Guest guest Posted April 20, 2002 Report Share Posted April 20, 2002 Squeek I already have one of those kind of dr.!LOL Don't think I need another I wouldn't recommend!LOL You aren't a mouse but the name is cute. Gosh do you think we are ever going to start having spring weather. I am not complaining because after last year we need the rain. I just am getting spring fever and want to get busy on home projects. You take care and it is great you are out there when I need you! Lots of love Glenda (I can give you the name of my ex doc...a good one NOTto go to) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2002 Report Share Posted May 9, 2002 Squeek, you know you shouldn't work so hard. LOL I hope you are able to get out of bed in the morning. Hey if you feel great in the morning, come down here and work in my yard for awhile. I can keep you busy for a LONG time. Please take care. Did your Remicade come in? Let us know. hugs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2002 Report Share Posted June 2, 2002 In a message dated 6/2/02 12:06:45 PM Pacific Daylight Time, sisterslk@... writes: << Hey, they'd better have you in good hands, or there will be a lot of people to answer to! Did you get a date scheduled? Hope your weekend was great. How was the houseboat? Take care! Love, squeek >> Squeek, No, no date yet. I'm hoping for after the 4th of JUly. Our weekend was wonderful. It was an " Ark " built on the water. It was absolutely gorgeous inside and we had a huge deck overlooking the bay. The weather was wonderful and the food was even better.LOL Had lots of fresh fish. Didn't do a lot, but had a wonderful time. I am to start decreasing my pred by 1mg every 2 weeks now and see how low I can get it before the surgery. They would be happy at 5 mg, but don't think I have enough time for that. LOL Good to be home. Today is a day of rest and relaxation. LOL and Makeila will be coming over for dinner. Think I will have Rich BBQ. Sounds easy. Hope you are having a good weekend. hugs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2002 Report Share Posted June 2, 2002 Hi Squeek, Thank you for the thoughtful card. It really meant a lot to me. I appreciate you. I'm not online much right now due to some difficulties, but hopefully I will continue to get better each and everyday. Love you Lu Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2002 Report Share Posted June 3, 2002 --- Lu1953@... wrote: > Hi Squeek, > Thank you for the thoughtful card. It really meant a > lot to me. I appreciate > you. I'm not online much right now due to some > difficulties, but hopefully I > will continue to get better each and everyday. > Love you > Lu > Oh Lu, how wonderful to hear from you! I have been so worried about you lately. I've been contemplating a phone call to check up on you if you didn't check in soon. Sorry that you are still having so many problems. Is there anything I can do? Please know that I care, and check in whenever you can! Love you too, squeek ===== __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 2002 Report Share Posted June 24, 2002 Squeek, it sure sounded like we were going to get a lot done huh? Well guess what, nothing was done. LOL I finally decided on the colors of the paint but haven't bought them yet. Maybe this week. , and Makeila are out side now planting some plants and cleaning the pool. It is really to hot to do that. I'm going out there now and stop them. There will always be time. LOL Yes the neurontin is doing great. Glad I stuck with it. Hope you are enjoying your day. hugs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2002 Report Share Posted June 26, 2002 Squeek Like you said at least the flares are not as bad as they used to be and that is a plus...I think! Sorry I am so long at getting back to you. I have been so busy with the house it isn't funny. Trying to work and redecorate a home is not fun!LOL We have finished the painting all except for Shae's room. We completed the front bathroom and it is just beautiful now. The only thing left for me to do now is get the kitchen floor laid and Shae's room done. The kids will be here on the 3rd. I just hope I get done by then!LOL I am hoping to start on the floor tonight. I took a couple days off on Monday and Tuesday from work around here due to being so tired and Yesterday we went to visit my Sister. It was her birthday. She is doing pretty good. Still having a time one of her incisions has an infection and she still is unable to more her right arm around very well. It has been only three weeks and I keep telling her to give it some time. Well I had best get off her and get ready for work. Doesn't look like I am going to get caught up on all my email yet! Take care Lots of love Glenda At least the flares aren't as bad or as long, sothat is a step in the right direction.How are you doing? Finished with the homeredecorating yet? We are going to be doing somerepairs on our home this summer also, starting with anexterior paint job.Hope you and your sister are both well.Take care! Love, squeek Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 2002 Report Share Posted July 3, 2002 Squeek, So good to hear that you are doing well. I wont say that the fatigue will go away but you do get used to it. I still get tired but I think it is from all the extra work that I try to do!LOL Not really....even when I am being lazy I get tired at times. They are fewer and farther between than they