokane. She has also

seen Dr. Ramsey a few times when she was first diagnosed 3 yrs ago.

It is nice to see other people from this area here. Amy, do you know

of any support groups over in the Tri-Cities? I would love to find

one there.

Margo

In cfparents , " losterloh2 " <losterloh2@a...> wrote:

> Hi Amy! I was thinking the same thing; it's nice to see other

> Washingtonians on the list.

>

>

> Re: Re: Article re: Young Children and Pa

>

> HI,

>

> DON'T KNOW THOSE DR'S BUT LIVE IN PASCO IN EASTERN WA , WE GO TO

CLINIC

> IN SPOKANE , MY SON NATHAN IS 2.5 YRS OLD AND HAS HAD PA TWICE. I

> RECENTLY DID A RESEARCH STUDY FOR SOME DR.S FROM SEATTLE CHILDREN'S

> HOSPITAL. JUST NICE TO SEE A COUPLE WASHINGTON PEOPLE ON THE

LIST.TAKE

> CARE

>

> AMY MOM TO NATHAN WITH CF

>

>

>

> Re: Article re: Young Children and Pa

>

> Hey we see Dr Gibson at Seattle Children's too. And I work in

the

> Infant ICU there!

>

> Tina mom to Zoe 3 woCF and almost 2!! with CF

>

>

>

>

> -------------------------------------------

> The opinions and information exchanged on this list should IN NO

WAY

> be construed as medical advice.

>

> PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

> TREATMENTS.

>

> ------------------------------------

>

>

>