Jump to content
RemedySpot.com

Re: Re: oily stools again

Rate this topic


Guest guest

Recommended Posts

Sara,

I understand your frustration. It took us nearly 8 months before Piper finally

started having " normal " poops. She is on the Creon 10 right now (2 with each

meal), and so far has done really well on them. If she snacks, she gets one

Creon 5. We found that the end result was the same whether she got too many

enzymes or not enough enzymes, so it was difficult to find the " happy medium "

but I think that we have it right this time. I hope that you get everything

straightened out with your Zach. But if I could offer one bit of advice to

you.......... Go with your gut feeling, if you think that he needs his enzymes I

would definitely push the issue with his doc.

Katy

Mom to Austin 4 no CF & Piper 15 months w/CF

Link to comment
Share on other sites

Sara,

You idea is very possible. We talked to our doctor once about having this

test done. He informed us that it was necessary to prevent anything from

absorbing into the diaper. We were told to try and find the old disposable

diapers with the plastic outside and turn them inside out, so the plastic

was on the baby's bottom. We did not do the test, so I do not know where

the diapers are sold.

Good luck!

Colleen

Mom to Elyse, 2 1/2 wcf

Re: oily stools again

The GI doc seems to think that his gene mutations could indicate

pancreatic sufficiency and his fecal fat stool test was really low.

I think I have figured out why the fecal fat stool test may have

been unusually low. They told me to collect the stool for 72 hours

in a container. By removing his stool from the diaper, I think I

was removing the stool but not the fat. The fat is absorbed into

the diaper. I might need to bring this to the GI docs attention.

It was done before we started seeing him.

We have tried Ultrase and now we are on Pancrecarb. We used

anywhere from one enzyme per meal up to six. We have been

increasing and decreasing enzymes for eight months.

Zach's cf doc says that 90% of the time patients start enzymes and

the problem is fixed. Zach has had either all yellow mushy poop or

formed poop with lots of oil. He has gone from the 10 pecentile for

weight in August to 5th pecentile in October. He just can't gain

weight unless he is on antibiotic for an ear infection. Then when

he goes off the antibiotic he loses the weight he gained. Weird.

He will be getting tubes in his ears soon, so hopefully no more ear

infections.

It is all so confusing. Hopefully the test results will come back

quickly.

Sara

> I think you are right Sara. Have they tried several different

types

> of enzymes as well as doses? The greasy stuff is not normal. What

> makes themthink he is pancreatic sufficient? (Sorry if I missed

this

> info. I may have skipped over it during my hiatus)

> Lenora

>

> >Hi Everyone,

> >Zach's cf doc agreed with his GI doc to try going without enzymes

to

> >see if Zach could be pancreatic sufficient. We won't have the

> >elastase stool test results for two weeks. This morning Zach had

a

> >normal sized formed brown bowel movement and an enormous amount of

> >oil in his diaper. I called the GI doc to tell him I was going to

> >give him enzymes again and his nurse said the GI doc preferred

that

> >he not be on enzymes, but it was ok to try them again. I am so

> >confused. What is this oil if it is not fat malabsorption? I

have

> >a strong suspicion that Zach is pancreatic insufficient and we

just

> >haven't found the right dosage or right enzymes yet.

> >Sara - mommy of Zach 20 months

> >

> >

Link to comment
Share on other sites

We have been using the GSH now for about 6 weeks and really haven't seen a

whole lot of changes in my girls until today. There stools look TOTALLY NORMAL!!

In fact my oldest complain to me that she is having a little problems getting

her stools out. Can you BELIEVE THAT!!! I didn't think there stools could

ever look totally normal. We go into clinic on Tuesday I will let you all know

how things go. Wish me luck!!!! and keep you fingers cross that it has help to

keep the bacteria's away. Deb A

Link to comment
Share on other sites

We keep hearing this each day. Our orders are soaring. I hope the others

who are planning trials will hurry them up . It sure is less expensive they

any other treatment & works well with the other necessary meds too. Great

news for you,

LOVE & HUGS, GrandmomBEV

Re: Re: oily stools again

We have been using the GSH now for about 6 weeks and really haven't seen a

whole lot of changes in my girls until today. There stools look TOTALLY

NORMAL!!

In fact my oldest complain to me that she is having a little problems

getting

her stools out. Can you BELIEVE THAT!!! I didn't think there stools could

ever look totally normal. We go into clinic on Tuesday I will let you all

know

how things go. Wish me luck!!!! and keep you fingers cross that it has help

to

keep the bacteria's away. Deb A

Link to comment
Share on other sites

Join the conversation

You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.

Loading...
×
×
  • Create New...