Re: , SOD

[Guest guest]

Thanks Sonja (my grandmother's name is Sonya -- Ukraine) for sharing

your story. My pain is mainly on the right side between my ribs and

under my right ribs (seems deep) radiating thru to the back.

Sometimes I feel it on the left too but not as severely. Have you

been to a gastroenterologist yet? My docs (even the gastro doc)

seem puzzled as well, hence the recent referral to the Lahey Clinic

in Boston MA. I have to wait until June 24th just to get in up

there. My pain is a daily occurrence now, it used to be every few

days after my GB removal but now it's everyday. Keep in

touch....some of the members of this group have forwarded me some

interesting articles, etc., on SOD, if you'd like them I'm sure they

wouldn't mind if I forwarded them to you as well.

Well, I'm off to the blood lab to be tested for anemia. I am so

weak and tired the last few days. I've been sleeping until noon,

but getting up to get my little son (8 yrs old) off to the school

bus and then back to bed until noon. I'm still tired right

now...anyway hope this finds you having a pain free day and thanks

for writing.

> Hello , just read your mail. I was in hospital for two weeks

last

> winter extremly ill. With painattacks breaking the roof, radiating

to my

> back, left side under the ribs and like a grip deep inside. Loosing

> weight, getting moments nearly loosing conciousness. I had elevated

> Liver tests ALAT Up to 6 and ASAT also raised. An ultrasound when

they

> thougth I had a kidneystone attack with some inlflamed parts

showed up

> leftside stomachwall (?) then MRCP and nothing but there but a

> thickened leftlungwall, then lungxray and then nothing, mystery

the docs

> said and left it, probably nothing serious...Everyone not beeing a

doc

> could see that I was really very ill. I was in hospital for 2

weeks with

> increased livertests and then it has been up and down with pain

and

> poblems. At the moment lucky because of weeks without pain, gaining

> weight 1 kg a week 2 pounds a week, on enzymes, but all the time

afraid

> of this horror starting again. Just want to find out as much as

possible

> about SOD, my doctors are ignorant, just leave me and send me to

the

> psychiatrist, last liver tests were ok. Sorry to burden you with my

> story but I just need to go on investigating myself and recognized

some

> of what you wrote and have been observing SOD symptoms discribed

by mail

> before. Bye for now and best regards from Sonja

>

>

>