's infor re rp and ear involvement

May 9, 2002

(and everyone else, of course) I think that

reply was pretty accurate from my point of view. I

think I have had tracheal involvement from the

beginning, as I used to get these asthma or asthma

like attacks which involved stridor (you know,

breathing like a baby with croup). However although I

had no dx of rp until relatively recently, I was

always put on steroids, there is still only slight

tracheal narrowing. Actually since I have been on

metho and plaquenil - and pred! I have not had any of

these attacks, which makes my life so much easier!!

Also we know from group experience that we are all

different; I think the positive feeling is that it

does not necessarily get worse or progress to

everywhere. The hard thing is to get under control,

and as Heidi always says take your meds and vitamins

on time!

Also, , funnily enough, I have also found my

hair curls more easily on plaquenil!!! One side effect

I am quite happy with - it minimises the thinning!

Love Liz

__________________________________________________

May 9, 2002

In a message dated 5/9/02 2:04:42 AM Pacific Daylight Time,

lizwizz2000@... writes:

<<

Also, , funnily enough, I have also found my

hair curls more easily on plaquenil!!! One side effect

I am quite happy with - it minimises the thinning!

Love Liz >>

Liz, glad to hear that, I thought maybe I was just imagining it. LOL Got my

hair cut yesterday and said " Hey, what's with this curl??? " I

blamed it on the meds , but then thought maybe it was just old age. LOL

Hope you have a great day Liz, I'm off to go to court with . Keep

those fingers crossed again. LOL

hugs

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