,,by all means ramble.. : )

[Guest guest]

,

Please correct me if I am wrong but did you say one time you were from RI?

Anyways I wanted to say don't ever feel as if your rambling on about yourself

for I remember feeling the same way you did when I first met Karyn, starved

for whatever information I could find. With knowledge there is power and if

one can teach others by what they learn then by all means ramble...: ) If you

know what I mean. By listening to you it sounds exactly as Brandan described

to me when our journey with this disease started in 2000, the color of your

skin, Brandans turned a pasty white, black rings under his eyes and yes the same

pain you describe from the right to the back sometimes radiating to the left.

Brandan was never sick, so it did puzzle and still puzzles many. I say that

because Brandan did see Dr. Banks and I would love to discuss with you

our visit sometime. We had never been to the Lahey Clinic but we have been to

Rhode Island Hospital, Rhode Island Childrens Hospital, Childrens Hospital,

Brigham and Womens and Mass General. Since Brandans surgery his skin has a

beautiful glow again, he is once again living a quality of life, no longer

meerly

existing. He does live with residual pain 40% of patients that have the

TP/ICT do, but he does not endure horrific attacks, there has been no

hospitalization since his surgery, and he is NOT a diabetic. I would love to

talk with you

by phone sometime if you would like. Please feel free to email me personally

for sometimes I do not get a chance to read the posts everyday. I am still

looking for information, for PAINcreatitis has become a very big part of my

life. I learn from all who post everyday I read these posts and I have learned

so much from others here and also from the parents of children whom I also

speak with by phone with this same disease. I apologize for not posting more

often but life is as for all hectic. Welcome to all newcomers and a HI to all

who

have been by our sides for many years on this journey. As always keeping you

and yours in our thoughts and prayers always...Keep smiling (cuz sometimes

its all one can do!) TTFN.. : )

Peg Bates

Brwnbare9@...

MA State Chapter Rep.

Pancreatitis Association Intl.

" It truly is amazing how one person can make a difference. "

[Guest guest]

Hi Peg: Yes, I am from RI. I see that you're in nearby MA -- what

part of MA?? Thanks for the reassurance....but I do feel slightly

awkward rambling on and on about my problems when there are others

that are enduring far more dire circumstances. Yes, please do email

me at she_remembers@... I would love to hear the details of

how this disease progressed in Brandan. Today (but it's only 9

am!!) I'm feeling the best I've felt in a couple of weeks and I keep

hoping against hope that maybe it's just magically gone away!!! The

pattern though is taking a different twist lately and is the worst

at night now starting about noon and then progressively getting

worse until about midnight (like last night.) Anyway...would love

to hear from and also speak over the phone sometime.

thanks

> ,

> Please correct me if I am wrong but did you say one time you

were from RI?

> Anyways I wanted to say don't ever feel as if your rambling on

about yourself

> for I remember feeling the same way you did when I first met

Karyn, starved

> for whatever information I could find. With knowledge there is

power and if

> one can teach others by what they learn then by all means

ramble...: ) If you

> know what I mean. By listening to you it sounds exactly as

Brandan described

> to me when our journey with this disease started in 2000, the

color of your

> skin, Brandans turned a pasty white, black rings under his eyes

and yes the same

> pain you describe from the right to the back sometimes radiating

to the left.

> Brandan was never sick, so it did puzzle and still puzzles many.

I say that

> because Brandan did see Dr. Banks and I would love to

discuss with you

> our visit sometime. We had never been to the Lahey Clinic but we

have been to

> Rhode Island Hospital, Rhode Island Childrens Hospital, Childrens

Hospital,

> Brigham and Womens and Mass General. Since Brandans surgery his

skin has a

> beautiful glow again, he is once again living a quality of life,

no longer meerly

> existing. He does live with residual pain 40% of patients that

have the

> TP/ICT do, but he does not endure horrific attacks, there has been

no

> hospitalization since his surgery, and he is NOT a diabetic. I

would love to talk with you

> by phone sometime if you would like. Please feel free to email me

personally

> for sometimes I do not get a chance to read the posts everyday. I

am still

> looking for information, for PAINcreatitis has become a very big

part of my

> life. I learn from all who post everyday I read these posts and I

have learned

> so much from others here and also from the parents of children

whom I also

> speak with by phone with this same disease. I apologize for not

posting more

> often but life is as for all hectic. Welcome to all newcomers and

a HI to all who

> have been by our sides for many years on this journey. As always

keeping you

> and yours in our thoughts and prayers always...Keep smiling (cuz

sometimes

> its all one can do!) TTFN.. : )

>

> Peg Bates

> Brwnbare9@a...

> MA State Chapter Rep.

> Pancreatitis Association Intl.

>

> " It truly is amazing how one person can make a difference. "

>

>

>