Re: update on me

[Guest guest]

Congratulations, Marg. So happy. What a birthday present this will be! My

best to you. PhillyJude

[Guest guest]

Marge, Wow, I am so pleased for you. I know what a TIME you have had this

year trying to get your insurance to pay. My prayers and thoughts are with

you. Love, Betty in Forest City

Update on me

>Hi EVeryone, I am so happy to have been at tuesday's clinic I met

>some of the nicest people. I met Akin in person what a sweet

>person which I knew she would be from all her great posts. There were

>lots of post ops there and all were doing great. All you guys who had

>surgery I hope you are all doing great and everyone who is waiting

>for friday it wont be long now. I just wanted to share with everyone

>that I have started this in July and I have finally gotten my

>insurance to pay and I have a date on January 3rd which is also my

>42nd birthday!!!!! I can hardly wait. I have done the research,

>talked to everyone and this is the surgery for me!!!I could not be

>any happier with my decision!!! For those of you that haven't met the

>doc, Well let me tell ya HE IS GREAT!!!! I really think that he is

>doing this because he CARES!!! And I am so greatful for finding such

>a caring person that I can trust to put my life in his hands.He has

>called me on a Saturday to answer my phone call and he has emailed me

>back everytime I have wrote him. I appreciate the time that he really

>puts into all his patients. Thank you all who have encouraged and

>answered questions!!! I have had the best time even if it has taken

>long time to finally get here. Sorry this is so long

>Love and hugs marg

>

>

>

[Guest guest]

Yea Marg!! I can't think of a more delightful birthday present. Keep us

posted.

Tarri in Missouri

MGB 09-29-00

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Update on me

> Hi EVeryone, I am so happy to have been at tuesday's clinic I met

> some of the nicest people. I met Akin in person what a sweet

> person which I knew she would be from all her great posts. There were

> lots of post ops there and all were doing great. All you guys who had

> surgery I hope you are all doing great and everyone who is waiting

> for friday it wont be long now. I just wanted to share with everyone

> that I have started this in July and I have finally gotten my

> insurance to pay and I have a date on January 3rd which is also my

> 42nd birthday!!!!! I can hardly wait. I have done the research,

> talked to everyone and this is the surgery for me!!!I could not be

> any happier with my decision!!! For those of you that haven't met the

> doc, Well let me tell ya HE IS GREAT!!!! I really think that he is

> doing this because he CARES!!! And I am so greatful for finding such

> a caring person that I can trust to put my life in his hands.He has

> called me on a Saturday to answer my phone call and he has emailed me

> back everytime I have wrote him. I appreciate the time that he really

> puts into all his patients. Thank you all who have encouraged and

> answered questions!!! I have had the best time even if it has taken

> long time to finally get here. Sorry this is so long

> Love and hugs marg

>

>

>

[Guest guest]

, I'm so sorry to hear about your sister. I'm sure being closer to

you will help.

My flares are always worse in May. I have never had allergies, until this

year. I wonder if I had them and didn't know it yet. LOL My doctors don't

say much about the connection either.

What is the new allergy drug you are taking?

Please let us know how you are more often. It is always so good to hear from

you.

hugs

claudia

[Guest guest]

--- Lee27a@... wrote:

>

> Hello Everyone, I just wanted to say that I am still

> recovering from my

> surgery and it hurts! I also saw a cornea

> specialist on Friday because I

> can't see very well at all out of my right eye and

> this was the third eye doc

> I saw since I had my surgery. He told me my eye was

> so dry (I have Sjogren's

> Syndrome too) that I had lesions on it and he pulled

> out the long needle and

> closed my tear duct on the bottom--the top ones are

> already closed. Boy did

> that hurt, oh well it just added more black and blue

> to me. He is hoping I

> will get some of my vision back. I Pray that I

> will!!

> I also have a question for you guys. I am in a

> flare and the prednisone

> isn't taking care of it. The Rheumy wants to start

> me on Methotrexate as

> soon as I heal up a little bit better. I am so

> confused about everything.

> My left ear is pounding inside and hurting but the

> pred isn't working and I

> am very concerned about taking the Methotrexate.

> Can anyone tell me what

> their experience is on this med? Does this mean you

> can get off of the pred

> eventually? Thanks for any info that you give me.

> I hope everyone is doing

> fine.

>

>

> Love, Sharon

>

Sharon, I hope you feel better really soon, When I

was first diagnosed the very frst time I went to see

the rheumatologist he said he would like to put me on

methotrexate. He said he had a couple of patients on

Imuran that were not responding and he would like to

try the mtx. Well, I wnt home and read up about it

and got very nervous. I rang my rheumy and he

explained that methotrexate is prednisone sparing. As

I was ALREADY worried about pred, I thought, OK. The

important thing with mtx is to have your liver

function tests regularly.

I started on 7.5 per week and gradually increased to

17.5, which I am still on. I have no problems, apart

from occasional nausea the day after, but if I drink a

lot of water and eat low fat this does not occur. I

drink a lot of water BEFORE I take it as well as

after. The first year on methotrexate I was pred

free, now I am on 5mg a day (in medical terms this is

nothing, my doc informs me!!! I also now take 200

plaquenil daily. (This is for the rp)

It is also important not to take alcohol when you are

on mtx, as the main possible complication is liver

damage. I think sometimes we worry too much about the

bad effects of medication rather than the bad effects

of rp. Do what your doc suggests, only start one new

med at a time and keep a diary of how you feel. If it

does not suit you talk to your doctor and explain to

him. Mtx does sometimes take up to three months to

have an effect (for me it started working fairly

quickly!!)

I am in sympathy with your eye problems' since 3rd of

July I have been having what I think are dry eye

symptoms, (painful, gritty feelings, especially at

night.) I have been using Celluvisc which seems to

help, but I am calling the opthalmologist on Monday!!

I do hope yours improves quickly.

I am sure you are in pain from the surgery. Every

time I have had surgery I have spent several days

muttering to myself - why did I do that, its worse

than before etc etc - however I am sure you will feel

the benefits in due course, the swelling and bruising

will go down, you will no longer feel like a monster

when you look in the mirror, but this all takes

time....also I think anasthesia makes you feel bad for

quite some time. So hang in there Sharon and believe

you will feel better. You are still in my prayers.

Love Liz

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