Guest guest Posted July 3, 2002 Report Share Posted July 3, 2002 , , anyone, Based on advice to get this flare stopped before it does further damage I was thinking about calling my DR about Prednizone this morning. However, I checked my BP and it was 165/105 with pulse rate 51. Also my sugar was 295. Now I wonder if I should even ask about Prednizone. Ya'll got any thoughts? Bob Estes __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 2002 Report Share Posted July 3, 2002 Bob, July 24 IS too long to wait and you need to see a dr TODAY!! Don't even wait til tomorrow on the holiday weekend. You go see SOMEONE NOW. You need to get your blood sugar under conrol, your BP down and the RP flare under control. They can give you an anti inflammatory that might help the RP for now. Please don't wait. This is all serious and you need to be under a drs. care so you can have a great weekend. Don't keep thinking it will all get better by itself. AND you don't want to be in the ER on the 4th of July. LOL That would be no fun and you would have a real long wait. Just call and insist on seeing someone. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 2002 Report Share Posted July 3, 2002 Bob Read about your blood sugar...Are you a Diabetic? I am and when they put me on the Pred my sugar went over 300. Your blood sugar shouldn't be that high and you need to be on medicaton to control that. My first doctor who DX me with the Diabetes told me my the blood sugar for me should be no higher than 114. Don't wait get the sugar taken control and then they can work with the Pred. Both the high sugar and flars need to be controlled Sharyn > > > Date: 2002/07/03 Wed AM 06:35:19 EDT > To: Rpolychondritis > Subject: Re: Bob > > , , anyone, Based on advice to get this flare stopped before it does further damage I was thinking about calling my DR about Prednizone this morning. However, I checked my BP and it was 165/105 with pulse rate 51. Also my sugar was 295. Now I wonder if I should even ask about Prednizone. Ya'll got any thoughts? Bob Estes __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 2002 Report Share Posted July 3, 2002 Sharynn, I am type II Diabetic, on medication and since this RP began my blood sugar has been around 300. Before the RP my sugar was about 150. I am on a couple meds for BP and usually I am able to control that at about 140/90. My DR is concerned about the side effects of Prednizone. He got me an appointment with the Reumatology Dept here at U of KY, but it isn't until July 24. I'm wonder if that is too long to wait. Bob Estes __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 2002 Report Share Posted July 3, 2002 Hi Bob, My blood pressure is high because of the pred., but again, a steroid intervention is what you need to stop the flare. Your doctor should be able to look at how to best monitor you during this time, and may adjust or add b.p. meds to offset the Pred. Talk with him or her about this, but again, the flare needs to be stopped. Otherwise, it probably won't get better. Let us know what your doc. says! M Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 4, 2002 Report Share Posted July 4, 2002 Liz, RP or not it hurts. A burning sensation. It feels like my glasses are on and it burns where they touch my head but the glasses are on the table! 800 IBP works sometimes for three or four hours. Other time I must add a 10 mg Loratab. Thanks for caring. Bob --- Cobb wrote: > Bob, I absolutely agree with . You cannot > now > escape us! Whether it's rp or not. Unfortunately it > sounds pretty much like it to me! But things can get > a > lot better, so keep working on the doctors!!! Love > Liz > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 13, 2002 Report Share Posted July 13, 2002 bob hi bob, from what I understand there are no conculsive test proving or disproving RP. Some Dr.'s like to think that they are correct when they say that the test was negative. But you will find that some of us, have elevated sed rates when we flare and some don't, Some will have red hot ears with no swelling during a flare, and other will have red hot swollen ears, and some the rp will not affect the ears at all. Rp affects everyone differently. RP is diagnosed on symtoms there is a list of symtoms and if you have so many out of the list then you have RP. Sort of like fibro, you have to have the pressure point be affected to be diag. because there isn't a conclusive test. and rp is like that. hope this helps dawn Estes wrote: This is Bob and I have been quietly reading thepostings since my EENT told me that my biopsy wasNEGATIVE so I didn't have RP.I am confused about something. I read somewhere thatthere was no conclusive test for diagnoising RP. Ifthey can't say when it is positive how can they saywhen it is negative?When the Doc said the biopsy was NEGATIVE I asked himwhat that meant? He said simply that it means youdon't have RP.Does this sound right to you guys? Thanks, Bob__________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 13, 2002 Report Share Posted July 13, 2002 Bob, it sure sounds like you need some pred or something to stop that flare. Please don't wait too long. You should not be suffering. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2002 Report Share Posted July 15, 2002 Bob, Mine use to always be the whole ear except the lobe. Now it might only be the inside cartridge or what you are explaining you have. My flares use to start behind my ears and I would think my glasses were too tight or I slept on my ear wrong. As you can see, there is no set pattern for this disease. Please do something. If Heidi were here, she'd send the pain medication to your house for not listening. LOL Hope you get some good news and are pain free soon. Quote Link to comment Share on other sites More sharing options...
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