Guest guest Posted August 14, 2009 Report Share Posted August 14, 2009 Hi - I just found out my 12 month old has scaphocephaly. We are going to childrens hospital next week to see a specialist. Has anyone been treated at 1 year? Everthing i have been reading people have caught this at around 3 months of age? Thanks - Lori Ann Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 15, 2009 Report Share Posted August 15, 2009 lorianne a friend of mine got her son treated at just under a year for scaph he had the helmet for i believe close to 5 months while he is not is not perfectly round a little longer in back he turned out really good you cant really tell at all. she got him treated after she noticed my son had a helmet for brachy and plagio the results looked good and he has no asym in the face or ears. try not to worry we do the best with what we know and it sounds like you are doing every thing right. one day at a time, it will be ok. emily lv nv>> Hi Lori ann, > The scaphy head shape is less common, but I would think the helmet/band would still be effective after 12 mo (as with plagio and brachy). When you do get to an ortho check how much experience they have with scaphy. Where do you live? Maybe someone has local experience.> -christine> sydney, 3.5 yrs, starband grad> > > >> > Hi - I just found out my 12 month old has scaphocephaly. We are going to childrens hospital next week to see a specialist. Has anyone been treated at 1 year? Everthing i have been reading people have caught this at around 3 months of age?> > > > Thanks - Lori Ann> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2009 Report Share Posted August 16, 2009 You can try Cranial Tech in Clinton CT. It is a bit far but many people in the Boston area think it is worth the drive. I think there are also one or two Hanger offices you might check out. You can searching old messages. Cranial Tech has a very good reputation, and I know they design their band slightly differently when dealing with scaphy. -christine sydney, 3.5 yrs, starband grad > > > > > > Hi - I just found out my 12 month old has scaphocephaly. We are going to childrens hospital next week to see a specialist. Has anyone been treated at 1 year? Everthing i have been reading people have caught this at around 3 months of age? > > > > > > Thanks - Lori Ann > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2009 Report Share Posted August 16, 2009 Thanks! I will check it out. From: christineashok <christineashok@...>Subject: Re: ScaphocephalyPlagiocephaly Date: Sunday, August 16, 2009, 7:08 PM You can try Cranial Tech in Clinton CT. It is a bit far but many people in the Boston area think it is worth the drive. I think there are also one or two Hanger offices you might check out. You can searching old messages. Cranial Tech has a very good reputation, and I know they design their band slightly differently when dealing with scaphy.-christinesydney, 3.5 yrs, starband grad> > >> > > Hi - I just found out my 12 month old has scaphocephaly. We are going to childrens hospital next week to see a specialist. Has anyone been treated at 1 year? Everthing i have been reading people have caught this at around 3 months of age?> > > > > > Thanks - Lori Ann> > >> >> Quote Link to comment Share on other sites More sharing options...
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