used to be. Take care and glad you are doing well. (I am whispering because I don't want to jinx you!) Lots of love Glenda Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 6, 2002 Report Share Posted July 6, 2002 In a message dated 7/6/02 4:46:24 PM Pacific Daylight Time, OneSuperMema@... writes: << I found that I do have sleep apnea, but there's so much other stuff going on in my life right now that I'm not going to deal with the apnea. >> MARY, DO YOU WANT ME TO COME AFTER YOU WITH HEIDI'S PAIN RELIEVER?????? You HAVE to do something about sleep apnea. Did you know that it is the Major cause of heart attacts and strokes. YES... you have heard of people getting out of bed and .....well, that was it for them. This is because of sleep apnea. You MUST get it taken care of. Did they recommend a C pap? GO GET IT!! Geez, what are you guys going to do without me here to nag at you??? Come on ?? Getting the medic alert wasn't so bad was it???? See... so go get this taken care of too. You will feel much better everyday and have more energy. you know I love you and that is why I nag. hugs claudia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 7, 2002 Report Share Posted July 7, 2002 Squeek, Glad all went well with the infusion. I hope it isn't my fault you have taken up painting. Ugh I don't even like to think of that word!LOL We still have to paint Shae's room and the spare room. They will be a lot easier than what the rest of the house was. We just ran out of time before the kids got here. I think Mikie was pretty glad about that one.LOL He was getting tired of me being such a slave driver. I am a worker when it comes to working. I go and go. He is the type that needs a lot of breaks!LOL Oh well he will get a good rest while the kids are here.LOL They are here until the 17th. So glad that you enjoyed your 4th. Sending good thoughts and prayers that the ear thing is just a fluke! Lots of Love Glenda Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2002 Report Share Posted July 9, 2002 --- OneSuperMema@... wrote: > > > Hi, Sharon, > Yes, in my opinion, it was worth it to go see Dr. > Buckner. Mainly, because > my Rheumy is Greek (nothing against Greeks) and she > doesn't talk very much or > give me any information. And sometimes I KNOW I'm > having a flare, but she > says if your ears aren't red, you aren't flaring!! > Not so, according to Dr. > Buckner. So, for me, Dr. Buckner was able to give > me a lot of insight about > RP, what it can do to the body, how it can make you > feel, and what can be > done about it. As I said in my earlier post, I > never know WHAT is making me > hurt so badly because I have so many things wrong > with me. (NOT what I > imagined retirement to be like. LOL) So it was > nice to hear that in her > research she is working on testing that will > differentiate the CAUSE of the > problem. > > Since I won't be going to her all the time due to > the distance issue, she > didn't want to change my medication regimen; > however, she did indicate that > she thought Methotrexate might be something my local > Rheumy should consider. > In the written report that she sent me, she also > mentioned some other > medications that might be tried. She gave me a very > thorough examination and > was also thorough with the lab work. She also > wanted me to have a sleep > study while in Seattle (which I did) because she was > afraid there might be > some trachea problems when I slept. I found that I > do have sleep apnea, but > there's so much other stuff going on in my life > right now that I'm not going > to deal with the apnea. > > Sharon, I just couldn't get over how well the > doctors worked with each other. > I certainly don't see that with my doctors here, > unfortunately. The docs at > Virginia Mason truely seemed to care about the > welfare of their patients. > > If you've never been there, and you're planning to > go, I'll give you one > piece of advice.....wear your walking shoes. The > area is all very steep > hills and I don't think I've ever walked so much in > one day. > > Take care. > Love, > T. > ===== __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2002 Report Share Posted July 9, 2002 --- OneSuperMema@... wrote: > > > Hi, Sharon, > Yes, in my opinion, it was worth it to go see Dr. > Buckner. Mainly, because > my Rheumy is Greek (nothing against Greeks) and she > doesn't talk very much or > give me any information. And sometimes I KNOW I'm > having a flare, but she > says if your ears aren't red, you aren't flaring!! > Not so, according to Dr. > Buckner. So, for me, Dr. Buckner was able to give > me a lot of insight about > RP, what it can do to the body, how it can make you > feel, and what can be > done about it. As I said in my earlier post, I > never know WHAT is making me > hurt so badly because I have so many things wrong > with me. (NOT what I > imagined retirement to be like. LOL) So it was > nice to hear that in her > research she is working on testing that will > differentiate the CAUSE of the > problem. > > Since I won't be going to her all the time due to > the distance issue, she > didn't want to change my medication regimen; > however, she did indicate that > she thought Methotrexate might be something my local > Rheumy should consider. > In the written report that she sent me, she also > mentioned some other > medications that might be tried. She gave me a very > thorough examination and > was also thorough with the