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Re: Digest Number 2507

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Reply to Dawn:

Hi Dawn, I am sorry you had to go through that. I've found that what works is writing a letter of complaint to the State Dept. of Health, Bureau Regulation of Insurers. It may have a different name in your state, but you usually can find it in the Internet, or your insurance booklet. That's the only thing they pay attention to. Report what happened and send them (the dr's office) a cc. You may never get a response (sometimes you do) but at least they know you are reporting this to an outside regulatory agency, and they take notice. I had a doctor whose office bounced me around a lot and were extremely rude. I took it for a long time, but eventually I send that letter with dates and facts. Lo and behold, they got a letter from my insurer telling them to stop harrassing me. I did it with an incident regarding my dad also, and they investigated. It's worth a try and it's good venting. Hope you are doing better. Love and prayers,

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To: Sally

Re: eyes

Hi Sally, I've had scleritis and uveitis in my eye due to RP. Scleritis hurts a lot and I see a yellow blob out of the corner of my eye when I get it. I don't think that's what you got but just wanted to let you know that if you have RP there are things that may do a lot of irreparable damage to your eyes and you need a good doctor. Teaching hospitals are usually good, they like to see unusual cases. Not all eye doctors, not even cornea specialists will be on target. When I've had scleritis one told me my retina was tearing, before that he told me I had an eye infection. Then a cornea specialist told me it was a sinus infection and put me on antibiotics. I hate to say it, but I knew the difference between one and the other and knew it was none of these. When I went to Bascon Palmer at UM, they saw all this scarring due to repeated bouts of scleritis and a lot of inflamatory activity. One thing with this disease is that you find a lot of misdiagnoses and a lot of doctors who don't know and don't want to admit it. So you have to keep searching if you sense they are bs'ing you. Blurring vision is not a sign of old age!!

Hope you find a good eye-doctor. Love,

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Hi , you just told the story of my eyes!! I have misdiagnosed so many times. It was at a teaching hospital that I was dx with scleritis and that was a while ago. Of course I have scarring on my cornea in the right eye.

Sharon

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  • 1 year later...

In a message dated 8/25/2003 3:01:10 PM Eastern Daylight Time,

Graduate-OSSG writes:

> Message: 21

> Date: Mon, 25 Aug 2003 11:27:41 -0700

>

> Subject: RE: Blowing off a little steam....(feel free to disregard)

>

> ,

>

> I hear you loud and clear. Find an eating disorders counselor. That's

> what I've had to do to even START getting a handle on my behavior.

> Losing the weight doesn't cure the old problems. I still had all the

> feelings of inadequacy, loneliness, and failure that I started with, but

> now I can't quiet them with food. For a while, I quieted them by

> spending money, but that made things (and is still making things) way

> worse.

>

> And on the nighttime eating thing, GO TO BED. You can't stuff your face

> at midnight if you go to bed at 9:30. That sounds incredibly stupid and

> patronizing, but it's actually helping me. Go figure. :-)

>

> Z

> Open RNY 09/17/01

> 310/126/141 (goal was 160)

> Then/lowest/now

> http://www.ziobro.us/Blogger/WLS.html

>

> Blowing off a little steam....(feel free to

> disregard)

>

> Y'all, (I'm from Texas LOL) I am so disgusted with myself I could

> SCREAM! I canNOT get control of my eating, water, and exercise. I have

> gained several pounds when I'm still about 30 from goal.

> I haven't lost any real weight in many months.

> Every day I'm going to START; I'm going to do better. I do fine during

> the day sometimes, but in the evening and at night, I just lose it and

> start cramming stuff in my fat mouth. And lately it hasn't even been

> just at night. I look in the mirror, and I hate that person looking

> back at me that is so weak. WHAT is the answer? WHAT is wrong with me?

> Yes, I've lost 130- 140 pounds, but now I seem to have no control. What

> if I gain it back? I am so digusted, depressed, and just plain angry at

> myself. I so want things to be different. Will food forever control me?

>

>

> Thanks for letting me vent.

>

>

>

>

I am a first time poster to this list, but have been lurking for a bit and

reading when my schedule permitted. I had lap RNY on 11/01/01 with Dr. Gagner

at Mt. Sinai, had a lower bowel leak immediately postop which caused me to

hemmorhage copiously through the anus (to the extent that my hematocrits were 25

at the time of my discharge). Luckily the leak healed over and I didn't need

emergency surgery to effect repairs. Developed two ulcers also postop, not

fun. Developed an intolerance to the prescribed 300 mgs daily dose of iron

(first tried Chromagen, then Niforex, then even tried cutting Niforex down to

150 daily, and still a no go.) Have found I can tolerate 100 mgs of SloFe

which I take on an empty stomach with Vit C to boost absorption, and so far my

labs have been fine as it relates to iron. My weight loss stats are, having

started out at a top weight of 350, I am presently down to 145lbs, at 5'8 " , so

I am quite a happy girl! I exercise religiously, do 40 minutes of very

strenuous cardio (I am drenched at the end) about 5 - 6 days a week, and weight

train 3 times a week for about 35/40 minutes using 10 lbs weights (started out

with 3-lbers, and built up over time). Before surgery, the only exercise I

ever got was opening the lid on my mid-afternoon pint of Haagen Daaz (I am

sure many can relate). I am VERY proud of the level of fitness I have

achieved. A couple of weeks ago, my pulse was taken prior to my making an

autologous donation of blood, and my resting heart rate was 60, at which point

the

nurse asked me if I was a runner! Never in my life did I ever dream of being

asked a question like this LMAO!!!!

Anyway, I am scheduled for a panniculectomy on 9/08 (also at Mt. Sinai), and

I wanted to know if there are any tips from those who have had the procedure

which might prepare me for the surgery. I realize our experiences are often

quite individual, but still I would love to benefit from the wealth of

knowledge on this list. BTW, what the hell is a LBL?????? (I am guessing

lower

back lift???? but this sounds bizarre). Yes, I am getting the 'round the

world treatment, front and back. Along with a gut that droops nearly halfway

down my thighs, my ass jowls are frightening to behold!

I highlighted the exchange between and Z because it has enormous

personal relevance to me. Like , if I am going to have an eating

problem it will happen at night, always. Apparently, from what my therapist

says,

this is rather common. I have to agree with 's advice that perhaps

therapy might help, or joining a support group like TOPS or even OA (if you have

a

spiritual bent.) advised going to bed, and I think this would work

IF ONLY I didn't wake up during the night and stuff my face. So, the long

and short of it is that while we are extraordinarily changed externally as a

result of WLS, we are still the same people inside. Same coping skills (or

lack

thereof), same frustrations, same hurts, same histories, same emotional

baggage blah blah blah. , be kind to yourself, always (that's the first

rule), and try to avoid the self-loathing that usually follows fast after a

binge. It might be beneficial if you could try and recall what you were

feeling

or thinking at the moment you started overeating (this is not as easy as it

seems). When you get the urge to eat at night, try reading, or taking a warm

bath, or knitting or crocheting something (involve your hands and distract

yourself.) This works for me SOMETIMES, so it's sure worth a try.

Personally,

I have found that being placed on an antidepressant has helped quite a great

deal, but that is MY experience. I accept that I am not going to change the

behaviors of 50 years overnight, or even any time in the immediate future, but

I acknowledge the PROCESS.

Lucille

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