lab work. She also > wanted me to have a sleep > study while in Seattle (which I did) because she was > afraid there might be > some trachea problems when I slept. I found that I > do have sleep apnea, but > there's so much other stuff going on in my life > right now that I'm not going > to deal with the apnea. > > Sharon, I just couldn't get over how well the > doctors worked with each other. > I certainly don't see that with my doctors here, > unfortunately. The docs at > Virginia Mason truely seemed to care about the > welfare of their patients. > > If you've never been there, and you're planning to > go, I'll give you one > piece of advice.....wear your walking shoes. The > area is all very steep > hills and I don't think I've ever walked so much in > one day. > > Take care. > Love, > T. > ===== __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2002 Report Share Posted July 9, 2002 No Squeek, We will have no dental and we will have really bad insurance. Guess that I will just have to start over and educate all of them. LOL hugs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2002 Report Share Posted July 9, 2002 Squeek, You forget that I went to him too! He should have great information on me as my RP was put in check and I only flare occasionally now. Hope he does wonders for you! I wish I could have gotten along with him as well as you do. Oh well I have a great rheumy now too. Sometimes it is just the personalities I guess. How are you doing? Getting better slowly but surely I hope! Lots of love Glenda However, if I ever lose "Dr. Wonderful", I am just onestate away from Dr. Buckner. I think my rheumy istops and I trust him, which is very unusual for me. Hehas one other RP patient so has some experience.You take good care of yourself, and hopefully you canfind a doctor who will talk to you and listen to you.Love, squeek =====__________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2002 Report Share Posted July 10, 2002 Hi Let me check, but I think you can get the same dental insurance I have. Not the greatest, but does cut the costs way down. I'll see if I can get the information to you. It's really rather chep too. hugs' Sharyn > > From: RCColloran@... > Date: 2002/07/09 Tue PM 11:50:57 EDT > To: Rpolychondritis > Subject: Re: Squeek > > No Squeek, We will have no dental and we will have really bad insurance. Guess that I will just have to start over and educate all of them. LOL hugs DISCLAIMER!! WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 13, 2002 Report Share Posted July 13, 2002 In a message dated 7/12/02 6:07:59 PM Pacific Daylight Time, sisterslk@... writes: << I'm scaring my poor husband now...too much watching Trading Spaces... >> Dont' ya just love that show?? LOL I think if we didn't watch it, neither one of us would be doing major painitng now. LOL With the all but one of the girls gone, I needed to redo the rooms and especially mine. LOL Yes, I went BOLD. The problem is that now I want to do the hallway and bathroom and have all of the upstairs done. I will start on the down stairs at a later date and that's what needs it most. LOL Guess I thought if I was gonna be resting in bed a little more, I wanted it to look nice instead of white. LOL I think this is all nervous energy. Have to keep busy. Hope you can get yours done soon. I hope I can too. Getting tired of seeing paint. LOL Have a great weekend Squeek. I'll be thinking of you with paintbrush in hand. hugs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2002 Report Share Posted July 16, 2002 Sorry I haven't gotten back to you. Sounds like you know what it is like to have family visiting! ) True you love them to pieces but it sure is nice when they go home.LOL Sorry I rubbed off on you with all the painting! Is your house gorgeous yet? I sure like the look mine has now! Wow what a difference! goes home tomorrow. Gish I am going to miss him. I have been trying to get the boo hooing done before they all see me when they go. Do Mom's ever stop hating to see their kids go? ) This has been a great visit that is for sure. Just wish they all lived closer so we could see each other more often. Well I best get busy and reply to some of the other posts. Lots of love Glenda Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 23, 2002 Report Share Posted July 23, 2002 Squeek, No one can fill my big shoes that is for sure!LOL I can sure use all the help I can get in more ways then one! Lots of love Glenda Re: Glenda Oh Glenda, you are certainly right behind onthe worrying end of things. No way can I ever fillyour shoes....just trying to help out for the shortterm!! Love, squeek Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 24, 2002 Report Share Posted July 24, 2002 Squeek, I'm so sorry I missed your call. I think I missed lots of calls yesterday. Rich forgot to tell me a few and I just couldn't get back to you. Know I'm going to be just fine..I'm so proud of you all!! Boy!! You guys are great whiners, naggers and worriers! LOL I think you might just have me beat. LOL Keep it up. Oh... one more thing I forgot to add to the whinnie list... Bone Density Testing!! Yes,, get them done and get those mammograms done too.!!! I won't be leaving til this afternoon and I just know I'll have to check in one more time. I will miss you all bunches. I am going to try to make it to chat. Dawn and I usually just talk to ourselves there. LOL and I miss the whole thing. LOL have a great day. hugs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 27, 2002 Report Share Posted July 27, 2002 Squeek About the stress in my life....I have none!LOL NOT!!! I think I work better under pressure. It is just my body that tries to rebel every once in awhile.LOL As for my sister they have tried all they can try. Nothing has worked. Dr. asked or I should say told her that it was touch and go there for awhile. He was actually watching her die right before him. He said it was her life or the legs so guess what they chose. They are using some nerve medicine now on her so she can get the use of her arm back. Arm has nerve damage due to the last go round. The had to cut out part of her clavicle to save her life and evidently there are a lot of nerves in that area. Legs will be okay for now but she will never be able to get around for very long periods on them. Walking from one room to another is a major chore for her but at least she is still walking! I think they are going to get her on permanent disability. At least she is staying with her son and his family now and not alone. I don't have to worry about something happening to her and no one finding out for a few days! Thanks for your concern. I will keep you posted and yes I know you are always there for me! Hope I never have to use yah but it is great to know you are right here close! Lots of love Glenda Hi Glenda,I don't know how you keep going with all the stresslife keeps throwing your way. I know how it is when asister is ill.....they are so special to us! I willcertainly continue to pray for her and for you.What are the doc's going to try this time besidesremoving the grafts? Your sister must be sick andtired of doctors, hospitals, and surgery. Tell herthat I am going to be praying for her.Are you getting some rest this weekend? Hope so! Youhave to remember to take care of Glenda too. I knowwhat a worry wort you are and don't want you getting aflare right now.I am helping lay our new flooring this weekend and itis a JOB!Take care! Love, squeek Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2002 Report Share Posted July 28, 2002 Squeek You got the prayers coming already! Gish this weather here is the pits. I know it has been hot here today at our house. We have just been laying low. Too hot to do anything and didn't feel like going to the lake. Oh well I needed the rest anyway! Take care and good thoughts and prayer definitely going your way! Lots of Love Glenda Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2002 Report Share Posted July 30, 2002 LOL Squeek! Now you sound like me! We still need to get Shae's room painted but I can't make myself get the paint out quite yet!LOL Mike every time I mention it, you would think I said a dirty word!LOL Poor guy! I really work him when I get started on something. I work until it is done....he likes to take lots more breaks than me! Hope the floor goes a lot easier for you this week end. Sending good thoughts and prayers that you get to feeling better. I know the heat is the pits when you don't feel good to start with! Lots of love Glenda Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 14, 2002 Report Share Posted August 14, 2002 Squeek you are not about to let me live that down are you? LOL Gish that was about the dumbest thing I ever did!LOL At least I found the campus Inn. That was what it was called wasn't it? I will ask my sister in-law and see what she recommends and you are right we can get directions on the Internet. Can't wait to see you both again! ) Lots of love Glenda Glenda, knowing our history, we will probably be atone restaurant, Blue at another, and Dagny at a third.Then we will all get lost trying to find our way outof Salem. Actually, if your sister in law knows of agood restaurant, we can get driving directions online. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 14, 2002 Report Share Posted August 14, 2002 --- Glenda McClennen wrote: > Squeek > you are not about to let me live that down are you? > LOL Gish that was about the dumbest thing I ever > did!LOL At least I found the campus Inn. That was > what it was called wasn't it? > > I will ask my sister in-law and see what she > recommends and you are right we can get directions > on the Internet. > > Can't wait to see you both again! ) > Lots of love > Glenda > Probably not! But hey, in retrospect you have to admit that it was funny. I laugh everytime I think about us sitting at separate restaurants and watching for each other. I even went inside and asked for you, then called you....never even thinking of all the Shari's there are around here! So who is the dumb one??? As Bob Hope would sing.... " thanks for the memory " ! Love, squeek ===== __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2002 Report Share Posted August 18, 2002 100 mg is what I take of the Imuran and I am like the energizer bunny.... I keep going and going. That is until my battery wears out. Lots of love Glenda > > I am on the Imuran also and it wipes me out. I> usually take a nap. But like > > Glenda says it does get better with time. > > Lu,> How long did it take before you started noticing the> fatigue getting better?> Love,> > You mean it gets better?? I've been on it for over ayear, and I'm still not used to it I guess. I take150 mg a day. How much do you guys take?Love, squeek Quote Link to comment Share on other sites More sharing options...
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